44 replies to this topic

[eujei]

i chose full body sensation for two reasons: the idea of something being wrong with me and not feeling it scares me a bit. and the other is because full body sensation is really the one thing that nobody can do for you. every quad can have a normal life because almost every sci problem has a solution. being dependent is a pain in the ass but i can live with it, specially if the caregivers are people i like. and i also blame the lack of sensation for ending the relationship i had pre sci.. me not feeling during sex was the only thing that really broke her heart..

[Notwheels]

Has to be lack of pain (Incomplete C3-7). There is no relief from the pain and it never stops. I know people who would trade me to have the pain but I wouldn't wish this kind of pain on anyone.

Hi InTheWind, I'm Arkansas also!

Carolyn

[SnoFl]

Arms and Hands

[Shrike23]

SnoFl, on Aug 8 2009, 09:17 PM, said:

Arms and Hands

I also chose arms and hands, that's always been my wish when I think of such things. Triceps and fingers and I would be okay.

Greg

[NatalieWatts]

This is such a tough question. Every option is so attractive but hand/arm function would definitely have the biggest impact on my daily life.

[McTavish]

I choose legs as I have arms (thank god) and I could live very happy using catheters as they are no problem to me, so yes it has to be working legs.

[Tetracyclone]

I cannot vote as my preference is not on the list. I would first choose to loose the hypertonicity in my torso muscles and bladder. This makes my life quite painful and movement difficult even though I am capable of movement.

I exercise but am often limited when the exercise itself sets up muscle spasms and cramps in the belly and torso that impair breathing. I am so close to being able to work out thoroughly, but it only works on good days, or one in three.

[sam4012]

my dsughter would say use of hands and contol her own bowel and blAdder..she has light sensation on 90% of ber body and is a c5 c6 burst fracture incomplete. Waiting for van to get done being modified so she can drive again and get out on her own after she finishes college. She asked this summer if DARS would help her find a summer intern job but her caseworker sat there and told us she can't work until she gets her degree. this is sooo wrong when she would like to work and become independent and not depend on her parents.

[TjTheQuad]

deffinately my arm + hand functions

[rattrap]

i would want to poo normally and have a better working digestive system, but then if i had working hands the bowls may be easier to control..i would need to try each scenario out separately then decide

[spot]

I vote for getting rid of the PAIN. It makes it impossible for me to think, sleep, relax or anything else. I'll worry about getting rid of something else after I can see past the endless pain.

[Faith_Bynum]

I've got everything, but my arms and legs. I can't really do anything without my wheelchair or someone to help, but hands and arms would be great. What's strange though, is that my legs have more movement than my arms.

Someone explain to me why the signal can get ALL the way DOWN there, but pass my arms? I don't get it! Haha.

[mellowgator]

legs,legs, legs,

i'm used to the b&b and i have pretty good hands for a quad.




mellowgator

[Snakeye]

Ya legs....I'd love to walk in the woods one more time...go tracking critters in the snow

[Tetracyclone]

This is like the old question, "which of your children would you sacrifice, if you had to?"

I don't just want it all back like it was before the accident, let's get creative and make me as physically capable as I was at age 16!