12 replies to this topic

[Edinburgh Colin]

Every Eight Hours Website

There is a new website just created to promote awareness of SCI you should all take a look, it will be old news to most but it deserves a look.

Every Eight Hours website

Also try and promote it to your contacts it all helps to promote our situation to the wider world.

[guido]

And if you have a Twitter or FB account it's an easy one to share!

10 minutes later... um.. it's pretty badly done, and the videos are err.. cringeworthy. Sorry. I know they're trying to do good and be helpful, but I don't like anything about the way it is done, the way it portrays SCI or people with SCI.

Maybe it's just me?

Edited by guido, 17 May 2011 - 08:44 PM.

[Heretic]

"SCI can happen to anyone – the major causes are Road Traffic Accidents, falls and sporting injuries. It only takes a second, but the consequences are permanent for almost all those affected."

It's a pitty that the emphasis is entirely on physical causes of SCI; quite a number of people have SCI through autoimmune conditions such as TM.

[Edinburgh Colin]

Heretic, on 17 May 2011 - 09:03 PM, said:

"SCI can happen to anyone – the major causes are Road Traffic Accidents, falls and sporting injuries. It only takes a second, but the consequences are permanent for almost all those affected."

It's a pitty that the emphasis is entirely on physical causes of SCI; quite a number of people have SCI through autoimmune conditions such as TM.

Got to admit with hindsight and after reading both Guido's and your posts I may have been a bit quick off the mark. It's intent is good but as you say the whole medical generated SCI side of things is skipped over which is a major oversight.


I would hope that possibly the content can be upgraded and this year seems to be the first attempt to raise the awareness with the attempt to introduce the 20th of May as awareness day and possibly this has not had enough time to be properly reviewed or market researched.

I still think it's a valiant attempt to raise the awareness and does contain some very concise information for the huge number of people who have no idea.

[guido]

Yes. But it does this by trying to make us look a bit pathetic or heroic or, I don't know, just gets the tone wrong. There are other organisations working tirelessly such as http://www.isci.is/


And this is one run by a totally dedicated woman (mother of an SCI woman) who has taken it round governments, regions and all sorts. Really looking at the practical side of getting to the Policy makers.


Would be good here in the UK, our 4 or 5 SCI "8 Hours" collaborators got in touch and ADDED to the work that ISCI are doing rather than trying to be separate and do their own thing from scratch. A truly international effort would be FAR cleverer. Same logo appearing in EVERY country and taking advantage of work that's already been started...

[Heretic]

Edinburgh Colin, on 17 May 2011 - 11:26 PM, said:

Heretic, on 17 May 2011 - 09:03 PM, said:

"SCI can happen to anyone – the major causes are Road Traffic Accidents, falls and sporting injuries. It only takes a second, but the consequences are permanent for almost all those affected."

It's a pitty that the emphasis is entirely on physical causes of SCI; quite a number of people have SCI through autoimmune conditions such as TM.

Got to admit with hindsight and after reading both Guido's and your posts I may have been a bit quick off the mark. It's intent is good but as you say the whole medical generated SCI side of things is skipped over which is a major oversight.


I would hope that possibly the content can be upgraded and this year seems to be the first attempt to raise the awareness with the attempt to introduce the 20th of May as awareness day and possibly this has not had enough time to be properly reviewed or market researched.

I still think it's a valiant attempt to raise the awareness and does contain some very concise information for the huge number of people who have no idea.

Sorry, I didn't mean for that to sound overly critical. It's a good effort and more power to 'em!

[greybeard]

The trouble with all websites is that however good and eye-catching they are, they will only ever be seen by people who have taken the trouble to find them and who therefore already have an interest in the topic. Bit like preaching to the converted. If awareness is to be raised successfully, it needs to be done by using a more " in your face ´´ method like TV, bill board or newspaper ads.

[Edinburgh Colin]

greybeard, on 18 May 2011 - 10:55 AM, said:

The trouble with all websites is that however good and eye-catching they are, they will only ever be seen by people who have taken the trouble to find them and who therefore already have an interest in the topic. Bit like preaching to the converted. If awareness is to be raised successfully, it needs to be done by using a more " in your face ´´ method like TV, bill board or newspaper ads.

Tis true wise sage.

[guido]

Yes. I agree one doesn't want to dismiss efforts to raise awareness. Equally they have a responsibility to be very carefully of what message they send out. We (peeps with SCI) will all be judged by people who only see / know this site - and I don't relate to it when I watch the videos. And the main problem I see is that no-one seems to be taking responsibility for it?


There is no contact details for the site, on the site, and not one of the charities has responded to either of my tweets (to all of them except SIS - couldn't find their twitter name).


Feed back should be accepted as a gift. It is free and constructive.

[Lucydog]

I would quite like to go to one of the events they are saying are on, however there are no further details on the website and dont seem to be anywhere else either so Im not sure anyone will turn up as its only 2 days away.

[Edinburgh Colin]

Lucydog, on 18 May 2011 - 12:33 PM, said:

I would quite like to go to one of the events they are saying are on, however there are no further details on the website and dont seem to be anywhere else either so Im not sure anyone will turn up as its only 2 days away.

I just got a message back from them to say if you call a Christine at Aspire on 020 8954 5759 then she has all the details .

Edited by Edinburgh Colin, 18 May 2011 - 03:52 PM.

[guido]

Interestingly, after a couple of tweets I had a tweet back from Aspire and a long call with Sean @ the Back Up Trust. Feedback is good. It's always easier to achieve something with support - both absolute and objective. And we'll see what they do with the site.


Think I'm with GreyBeard on this one. One person who has done so much to "raise awareness" for SCI this year is Melanie Reid in all her articles. Intelligently and poignantly written, but with an ultimately determined outlook. She has my vote!


I'm just not sure I know what "raising awareness" actually means? Or what are it's ultimate goals?


Still, conversation & communication (2 way) are generally a healthy thing.

[edlee]

For me,,, raising awareness means,, getting out there. Doing things that everyone else does,,, or trying to do them. Even in our failure to do something,, in public,, we are making the general public aware of what is needed. And our efforts show them that we have the desire.

I see nothing either pathetic nor heroic in being an SCI,,, it's just what I happen to be. That's really what I'd like the rest of society to be "aware" of.
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