Posted 21 May 2011 - 01:29 AM
Not having the right support can be incredibly difficult so keep positive I hope you will find a good caregiver who you can depend on soon and get some permanence back into your routine and lifestyle. Another aspect is that it is obviously hard having different people come in and out of your life and never knowing what to expect from the next person who will step in to fit the role. Are there any friends & family who can help temporarily or can you discuss the effects it is having on you with the agency if there is one?
I don't know if you have individualised funding in the states - it basically means that you can advertise & employ your own suitable caregiver and can be more in charge of communicating with them as to what your routine involves for you personally and the funding side is handled through a support agency who will sort out payments of funding & tax for you. Worth enquiring into maybe - but it does mean you will have to find someone suitable to employ but if the problems that you are having involve non-consistency in care it could be a solution. It is the way we have previously employed caregivers before as we found the level of care provided through an agency insufficient in terms of my husband's health & disability needs (and to be honest they were extremely unreliable, rude & abusive).
Posted 22 May 2011 - 05:28 AM
But seriously...what we are waiting for & NEED are the DETAILS!
*Wheelchairs are made of a special ocular magnetic alloy......they're "eyeball magnets".*
*I USE a wheelchair, that does NOT make ME a wheelchair!*
Posted 27 May 2011 - 07:50 PM
Posted 15 October 2011 - 11:20 AM
Kaydub an incomplete T10 para is my fiance, I showered her in the hospital and helped her with everything to begin with, I love her more than anything so I go above and beyond, strngers such as caregivers have no incentive to go above and beyond. Money is not an incentive because the USA society as a whole does not feel the need to pay caregivers adequatly or allow enough money for disabled human beings quality of life. I'm sorry but when did the word tax become negative? Taxes pay for things you require to live life the way we do such as roads, street lights, schools, the teachers, the list goes on. People do not realise how expensive living wuld be if a private company.companies replaced a government. Roads would all be tolls, street lights would be non existent or in you districts you would pay a fee. Electricity would be a straight market ratemuch higher than the goverment susidised rate now, and if not subsidised goverment officials apply pressure to keep rates lower. Wate, sewerage and beaches, national parks would be gone altogether because private companies want the natural resources under them. your country the USA will become a wasteland and an expensive one at that with people fighting and competing with each other all the time because its so expensive to live now.
If you read the definition for a properly functioning economy, it says there must be a government that oversees, imposes laws and regulations, conducts police work and gives disciplinary actions to law breakers. If you disagree with this, you are blind, the US economy collapsed as a result of an unregulated banking segment which was allowed to run riot. If you disagree with this you are dumb and need to read 'the hungry hungry caterpillar' again.
PAY CAERES WHAT HEY ARE WORTH, THEY TRY HARDER, pay them poorly they wont try hard at all.
So other members are correct in advising to marry a carer lol.
oh and i dont mean its up to you personaly to pay them more, it is up to society and government to realise this is needed.
Posted 17 January 2012 - 11:49 AM
Posted 17 February 2012 - 12:58 AM
The next pca came the first day for orientation and never came back. The one after that would show up (they had a key) and when they found me asleep they would simply sign the paperwork and go home. The next pca came in one day, I was asleep. I woke up and found her stuffing her bag with my soda.
I could go on and on.. I wasnt able to find the reliable help that I needed and ultimately it forced me to go into an assisted living facility in Houston. And honestly they didnt do half of what they got paid to do. It was a nightmare. So Eventually I moved in with my Girlfriend and moved to Maryland.
I am enrolled in a Maryland program called "rare and expensive case management" (REM) The program it'self doesnt cover the level of home support that I need so I was referred to the health department who assed me and refferred me to The Maryland attendant care program. My girlfriend was able to go through the process of getting a Maryland Pca provider number and will be getting paid to provide my care.
Be sure to check out the services yoru state provides. You may very well learn that you can pick someone you know and have them get paid to provide services for you. I know Texas had this option as well.
Good luck to you.
Posted 02 March 2012 - 03:30 PM
Posted 03 March 2012 - 08:47 PM
Short answer, marry one. Problem solved.
Marry? Yikes! Dated, been Good friends w/benefits I've done. Others have adopted Me as an Uncle and even Father they never had. But "Marry" your a Braver Man then I.
Bad, Lousy, Just not worth having back, I've been through plenty! One left in Handcuffs the Friday before New Years Eve for stealing kitchen supplies, 20 minutes into her first day! And I showed her I can see the kitchen on my bedroom TV via wireless camera I bought at http://www.x10.com/homepage.htm and Linksys has one the starts recording at the slightest motion or sound.
There are Good Caring Aides out there. Hang in there until the right one comes along and doesn't want to leave. She will..
Posted 04 March 2012 - 08:49 AM
If my husband were alone he would be cleaned out as they live in. It is bad enough with me being here. We are fortunate because at the moment we have a regular girl who is good but we have a big problem with stealing when she is on her break.
Most of the ' carers' the agency we use are from eastern europe and don't actually live in the U.K. They work for a few weeks and live off the client then fly back to Estonia, Latvia, Slovenia or where ever for a week ...rinse and repeat ...
One thing we have noticed are the changes in the stuff they take. It used to be mainly food and toiletries but now the medical supplies are really taking a hammering as well . The last one who was here for a week took suppositories and KY jelly and a new box of those little straps that hold the leg bag secure. They sell them when they go home as they are expensive there. At the moment we are just about keeping up with it but it is very depressing.
Posted 08 March 2012 - 03:56 AM
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