Butt Flap Surgery Vs. Healing
#1
Posted 26 May 2011 - 11:36 PM
Thanks Jacksie
#2
Posted 27 May 2011 - 12:28 AM
JACKSIE, on 26 May 2011 - 11:36 PM, said:
Thanks Jacksie
#3
Posted 27 May 2011 - 04:37 AM
I have been in bed for 18 months now with Stage 4 ischeal pressure sore. I am a para and my Roho seat cushion died and did the initial damage. Wound was down to bone and as big as the palm of my hand when I went to wound care center. That was November 09. In January, 2010, got massive infection so sent to hospital where I remained for 2 months. In early Feb. I had flap surgery and things looked good - 10 days after surgery, incision opened up and we started wound vac. Sent home with vac in March '10, Medicare discontinued vac in April '11 while we still had 1/2 centimeter to do in depth and about 2 cm. diameter.
In September '10, my doctor thought my wound was doing so good, that I began to get up a few hours a day. In October, wound got a bit bigger but I kept getting up every three days for a few hours. In December, I got some Miracle Mist and began using it with vac hoping to jar the healing to commence. And it did! We saw progress (slow) in early January '11 - but I did go back to full bedrest to heal this thing completely - even though we were only applying Mist when vac was changed and so we kept using that until vac was discontinued by Medicare in April. By then, my doctor and nurses were convinced the Mist had made the difference on progress and doctor even gave us an order to use it.
By time the vac was gone, we began using the Mist 3 times a day and healing picked up so much! As of 24th of this month, the wound is sealed with skin. I am still down to give the skin time to toughen up but expect to be back in wheelchair by mid-June. I know it will be a slow process of getting back up but after 18 months - I'll take it!
Sorry for the long story but wanted you to know a few of the "highlights: of my whole pressure sore thing.
Here is what I have learned from this whole mess: No one warned me that the flap surgery might not hold but a lot of them do not, even if you are down for the 3 weeks my doctor specified; some hold and then break the first time or two that you get up; I do still feel the surgery gave me a start at healing - even when it broke open, the wound was still smaller by half than it was before surgery; vac does work but is slow! but maybe faster than just packing the wound; and on the vac, your nurse makes all the differnce on how it holds (I had good ones); and go buy some Miracle Mist and keep it on hand. I intend to do this and use it whenever a hint of skin problems start.
Good luck to you and I will be praying for your recovery. Hope your road is shorter than mine has been. Keep fighting!
#5
Posted 03 June 2011 - 08:57 PM
#6
Posted 03 June 2011 - 09:11 PM
McRobb, on 27 May 2011 - 04:37 AM, said:
I have been in bed for 18 months now with Stage 4 ischeal pressure sore. I am a para and my Roho seat cushion died and did the initial damage. Wound was down to bone and as big as the palm of my hand when I went to wound care center. That was November 09. In January, 2010, got massive infection so sent to hospital where I remained for 2 months. In early Feb. I had flap surgery and things looked good - 10 days after surgery, incision opened up and we started wound vac. Sent home with vac in March '10, Medicare discontinued vac in April '11 while we still had 1/2 centimeter to do in depth and about 2 cm. diameter.
In September '10, my doctor thought my wound was doing so good, that I began to get up a few hours a day. In October, wound got a bit bigger but I kept getting up every three days for a few hours. In December, I got some Miracle Mist and began using it with vac hoping to jar the healing to commence. And it did! We saw progress (slow) in early January '11 - but I did go back to full bedrest to heal this thing completely - even though we were only applying Mist when vac was changed and so we kept using that until vac was discontinued by Medicare in April. By then, my doctor and nurses were convinced the Mist had made the difference on progress and doctor even gave us an order to use it.
By time the vac was gone, we began using the Mist 3 times a day and healing picked up so much! As of 24th of this month, the wound is sealed with skin. I am still down to give the skin time to toughen up but expect to be back in wheelchair by mid-June. I know it will be a slow process of getting back up but after 18 months - I'll take it!
Sorry for the long story but wanted you to know a few of the "highlights: of my whole pressure sore thing.
Here is what I have learned from this whole mess: No one warned me that the flap surgery might not hold but a lot of them do not, even if you are down for the 3 weeks my doctor specified; some hold and then break the first time or two that you get up; I do still feel the surgery gave me a start at healing - even when it broke open, the wound was still smaller by half than it was before surgery; vac does work but is slow! but maybe faster than just packing the wound; and on the vac, your nurse makes all the differnce on how it holds (I had good ones); and go buy some Miracle Mist and keep it on hand. I intend to do this and use it whenever a hint of skin problems start.
Good luck to you and I will be praying for your recovery. Hope your road is shorter than mine has been. Keep fighting!
Thanks for your input...I needed it.
#7
Posted 03 June 2011 - 09:18 PM
Please take good care of those sores..
God gave us two ends, one to think with, n one to sit on.. Success depends on which one u use.. Heads u win, tails u lose..
#8
Posted 03 June 2011 - 10:11 PM
Arizona1060, on 03 June 2011 - 08:57 PM, said:
#9
Posted 06 June 2011 - 08:44 PM
Terrible Texan, on 03 June 2011 - 10:11 PM, said:
Arizona1060, on 03 June 2011 - 08:57 PM, said:
Thanks for your reply Texan! We found out this weekend that he will be having surgery today to clean the wound and prep him for the flap surgery. The flap surgery will be scheduled sometime in the next week. I appreciate your feedback and advice. I'm sure it's not easy for this life changing transition...but we're definitely going to do our best to be as supportive as we can....I guess my next question....you said to give him time to find "motivation". My fear is he's 21, how much do we "push" or check up on him to ensure he doesn't neglect his body...without furthering his frustrations. He was only home for three months before going back in for the bed sores.....when we talk to him about the protein intake and checking his body he becomes slightly "annoyed", like "he's got it taken care of".....I don't want to add to his frustration but like you said, bed sores are no joke and can be a killer.
I'm sorry to hear you have to get surgery again. Yes, I've read that surgery isn't a "cure all". Everything I've read indicates a long recovery process. We'll just have to make sure we stay on top of it. Again thank you so much for your time....speedy recovery for you.
#10
Posted 07 June 2011 - 01:34 AM
Arizona1060, on 06 June 2011 - 08:44 PM, said:
Terrible Texan, on 03 June 2011 - 10:11 PM, said:
Arizona1060, on 03 June 2011 - 08:57 PM, said:
Thanks for your reply Texan! We found out this weekend that he will be having surgery today to clean the wound and prep him for the flap surgery. The flap surgery will be scheduled sometime in the next week. I appreciate your feedback and advice. I'm sure it's not easy for this life changing transition...but we're definitely going to do our best to be as supportive as we can....I guess my next question....you said to give him time to find "motivation". My fear is he's 21, how much do we "push" or check up on him to ensure he doesn't neglect his body...without furthering his frustrations. He was only home for three months before going back in for the bed sores.....when we talk to him about the protein intake and checking his body he becomes slightly "annoyed", like "he's got it taken care of".....I don't want to add to his frustration but like you said, bed sores are no joke and can be a killer.
I'm sorry to hear you have to get surgery again. Yes, I've read that surgery isn't a "cure all". Everything I've read indicates a long recovery process. We'll just have to make sure we stay on top of it. Again thank you so much for your time....speedy recovery for you.
dont take anything personal if he seems frustrated w/ u, he's just learning to accept his new body. i was angry for a long time because of what i've done to myself.
#11
Posted 07 June 2011 - 04:52 PM
Terrible Texan, on 07 June 2011 - 01:34 AM, said:
Arizona1060, on 06 June 2011 - 08:44 PM, said:
Terrible Texan, on 03 June 2011 - 10:11 PM, said:
Arizona1060, on 03 June 2011 - 08:57 PM, said:
Thanks for your reply Texan! We found out this weekend that he will be having surgery today to clean the wound and prep him for the flap surgery. The flap surgery will be scheduled sometime in the next week. I appreciate your feedback and advice. I'm sure it's not easy for this life changing transition...but we're definitely going to do our best to be as supportive as we can....I guess my next question....you said to give him time to find "motivation". My fear is he's 21, how much do we "push" or check up on him to ensure he doesn't neglect his body...without furthering his frustrations. He was only home for three months before going back in for the bed sores.....when we talk to him about the protein intake and checking his body he becomes slightly "annoyed", like "he's got it taken care of".....I don't want to add to his frustration but like you said, bed sores are no joke and can be a killer.
I'm sorry to hear you have to get surgery again. Yes, I've read that surgery isn't a "cure all". Everything I've read indicates a long recovery process. We'll just have to make sure we stay on top of it. Again thank you so much for your time....speedy recovery for you.
dont take anything personal if he seems frustrated w/ u, he's just learning to accept his new body. i was angry for a long time because of what i've done to myself.
#12
Posted 07 June 2011 - 05:09 PM
#13
Posted 16 June 2011 - 09:21 PM
#14
Posted 16 June 2011 - 10:10 PM
TampaTC, on 16 June 2011 - 09:21 PM, said:
I can tell you that the first thing they asked me when I went to the Wound Care Clinic is if I smoked. I have never been a smoker, so that was not an issue for me but the nurses there told me that that is one of the worst things you can do for any healing. Also asked me if I drank and I don't do that either but they said that was another no-no when it comes to wound healing.
I personally think as you get older, things just do not heal quickly. But for most of us, know matter what our age and physical condition, being paralyzed seems to be the the problem.
I wish you all well.
#15
Posted 20 June 2011 - 03:06 AM
Also, I wanted to stress the importance of increasing protein intake. The advice Arizona got is correct - you need over 100g of protein a day when you have an open wound. You could be doing everything else right, and if you don't get enough protein, the wound won't heal. It is hard to get this through food, but 5 chicken breasts is 100g. Milk, fish, peanut butter, etc. Good luck with your stepson Arizona... that is tough
I wanted to also mention TENS as a modality to help heal wounds. It can be done at home, and 3 sessions of 30 minutes is the most effective. We have seen wonderful results using it. I can give set up instructions to anyone who wants them
Hope that helps a bit. Skin issues are always a tough problems.
#16
Posted 21 July 2011 - 03:50 PM
#18
Posted 18 August 2011 - 01:53 PM
#19
Posted 20 May 2012 - 04:36 PM
my question is even though my injury is complete I suffer with allot of pain in my lower back and but, I have done all the excercises and stretches
any other suggestions, con
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