8 replies to this topic

[benok]

Hi everyone. I had a shot of botox of early last year of March 2010. I was injected with Dysport 500 (ml?) vial only for a hyperextended left leg. It is hyper extended to the point of what they call recurvatum. I am not sure with the term.

The muscle relaxed considerably for 3 to 4 months until it wore of. My doctor advised me to wait for some time to get another shot. The medicine is expensive here in the Philippines. I think I am ready for another injection now. How often do you get botox injections? My neurologist is discouraging me because it can destroy the nerves. I get the approval of my physiatrist for the injections. Any advise will be appreciated.

Thanks to all.

[pinkcloud]

Really? Destroy nerves? Hey I didnt know this.

I'd have it again anytime....its worn off now and dont I know it.

The injections sting and burn (the fluid does anyway - or is the muscles spasming to their lifes content)

I woke up in the night screaming in pain and feeling like I had been poisoned to death, a few days later, I felt great....it started to work straight away after a week or so.

Money, well you can get this anytime....would i be able to afford it - no way. I dont know when i can have it again, but i'm waiting for urgent tests so think this is why i have not heard yet..a massage is great i replacement but dont last long at all sadly :-(

if you dont get it again please do tell me how to cope well, i've not mastered it yet and i think they may ban it in the nhs soon - too expensive...all the best

[benok]

hi pink cloud, hopefully others could clarify the portion it destroy the nerves. anyhow, just like you, i did feel relaxed after taking the shots and i could bend the hams when i do not wear my kafo

[ebeth]

Hi
I've been getting Botox injections every 6 months for the last 4 or 5 years. At first the Botox lasted only 5 months but now it doesn't wear off at all before I get more injections. Botox is a very good thing in my opinion.

[benok]

hi ebeth, do you wear any braces? how is your ambulation?

[ebeth]

My injury is complete so I'm in a wheelchair full time - no use of my legs.

[pinkcloud]

hey ebeth, this sure sounds real promising news can you imagine botox working like this? oooooo its so worth going thorough the wear off stage we go thorough. I love the site, so much promising news.


I hope you can afford to keep paying. I cant work so it wont be an option for me - nhs cuts means pain managements been hit the hardest first.So i'll just enjoy this relief i get.

I wonder if anyone can tell us what lifes like after having to stop botox. Apparently if ladies stop it for cosmetic reasons their face goes ultra wrinkly - is that because the muscles work even harder? That thought does scare me.The pain of mega spasm
this is unbearable as it is

i am now on baclofen and clorazepam so hope this will aid the botox - are you both on these meds too and does it aid the botox? It hasnt for me yet I hope it will next time

[benok]

hi pink, i take baclofen, clonazepam and lyrica for my spastic left leg. Another suggestion to lessen the pain is to tire it with exercise and stretching, at least it lasts for a n hour or two before it tightens up again and again

[barbara9999]

I am going for my third botox injection next week. It lasts for me a little more than 3 months. It is approved by Medicare in the US for 4 times a year so Medicare plus priv insurance pays for me. I think it runs about $500 for treatment in the US and $350 per injection (100 cc) in India. I take it for my arm and three fingers which grow very stiff, vibrate and are extremely irritating. I hate to think of life without it now that I can see the difference. However from my reading, it seems that it does become less effective in the same muscles after use and I remember my dr. trying to use different muscles each time when he injects it into my arm. It has something to do with the body/nerves developing antibodies and then it will not work well in exactly the same place. I'll ask my dr. next week when I see him. When he gives me the injections (and it takes very little of the 100 cc vial) I am hooked up to a machine that somehow pinpoints the muscles that he wants to aim for. Its complicated and I think giving this kind of injection is highly specialized because it is a poison.