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The list below is a non-exhaustive list of "unproven spinal cord injury therapies". We recommend against undertaking in any of the listed unproven therapies as they do not adhere to scientific best practices and therefore patient safety and well-being.
However, it should be noted that there is a fine line that divides unproven therapies that follow scientific best practices and those that do not. In order to ensure that scientific best practices have been adhered to, it is important to consult any scientific publications that are available before enrolling.
The information below has been compiled by The European Spinal Cord Injury Federation, and the latest news on the information below can be found on their website.
http://www.escif.org/
Contact Details
The European Spinal Cord Injury Federation
c/o Swiss Paraplegic Association
Kantonstrasse 40
CH-6207 Nottwil
Switzerland
Email: info@escif.org
Telephone: 0041 41 939 5403
Fax: 0041 41 939 5439
________________________________________________________________________________________
Beike Biotechnology Company
Dr. Sean Hu
Chairman
Beike Biotech Co., Ltd.
Shenzhen Hi-Tech Industrial Park
861 3823501818
www.beikebiotech.com
Type of therapy: Umbilical Cord Autologous Stems Cells & Intrathecal Bone Marrow Autologous Stem Cells.
Patients are recruited via http://www.stemcellschina.com where anecdotal testimonials are published. However, there is no scientific efficacy data published for their Spinal Cord Injury patients.
________________________________________________________________________________________
Beijing Tiantan Puhua Hospital
12 Tiantan Nanli
Beijing, 100050
People's Republic of China
Tel: 86-10-67035566
Fax: 86-10-67061799
E-mail : puhuachina@gmail.com
Web : www.puhuachina.com
Type of therapy: Autologous Bone Marrow Stem Cells
________________________________________________________________________________________
Dr. Hongyun Huang, M.D.
Xishan hospital
Neurological Disorder Research & Treatment Center of Beijing Xi Shan Hospital,
Shi jing shan District, Beijing, 100041, China
Fax: 0086-10-5162-5950
Tel: 0086-10-8896-5507
E-mail: laruku_c@yahoo.com.cn
E-mail: hongyun@mailcity.com
Type of therapy: Olfactory Ensheathing Cells (OEC) and Schwann Cells
A double blind randomized clinical trial was performed in 2008-2009 although no results have been published as yet.
An independent report of the therapy was performed by the scientific board of Wings For Life: This can be seen here.
________________________________________________________________________________________
Dr. Carlos Lima
Hospital Egas Moniz
Department of Neurology
Rua da Junqueira 126
1300-Lisboa
PORTUGAL
Phone number- 351213650000
Fax number- 351213622091
E-mail: crlima@clix.pt
Type of therapy: Olfactory Mucosa Autografts
Dr Lima made the following publication in Sept 2009.
The scientific advisory board of Wings For Life published the following report about the procedure. See here:
The procedure is proven to be safe - which represents significant progress for treating SCI. However, the efficacy is not yet proven.
________________________________________________________________________________________
Medra Inc
Administrative Office
Toll Free: (800) 386-9121
Direct: (310) 455-5300
Fax: (310) 455-5318
Email: medrainc@medra.com
Type of therapy: Fetal Stem Cell Treatment.
Medra has offices and laboratories in California U.S.A., Georgia (The Former Soviet Republic), and Germany.
Medra was founded and is lead by Dr. William Rader, who serves as Medra’s medical director and chief scientist.
BBC Panorama Investigation: http://news.bbc.co.u...000/8040872.stm
The Shady Side of Embryonic Stem Cell Therapy
________________________________________________________________________________________
Medistem Inc/ Stem Cell Institute - Panama City
Dr Thomas Ichim
Tel: +1-858-349-3617
Tel: +1-954-636-3390
Web: http://www.cellmedicine.com/
Email: thomas.ichim@medisteminc.com
Type of therapy: Autologous Bone Marrow Stem Cells and Human Umbilical Cord Blood.
Cells are administered intravenously and intraethically. A course of 16 injections over the a 4-week period is standard.
Anecdotal patient testimonials are available at http://www.cellmedic...nials/?catid=14
________________________________________________________________________________________
NeuroVita
Professor Andrey S. Brukhovetsky
Clinical Director of NeuroVita
Building A Kashirskoye Avenue 23
Moscow
Russia
Phone (095) 324-9339, 324-9389
fax: 324-9350
e-mail: info@neurovita.ru
web: http://www.neurovita.ru
Type of therapy: Autologous Adult Stem Cells
________________________________________________________________________________________
Nichi-In Centre for Regenerative Medicine
Global headquarters:
3-8 Wakamatsu, Kofu 400-0866, Japan
Fax:+81-55-235-7569
Email : info@ncrm.org
Chennai (India) centre :
Vijaya Health Centre Premises,
175 NSK Salai, Vadapalani 600026, Chennai, TN, India
Tel: 044-24816743, 044-42321322
Fax: 044-24732186
Web site : www.ncrm.org
Type of therapy: Autologous Bone Marrow Stem Cells
Only anecdotal information is available in patient testimonials.
________________________________________________________________________________________
Nu Tech Mediworld
487, Hardev Puri,
Near Father Agnel School,
Gautam Nagar, New Delhi-110049
Telfax : 91 - 11 -26565548, 26560089
E-mail : geetashroff@hotmail.com
www.nutechmediworld.net
Type of therapy: Embryonic Stem Cells
Only anecdotal testimonials available from a handful of patients. No scientific data is published by NuTech Mediworld.
________________________________________________________________________________________
Spectrum Cell Clinic
Dr Sunil Waghmare
Om Sai Hospital
Shree Sai Towers
Sodawala Lane
Borivli(West)
Mumbai
Tel: 022-28959371
Cell No: 09819445690
Email: spectrumcellclinic@gmail.com
http://www.spectrumcellclinic.com
Type of therapy: Autologous Bone Marrow Stem Cells using multiple route techniques (anterior spinal artery, intrathecal and intra-lesional).
Only one anecdotal testimonial to date. No scientific data for efficacy.
________________________________________________________________________________________
TheraVitae Co., Ltd.
36/72 PS Tower, 21st Floor, Sukhumvit 21 Rd.,
Klongtoey-Nua, Wattana,
Bangkok, Thailand 10110
Call Center : +(66) 2 664 4395-6
Tel: +(66) 2 664 4290-3
Fax: +(66) 2 664 4289
Theravitae Ltd. Israel
7 Pinhas Sapir Street
P.O. Box 4049,
Ness Ziona 74140,
Israel
Tel : +972-8-9409170
Fax : +972-8-9409167
E-Mail : enquiries@theravitae.com
Web site : www.theravitae.com
Type of therapy: Autologous Adult Stem Cells
________________________________________________________________________________________
Vigendo
16 Jalan Kilang Timor
#02-06 Redhill Forum
Singapore 159308
Web: www.vigendo.com
Type of therapy: Umbilical Cord Blood derived Stem Cells
Cells are administered by one of a combination of a) transplanting directly into the site of injury
intravenous injection c) intraethically via lumbar puncture or d) directly into the brain via a stereotactic brain injection.Anecdotal data available showing 98 patients out of 136 have shown significant results using the CT-guided stem cell transplant.
________________________________________________________________________________________
XCell-Center (Closed)
Institute for Regenerative Medicine
Custodisstrasse 3-17
50679 Cologne (Köln-Deutz)
Germany
Director : Dr. Cornelis H. Kleinbloesem
Phone: (0049) 0221 - 8025095
Fax: (0049) 0221 - 8025096
E-mail : info@xcell-center.de
Type of therapy: Intrathecal Bone Marrow Autologous Stem Cells.
Current CEO is former CEO of Cells4Health. Cells4Health have a record of stem cell therapies administered in Turkey and Azerbijan which have resulted in a loss of function.
Although the XCELL wesbsite and brochures claim efficacy of their treatment for SCI, no data is made available to the scientific community for peer review.
A clinical trial was planned to take place as of 2011 to underpin the claimed efficacy but is now cancelled (update April 2011).
Update MAY 2011: The X-CELL center is shut down after death of baby.
For more info see http://www.telegraph...th-of-baby.html
________________________________________________________________________________________
Dr. Adeeb Al-Zoubi
Tel: +962795337575
E-mail: adeebalzoubi@stemcellsarabia.net
www.stemcellsarabia.net
Type of therapy: Autologous Adult Stem Cells
Transplanted purified stem cells into eight patients (6 males and 2 females) with complete thoracic level injuries. The stem cells were isolated from the blood of the patient (i.e., autologous).
There is currently no scientific data showing efficacy of the treatment.
________________________________________________________________________________________
Other known unproven therapies being offered for Spinal Cord Injury include:
Dr Fabio Solano (Costa Rica)
Dr Mahmoud El-Sherbini (Cairo, Egypt)
Dr Hooshang Saberi (Tehran, Iran)
Zandcell (Halmstad, Sweden)
Institute of Kidney Diseases and Research Centre (Ahmedabad, India)
Stem Cell Therapy International Inc. (Tampa Florida USA & Ukraine)
Prasat Neurological Institute (Bangkok, Thailand)
Hospital Luis Vernaza (Ecuador)
Dr Rabinovich (Russia)
If you do decide to undertake any of the therapies list above, we strongly recommend that you inform your neurologist, SCI doctor or physiotherapist in order to arrange an appraisal of your current functionality. This will allow them to measure any change following the intervention. In this way the SCI community will be able to gather some information about the therapies that the clinics and organisations offering them are presently unwilling to share.
Sources:
European Spinal Cord Injury Federation
The Telegraph
Wings for Life
National Center for Biotechnology Information
Edited by Apparelyzed, 16 June 2011 - 03:09 PM.
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