HI I am t6 para. I am in bed right now after I went through my second flap surgery. It has been 5 1/2 weeks on a clinitron bed. So far everything is going really well. I just started PT for range of motion in my legs. My previous flao lasted 3 years before I got MRSA and got a puss pocket that when drained created a hole in my bottom. I read a bunch on here about people with sores and long periods of bed rest. Also a lot of people having the same problems over and over. I am wondering if there are any good stories out there about people who heal wounds either through surgery or without that have been able to live normal lives afterwards. I am really worried that I am never going to be able to beat this wound battle. Also any advice on what to do to not get any wounds again. I am 26 and have a lot of life to live and don't want to live that life in a bed.
Thanks for all your help
0
Any Good News Out There?
Started by
dlury24
, Jun 28 2011 11:03 PM
7 replies to this topic
Top#2
goose
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Posted 29 June 2011 - 03:50 AM
Hi dlury24
DO NOT RUSH the healing process. I've been very fortunate to have never had a skin problem in 24 years but I listen to my body. If something is hurting, I wiggle around to relieve the pressure. I can't sit still so maybe that has helped me.
From reading about other people, it always seems like they got tired of being in bed and rushed it just alittle too soon. I'm sure that would be tempting to do but before you jump the gun just remember what you've just been through. I'd rather suffer a few extra days than to do it all over again. I know... you're probably saying easier said than done.
In the future,keep a close eye on any problem spot or area. Prevention is key!
Good luck and I hope this is the LAST time you have this problem.
Also, keep a check on your cushion. Getting your butt mapped for pressure points is always a smart thing to do.
DO NOT RUSH the healing process. I've been very fortunate to have never had a skin problem in 24 years but I listen to my body. If something is hurting, I wiggle around to relieve the pressure. I can't sit still so maybe that has helped me.
From reading about other people, it always seems like they got tired of being in bed and rushed it just alittle too soon. I'm sure that would be tempting to do but before you jump the gun just remember what you've just been through. I'd rather suffer a few extra days than to do it all over again. I know... you're probably saying easier said than done.
In the future,keep a close eye on any problem spot or area. Prevention is key!
Good luck and I hope this is the LAST time you have this problem.
Also, keep a check on your cushion. Getting your butt mapped for pressure points is always a smart thing to do.
Edited by goose, 29 June 2011 - 03:51 AM.
#3
nomis
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Posted 29 June 2011 - 05:43 AM
Like goose says, don't rush the healing process. Be patient and sure.
The time put in now will reap benefits later. Use the fear that it might happen again to ensure you always do everything right - don't take risks...even once. That means forever getting off your butt at regular intervals. Be very kind to your butt.
Done properly it may never break down again and these bad days will fade to a distant memory.
The time put in now will reap benefits later. Use the fear that it might happen again to ensure you always do everything right - don't take risks...even once. That means forever getting off your butt at regular intervals. Be very kind to your butt.
Done properly it may never break down again and these bad days will fade to a distant memory.
"It's the notion that there is no perfection ~ that this is a broken world and we live with broken hearts and broken lives but still that is no alibi for anything. On the contrary, you have to stand up and say hallelujah under those circumstances. " - Leonard Cohen
#4
Tetracyclone
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Posted 29 June 2011 - 01:37 PM
A few years back I read in New Mobility about a wheelchair racer, world class, who was laid low by a pressure sore. He healed up (2 years, I think) and continued racing.
Look! It's a snail! It's a sloth! Able to creep short distances before lunch!
#6
StillFingers
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Posted 29 June 2011 - 04:06 PM
Hey dlury24,
Like others have said take things slow, once you have healed be diligent with your raises/shifting positions for your arse, legs and feet. With stage 4 wounds, the tissue you regrow is usually granulated tissue; scar tissue. This new tissue is more susceptible to re-injury so keep watching (and/or your carers) for redness and if you find some, do more weight shifts and stay off the area as much as possible.
In March of 2008, due to several health issues and a large fold in my pants, I developed a stage 4 wound on my left Ishim, several new wounds appeared before I could get to outpatient wound care, including another stage 4 on my right Ishim; 2 months in hospital. While these wounds were healing, my blood count dropped rapidly and I was re-admitted to hospital. Unfortunately, due to a long trip in an ambulance and being ignored in emergency, I developed two additional wounds on each butt cheek; four major wounds to deal with, all fist sized. After two surgeries, due to two of the wounds tunneling...those clinitron beds are amazing...and a bleeding ulcer found, I was released from hospital in late August of 2008; their parting gift to me was MRSA.
The next fifteen months were spent in bed, wound-vac strapped to me, then daily bandaging and more bed rest, in late 2010 I began (slowly) getting back up in my chair. It's now late June 2011 and near all of the old wounds are healed, I'm back up in my chair for most or the day, but still adjusting; 6-10 hours is about all I can manage at the moment, but things are getting better every day.
I went near thirty years doing this SCI dance before getting any serious wounds, kept an eye on things before 2008, but now I'm even more careful about any redness on me arse, legs or feet. Four walls close in fast, if you can avoid a prolonged stay in hell, it's greatly advised to stay woundless.
Stay strong, heal well...live in the moment...live life to it's fullest!
Jerry
PS. In October of 2008 I found Apparelyzed...thank you all for helping me keep sane, you are the absolute best!
Like others have said take things slow, once you have healed be diligent with your raises/shifting positions for your arse, legs and feet. With stage 4 wounds, the tissue you regrow is usually granulated tissue; scar tissue. This new tissue is more susceptible to re-injury so keep watching (and/or your carers) for redness and if you find some, do more weight shifts and stay off the area as much as possible.
In March of 2008, due to several health issues and a large fold in my pants, I developed a stage 4 wound on my left Ishim, several new wounds appeared before I could get to outpatient wound care, including another stage 4 on my right Ishim; 2 months in hospital. While these wounds were healing, my blood count dropped rapidly and I was re-admitted to hospital. Unfortunately, due to a long trip in an ambulance and being ignored in emergency, I developed two additional wounds on each butt cheek; four major wounds to deal with, all fist sized. After two surgeries, due to two of the wounds tunneling...those clinitron beds are amazing...and a bleeding ulcer found, I was released from hospital in late August of 2008; their parting gift to me was MRSA.
The next fifteen months were spent in bed, wound-vac strapped to me, then daily bandaging and more bed rest, in late 2010 I began (slowly) getting back up in my chair. It's now late June 2011 and near all of the old wounds are healed, I'm back up in my chair for most or the day, but still adjusting; 6-10 hours is about all I can manage at the moment, but things are getting better every day.
I went near thirty years doing this SCI dance before getting any serious wounds, kept an eye on things before 2008, but now I'm even more careful about any redness on me arse, legs or feet. Four walls close in fast, if you can avoid a prolonged stay in hell, it's greatly advised to stay woundless.
Stay strong, heal well...live in the moment...live life to it's fullest!
Jerry
PS. In October of 2008 I found Apparelyzed...thank you all for helping me keep sane, you are the absolute best!
Edited by StillFingers, 29 June 2011 - 04:19 PM.
Only after we have lost everything, are we free to do anything.
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#7
dlury24
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Posted 30 June 2011 - 04:27 AM
Thanks again. I'm looking into a isch dish cushion. I'm using a high profile ROHO now. I'm hoping this cushion is better.
Thanks again. I'm looking into a isch dish cushion. I'm using a high profile ROHO now. I'm hoping this cushion is better.
Thanks again. I'm looking into a isch dish cushion. I'm using a high profile ROHO now. I'm hoping this cushion is better.
#8
McRobb
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Posted 01 July 2011 - 01:28 AM
StillFingers, on 29 June 2011 - 04:06 PM, said:
Hey dlury24,
Like others have said take things slow, once you have healed be diligent with your raises/shifting positions for your arse, legs and feet. With stage 4 wounds, the tissue you regrow is usually granulated tissue; scar tissue. This new tissue is more susceptible to re-injury so keep watching (and/or your carers) for redness and if you find some, do more weight shifts and stay off the area as much as possible.
In March of 2008, due to several health issues and a large fold in my pants, I developed a stage 4 wound on my left Ishim, several new wounds appeared before I could get to outpatient wound care, including another stage 4 on my right Ishim; 2 months in hospital. While these wounds were healing, my blood count dropped rapidly and I was re-admitted to hospital. Unfortunately, due to a long trip in an ambulance and being ignored in emergency, I developed two additional wounds on each butt cheek; four major wounds to deal with, all fist sized. After two surgeries, due to two of the wounds tunneling...those clinitron beds are amazing...and a bleeding ulcer found, I was released from hospital in late August of 2008; their parting gift to me was MRSA.
The next fifteen months were spent in bed, wound-vac strapped to me, then daily bandaging and more bed rest, in late 2010 I began (slowly) getting back up in my chair. It's now late June 2011 and near all of the old wounds are healed, I'm back up in my chair for most or the day, but still adjusting; 6-10 hours is about all I can manage at the moment, but things are getting better every day.
I went near thirty years doing this SCI dance before getting any serious wounds, kept an eye on things before 2008, but now I'm even more careful about any redness on me arse, legs or feet. Four walls close in fast, if you can avoid a prolonged stay in hell, it's greatly advised to stay woundless.
Stay strong, heal well...live in the moment...live life to it's fullest!
Jerry
PS. In October of 2008 I found Apparelyzed...thank you all for helping me keep sane, you are the absolute best!
Like others have said take things slow, once you have healed be diligent with your raises/shifting positions for your arse, legs and feet. With stage 4 wounds, the tissue you regrow is usually granulated tissue; scar tissue. This new tissue is more susceptible to re-injury so keep watching (and/or your carers) for redness and if you find some, do more weight shifts and stay off the area as much as possible.
In March of 2008, due to several health issues and a large fold in my pants, I developed a stage 4 wound on my left Ishim, several new wounds appeared before I could get to outpatient wound care, including another stage 4 on my right Ishim; 2 months in hospital. While these wounds were healing, my blood count dropped rapidly and I was re-admitted to hospital. Unfortunately, due to a long trip in an ambulance and being ignored in emergency, I developed two additional wounds on each butt cheek; four major wounds to deal with, all fist sized. After two surgeries, due to two of the wounds tunneling...those clinitron beds are amazing...and a bleeding ulcer found, I was released from hospital in late August of 2008; their parting gift to me was MRSA.
The next fifteen months were spent in bed, wound-vac strapped to me, then daily bandaging and more bed rest, in late 2010 I began (slowly) getting back up in my chair. It's now late June 2011 and near all of the old wounds are healed, I'm back up in my chair for most or the day, but still adjusting; 6-10 hours is about all I can manage at the moment, but things are getting better every day.
I went near thirty years doing this SCI dance before getting any serious wounds, kept an eye on things before 2008, but now I'm even more careful about any redness on me arse, legs or feet. Four walls close in fast, if you can avoid a prolonged stay in hell, it's greatly advised to stay woundless.
Stay strong, heal well...live in the moment...live life to it's fullest!
Jerry
PS. In October of 2008 I found Apparelyzed...thank you all for helping me keep sane, you are the absolute best!
But I am really interested in your schedule for getting back up into your chair. I have just started getting up for 45 minutes per day after 18 months in bed with Stage 4 ischeal sore. No one here in my area knows exactly how fast to let me get back up and sounds like you have been working on this for a while. Can you share sort of a schedule of how long you got up and when?
So far, I am doing 45 min each morning and will go to twice a day after a week of doing the once per day. Twice of 45 minutes a day does not lengthen out the time. Any help appreciated.
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