23 replies to this topic

[sci1998]

Quote

Young, a Rutgers University neuroscientist, began the Web site in July 2001. He spends up to eight hours a day administering it, often signing off at 3 a.m., he says. He is both scientist and ombudsman to its 10,000 registered members.

A huge area of interest is cellular therapies abroad, particularly procedures in Portugal and China. They remain controversial because their results are largely unpublished. The therapies are costly, ranging from $20,000 to $50,000, and they hold risks. For now, Young's site is one of the sources patients turn to for updates on how patients fare after the surgery.

Young, 55, born in Hong Kong and raised there and in Japan, was the late actor Christopher Reeve's doctor. He helped lead a landmark 1990 study that became the standard of care for the immediate treatment of spinal cord injuries. It found that high-doses of methylprednisolone, a steroid drug, saved about 20 percent of motor and sensory function when administered soon after a spinal cord injury.

The study "was the beginning of my radicalization" because it took so long to convince medical centers to stock and administer the drug, Young says. Their reaction was like "cold water being thrown on my face."

More recently, Young has been involved with a new drug, Fampridine-SR, or 4AP (which stands for 4-aminopyridine). It "helps boost the firing of neurons" after a spinal cord injury, he says. The drug, made by Acorda Therapeutics, plugs potassium channels that leak into nearby nerve cells, causing them to short-circuit. Closing the channels lets the nerve cells transmit impulses again. Young is on the company's board of directors.

That drug in bold is a pure waste of money. And was only approved by an overide of fda reviewers- Do you want more of this? Do you like hearing MP does so much good when it is no longer thought to work?

[sci1998]

Quote

Fate seems to have designed Young to become a medical ambassador. Born in 1950 in Hong Kong, the son of an innovative Chinese businessman who built the first mall in Hong Kong, he grew up in Japan and attended the American School with the kids of international businessmen and diplomats. He decided to be a doctor when he was eight. But his father expected his sons to come work for him. "Why do you want to be a doctor?" he said. "If you want to help people, come work for me and you can hire ten doctors."

Dogged but never confrontational, Young stood his ground. Soon his father took him aside and told him he was too honest looking to be a proper businessman. "People can read your face. You can do what you want." He ended up at Reed College in Oregon right at the peak of the 1960s, worlds away from the rigid culture of his childhood. By the time he arrived at the Woods Hole Marine Biological Laboratory to do research for his Ph.D. in biophysics, he was an unusual character. "There was a total guilelessness," remembers his wife, Lily, who was there to work on a Ph.D. in environmental microbiology. "We were all scientists, everybody was doing their thing, everybody was hoping they would be doing something that hadn't been done before. Not that many people were that communicative. He'd talk your ear off. He's still that way. And it's not just chatter. It's You've got to be as interested in this subject as I am."

Read more: http://www.esquire.c...1#ixzz1SZWcISpi http://www.esquire.c...YOUNGLAHN_238_1

Tell me where did enquire learn this? It's just Young feeding information to them to make him look caring, and I am tired about this and thank Apparalyzed for a place where researchers can't buy the media. And we can offer our humble opinion. I mean when he say's he's so dam honest isn't that like if it's to good to be true it isn't? Rather than use all these tactics for us to support him all he had to do was come up with a treatment that works.

Edited by sci1998, 19 July 2011 - 05:28 PM.

[sci1998]

There's more and let it be known this MP is no longer a standard of care

Quote

A year and a half later, he got an idea. He knew that swelling caused a lot of the damage in spinal-cord injuries and that a steroid called methylprednisolone was effective in treating swelling of the brain. A team of researchers was already trying low doses on spinal-cord patients. But what if you tried a massive dose?

He experimented on animals and the results were spectacular. One test of nerve response went from flat to normal in twenty-four hours.

It took another five years to get the National Institutes of Health to fund a real clinical test. Experts said his patients would die of gastric ulcers or falling blood pressure or immune failure.

It took another five years to get from phase one to the final double-blind human study. But again, the results were thrilling. After testing 498 spinal-cord-injury patients, those who received a high dose of MP recovered more than twice the mobility of those who received a placebo. His results were published in 1990 in The New England Journal of Medicine and even made the front page of The New York Times.

At that point, Young figured his job was done. He had done all the right things, hit all the right marks — gotten NIH funding, followed all the rigorous protocols, published in the best scientific journals. Now he could go back to neurosurgery.

But a year went by and he found out that only half of the people with freshly injured spines were actually getting MP — and that was the big eye-opener. "I really thought everybody would embrace it. It's a safe drug, and it's cheap. It wasn't a $20,000 drug with 10 percent mortality — it was zero mortality and $100. Who wouldn't take it?"

Read more: http://www.esquire.c...1#ixzz1SZXyEmrd

Spectacular and now it isn't a standard of care!!!!!!!!!!!!


And to those that want to kiss the ground Young walks on go ahead just stop trying to give excuses and think I should follow
Have we been fooled by a media savy researcher?

[pinkcloud]

[quote name='sci1998' timestamp='1311095979' post='241894']

Hi sci1998

Bizarre enough i was looking into something, and did something i rarely do...i googled. A rare sci thing.

and up come curecare or carecure..and here was this dr wise young.

i see why some members here are passionate about him.....and defend him so greatly, its like hes some i dont know, celebrity pop star
Your description above helped me see why. I'm glad theres help like this for the desperate and scared, some people just need these kind of sites to get them thorough. I do respect his dedication to help people, I actually respect more a lady i know whom as a pensioner helps all the elderly people up the road making them warm dinners and saying nite to them - shes as poor as can be, has family herself and has saved many a life just by providing comfort and care. Shame others dont appreciate her so much......

I however, switched it off this forum. Not for me, just not me cuppa tea. I just dont understand how he could be so confident about stuff like this he wrote about and didnt actually seem to give an answer and there was no follow up advice.

And decided to stick to me trusted charity and here. There may be next to nothing about it...yet its a lot more trusted and reliable than what was written there.....I've never once gone wrong with these two sites and the people whom write on here.

[Millard]

Hi sci1998,

My thought on those articles; they about as factual and slanted as though they were written by Larry Flynt and Hustler Magazine. Another thought is if you don't like Dr. Wise Young or CareCure, then stay away from it. Why read it and complain? The website is not about Famridine or stem cell therapy. About 99.9% of the posting is from people like us...SCI's. Simon, here at Apparelyzed, has a very helpful board. I would feel the same way if someone at CareCare wanted to condemn him because of some article that was not written in The New England Journal of Medicine but Esquire?

That's all I have to say.

[chrisarnold6]

Millard, on 19 July 2011 - 09:17 PM, said:

Hi sci1998,

My thought on those articles; they about as factual and slanted as though they were written by Larry Flynt and Hustler Magazine. Another thought is if you don't like Dr. Wise Young or CareCure, then stay away from it. Why read it and complain? The website is not about Famridine or stem cell therapy. About 99.9% of the posting is from people like us...SCI's. Simon, here at Apparelyzed, has a very helpful board. I would feel the same way if someone at CareCare wanted to condemn him because of some article that was not written in The New England Journal of Medicine but Esquire?

That's all I have to say.

Well said Millard. There has been so much "knife in the back" for Wise Young here, but no one is compelled to accept what he says. I believe that he is not just in it for himself.

[sci1998]

chrisarnold6, on 20 July 2011 - 11:12 AM, said:

Millard, on 19 July 2011 - 09:17 PM, said:

Hi sci1998,

My thought on those articles; they about as factual and slanted as though they were written by Larry Flynt and Hustler Magazine. Another thought is if you don't like Dr. Wise Young or CareCure, then stay away from it. Why read it and complain? The website is not about Famridine or stem cell therapy. About 99.9% of the posting is from people like us...SCI's. Simon, here at Apparelyzed, has a very helpful board. I would feel the same way if someone at CareCare wanted to condemn him because of some article that was not written in The New England Journal of Medicine but Esquire?

That's all I have to say.

Well said Millard. There has been so much "knife in the back" for Wise Young here, but no one is compelled to accept what he says. I believe that he is not just in it for himself.

Are you saying the story on Wise in Esquire is as though it was written by Larry Flint? Wrong, they were given all the information hand fed by Wise, how else would a writter know his father said his face was honest? And btw, on CC they do complain about this web site. They say the people here are lazy butts and don't advocate for a cure and they call it a site for happy crips.

[love&hate]

sci1998, on 20 July 2011 - 09:36 PM, said:

chrisarnold6, on 20 July 2011 - 11:12 AM, said:

Millard, on 19 July 2011 - 09:17 PM, said:

Hi sci1998,

My thought on those articles; they about as factual and slanted as though they were written by Larry Flynt and Hustler Magazine. Another thought is if you don't like Dr. Wise Young or CareCure, then stay away from it. Why read it and complain? The website is not about Famridine or stem cell therapy. About 99.9% of the posting is from people like us...SCI's. Simon, here at Apparelyzed, has a very helpful board. I would feel the same way if someone at CareCare wanted to condemn him because of some article that was not written in The New England Journal of Medicine but Esquire?

That's all I have to say.

Well said Millard. There has been so much "knife in the back" for Wise Young here, but no one is compelled to accept what he says. I believe that he is not just in it for himself.

Are you saying the story on Wise in Esquire is as though it was written by Larry Flint? Wrong, they were given all the information hand fed by Wise, how else would a writter know his father said his face was honest? And btw, on CC they do complain about this web site. They say the people here are lazy butts and don't advocate for a cure and they call it a site for happy crips.

What are you trying to do here? Are you serious?

Its such a dumb thing to say. I cant believe you. Just because you saw post from some dbag oes not mean the whole forum shares his views. Stop obsessing.

[sh1wn]

We get it, you don't like DR. Young.
Quit trolling.

[chrisarnold6]

sh1wn, on 21 July 2011 - 12:18 AM, said:

We get it, you don't like DR. Young.
Quit trolling.

Hear! Hear!

[sci1998]

Chris here are your words on the site across the pond

Quote

An aside concerns reference to Apparelized; I can only say that the opinion expressed was mine and does not necessarily reflect that of management. What I will say is that Research/Cure on that forum is very much a withered arm, and the flippant, not thought out comments offered as the majority response are plain unhelpful. The attitude typifies the "happy gimp" movement, and yes, it's downright depressing!

[Millard]

sci1998, on 21 July 2011 - 10:44 AM, said:

Chris here are your words on the site across the pond

Quote

An aside concerns reference to Apparelized; I can only say that the opinion expressed was mine and does not necessarily reflect that of management. What I will say is that Research/Cure on that forum is very much a withered arm, and the flippant, not thought out comments offered as the majority response are plain unhelpful. The attitude typifies the "happy gimp" movement, and yes, it's downright depressing!

There are five forums on CareCure. On the SCI Community Forums there are 1,190,109 post as of 7/21/11, 09:27 EDST. You found one post not complimenting Apparelyzed and the guy clearly states it is his opinion only. Gimme a break.

Edited by Millard, 21 July 2011 - 01:30 PM.

[edlee]

It seems, 98,,, that regardless of the veracity of your posts,,, or their true bearing on the value of anyones research,,,, that you ARE either a knowinf,, or unwitting,,, TROLL,,, and therby, unworthy of further discussion. If you choose to pick another subject,,, or,, perhaps say anything FAVORABLE about ANYTHING,,, I MIGHT reconsider my opinion of you.

While I know that my opinions holds little value to you,,, I thought I should at least mention them, in hope that you might look a little more closely at both your posts AND your reason for posting them.

ed

[sci1998]

Millard, on 21 July 2011 - 01:28 PM, said:

sci1998, on 21 July 2011 - 10:44 AM, said:

Chris here are your words on the site across the pond

Quote

An aside concerns reference to Apparelized; I can only say that the opinion expressed was mine and does not necessarily reflect that of management. What I will say is that Research/Cure on that forum is very much a withered arm, and the flippant, not thought out comments offered as the majority response are plain unhelpful. The attitude typifies the "happy gimp" movement, and yes, it's downright depressing!

There are five forums on CareCure. On the SCI Community Forums there are 1,190,109 post as of 7/21/11, 09:27 EDST. You found one post not complimenting Apparelyzed and the guy clearly states it is his opinion only. Gimme a break.

There were other posts that were even worse. I copied chris's because I was having a conversation with him. Even the Boss here, Simon felt a need to address the criticism of his site on Carecure. Hey, if you guys love Wise and Carecure be happyits there for you. But most outside bystanders I believe would see the amount of blind faith. So wise young devotees who make excuses to the extreme are trolling here on Apparalyzed.I mean whats the sense of doing a clinical trial and ignoring all the negative peer review of that trial, and even that MP is no longer accepted and cause it is from Wise you want to protect it? No I am not a troll. But I feel there is a cult like following of a researcher that is trolling here.

Edited by sci1998, 21 July 2011 - 10:23 PM.

[sci1998]

Funny how on Carecure they bash other researchers, and unapproved treatments and say you should only take a fda approved treatment, but yet when Wise's MP is dismissed as not meaningfull by peer review they protect it. So who are the trolls? Wise young trolls are even nasty.

[sci1998]

Being an sci I can live
with it,even though sure i wish there was a cure. However I don't need Wise Young cult members to frown on me cause I get married, have a family, am involved in sports and I like my life. You followers of Young are downers. And I might add even to the over reaching to buy his promises. Again it wasn't Esquire who came up with a hyped story of Young. He fed it to them. The worst trolls are wise young followers.

[sci1998]

Hey you wise young lovers give him money be happy if thats what you want to do, but the bull you post here doesn't move me. I have given links, a crediable arguement and I still get attacked. And that alone shows how u have 2 sets of standards, you are so against unproven treatments, yet willing to hold on to wise's which have been shown to lack any real merit by the same system he wants to endorse his treatments, numerous respected researhers/doctors have said they don't work. So your opinion in my mind is biased. And you are trolling here.

Not me. not one groupie of wise posted any real meaningful information other than showing they give him the right to screw us. Nothing based on facts just on him winning you over.

Edited by sci1998, 21 July 2011 - 11:56 PM.

[greybeard]

´98, you seem to have a compulsion to keep adding to this one sided discussion whether or not anyone responds.

May I politely suggest that you have stated your case very clearly, and nobody can be left in any doubt about your position. Now may be a good time for you to move on to another topic. Please.

[sci1998]

greybeard, on 21 July 2011 - 11:55 PM, said:

´98, you seem to have a compulsion to keep adding to this one sided discussion whether or not anyone responds.

May I politely suggest that you have stated your case very clearly, and nobody can be left in any doubt about your position. Now may be a good time for you to move on to another topic. Please.

Why? and settle for more meaningless costly treatments and be attacked for going on with my life? They do respond. They called me a troll. They make too many excuses for Wise. Am I not allowed to feel different, and I gave substancial information and all theirs is based on emotion.

Edited by sci1998, 22 July 2011 - 12:02 AM.

[sci1998]

How do you feel about wise young groupies? why pick on me grey?

[greybeard]

Ah! I think I see. You are upset with your life so you joined this forum 21 days ago with the sole purpose of trying to stir the pot and provoke arguments. Sorry I interrupted. Go right ahead.

[sci1998]

hey, i'm happy. Got a good job. into sports , and do u mind i don't like those who say i a happy crip and I hurt the cure. And even worse I should love useless treatments. I don't need a researchers playing on my misfortune and I don't need his cult following either.

Oh so those that are only for the cure and despise i'm happy and they would settle for crap cures even after shown the truth, you think thats happiness?

[sci1998]

Grey lets hear what you think about a cure and people who are down on those that have not the same trust. Don't pick on me, I know you are not a cure addict. I feel your comments were off base. I stuck strictly most of the time to documented articles and opinions of professionals and scholarly documents, a far cry from those who bow to wise, funny thing there is a video bow to wise!!!! I trully believe it's wrong, not trying to make waves but to correct a bad situation.

Edited by sci1998, 22 July 2011 - 01:15 AM.

[Trinity]

This thread is going round in circles achieving nothing useful