Posted 06 August 2011 - 12:05 PM
Thank you all for the input. I wish I KNEW how the health care system works here in the US, it appears to be top secret highly classified information. When I ask a direct question either from Medicare or the equipment provider I get either silence, evasion, or annoyance! I have learned that according to your injury you either qualify for high end or low end equipment. SCI gets me high end but I was given low end. Why? Profit margin...no doubt.
It was an Occupational Therapist who assigned me the Jazzy 600 and apparently she doesn't have much knowledge of the equipment. When she was getting out of her car I took one look and said to myself "This person is having a personal probelm, either she doesn't like her job or she is fighting with her boyfriend." You know, that kind of bitchy/bitter look on her face. So I asked if she liked her job and she said "It's better than nursing." When I told her the footplate looked too small she said we could always change that out later. When I called and said my feet were falling off and getting stuck between the footrest and the wheels she responded with SILENCE. The arms rests say "non load bearing" and as you know we are supposed to do pressure releases frequently. It is SOOOOOO frustrating !!!
Not only did I break down and cry in the middle of town when the chair malfunctioned and I had to find help to push me home, I cried for 3 days, waking in the middle of the night with tears streaming down my face thinking that they weren't just doing this to me but to the elderly and veterans. I was so despondent and felt I was down for the count. Then my sister sent me an article from The Boston Globe where Disability Policy Consortium is suing to "adequately compensate for endurance of great mental, psychological and emotional pain, suffering, and anguish, shame, mortification, indignity, disgrace, embarrassment, humiliation, anger, discomfort, stigma, demoralization, inconvenience, delay, worry, distress, anxiety, nervousness, depression, powerlessness, and other injuries to his or her feelings and sensibilities and continued suffering of all of the foregoing for an indefinite period of time."
So, I'm not weak !!! This is a heavy load !!! I experienced each of those things simultaneously. And it was bad enough even before my upset and distress caused the company people to LAUGH at me when I said I wanted a new chair. They were making sport of me, passing me from one employee to another with their smirky, snarky, arrogant attitudes. Reading that article really empowered me. I realized that I wasn't down for the count and I came out of my corner fighting like a wild cat. When the young man (finally) came to look at my chair I made him get in it for a test drive and while we were eye to eye level I wouldn't let him past me until I gave him a thorough accounting of all this. He hung his head in shame. But I felt better. LOL