10 replies to this topic

[pow76]

I'm reading the forums and i havent seen anyone say exactly how this procedure is done for botox injections. My spasms has gotten so bad that if the wind blow my legs jump crazy.The Baclofin is a joke, its not doing anything.Can someone please give me some insight on botox injections or anything else that help with spasms.

[pinkcloud]

pow76, on 08 August 2011 - 11:08 PM, said:

I'm reading the forums and i havent seen anyone say exactly how this procedure is done for botox injections. My spasms has gotten so bad that if the wind blow my legs jump crazy.The Baclofin is a joke, its not doing anything.Can someone please give me some insight on botox injections or anything else that help with spasms.

Hi

The pain management consultant will go along your back and see where the spasms are coming from..he will ask you where you feel pain.

theres a limit to how much you can have..if your spasms are in many places..you two will decide the worst affected areas..be prepared to b surprised..he will find muscles affected you never knew spasm..until he touches them.

The nerves from the cord send messages to muscles to spasm..botox blocks the ability for this to happen.

If there no new cord compression..these spasms act 'neurotic'..spasm as you say, if the wind blows on them.

Now i am assumming... i dont know that everyone is like me...its the back..where the spinal cord is that controls the spasm..not the legs themself.

Now it stung like nothing i can explain..it felt s though the doctor was injecting directly into the spine itself....he wasnt but i had to keep telling him..please you got the wrong area...thats the spinal one in the middle of me back...he wasnt. it explained a lot to me...the stinging pain i get in me back is not from the cord area itself..its the muscles close to it..i have alterd sensation in me back so its different for me. I sobbed in agony.

Now up until 2 days after i felt i was dying..i felt so very very ill and kept waking up convinced the doctor was injcting me into the middle of me spine..he wasnt it was them muscles going mad. strnge as i used to think it wa the legs themself that spazed lol.

Then comes the relief bout 2 weeks later..whow..you can move your back a bit more...feels as though you have had wd40 oil but in your back and your the tin man.

And of it wears...ooohhhh dear. The comebck is swful, now i get mine on the nhs..and the nhs may ban it as its too expensive....than transition period is hard

so as awful as it is...its worth it. And dont even attempt to drive home (i cant drive no more as spaz so bad it kills to sit up) i fell over a few times due to collapsing from pain? i dont know

i off forum for a bit..yet couldnt wheel by and see you unanswered. .pm me if you like..i come in to check now and again. And i ill get back to you

[KK*]

pow76, on 08 August 2011 - 11:08 PM, said:

I'm reading the forums and i havent seen anyone say exactly how this procedure is done for botox injections. My spasms has gotten so bad that if the wind blow my legs jump crazy.The Baclofin is a joke, its not doing anything.Can someone please give me some insight on botox injections or anything else that help with spasms.

[KK*]

I am 1 yr post injury and am complete T8/9. I take a total of 80mg of Baclofen and 30-40mg of Valium daily to control my spasms. Tha Baclofen / Valium combination works well for me. I am actually researching having a baclofen pump installed. The spasms obviously become worse if I get a UTI or any other type of infection but otherwise I am virtually free of spasms now and my spasms were extremely bad before they added the Valium.

Hope this helps.
KK

[kidrock]

I've just had Botox this morning. They inject different muscles in the thighs and the back of the legs and feet. I'm up to the maximum dose now and i've had it 4 times and it's made little difference to the spasms and the jerking. I asked about having the nerve cut today and my doctor agreed and has referred me on. I take 50mg of baclofen and i hate it. I have been taking it for 4 years. I feel really tired even when i've had a good sleep. I can't have a pump because my spinal cord is in a mess. I don't spasm bad. But, the constant jerking and twitching is what gets me down. I'm all for giving anything a go and I've heard that the botox works for some.

[Chrisonwheels]

I've had botox on my calves with mixed success (for cloness); generally it's helped, sometimes a lot.
They have to use a needle that is an electrode to find up the muscle that is spasming. The needle has an insulated sleeve on it so it's bit thick!
I have partial sensation and was gripping onto the wheels of my chair.
When the correct position has been found (a little box makes a ticking noise) the botox is injected. A few days later you should notice the affected muscle is much less spastic.
Lasts up to 6 months.
Good old botulinum toxin.
A little valium at night and the legs stay still and I get a full sleep (just a few odd dreams, though!).
Good luck.

[pow76]

it sounds a little painful....but sounds like the spasms are worth it. How much does this cost? does medicade or medicare fund this?

[aggzy]

well botox on the bladder is nasty'
they stuck a camera and a needle up my penis and injeted my blsdder wall 50 to 80 times
was weeing blood for a week
but so worth it

Ag's

[kidrock]

I have botox in my bladder and I don't feel a thing. I can imagine for a man this could be quite painful. I thought they can give anesetic??

When i have botox in my legs he just injects with a needle. I'm going to ask about the electrodes that's probably why it's not working for me.

[ebeth]

I've been getting Botox for my bladder for a number of years and I haven't had any problems with it. I don't feel any pain, although my blood pressure does rise during the procedure (an AD response). It takes a few days to take effect and then it works for about 5 months. I totally recommend it.

By the way, I know an AB person who had Botox in her shoulder and she said that while it hurt, it's bearable.

[sciiaf]

my spasms kick up every time i have a bladder infection. i had botox injections into my urethra to help control bladder leaks, it works tremendously well. usually, you're supposed to have one every 6 mths, but for some people, once or twice works and that's it.

the spasms were HORRIBLE, every 7 seconds while you're trying to sleep. plus i was leaking all the time, my urologist suggested the botox injections. i've only had this procedure twice and i'm going on 11 mths without a new injections, so fingers crossed i may be good.

give your urologist a ring, i sense this might help