841 replies to this topic

[juls]

people tickiling me all the time........hello, i'm paralysed!! Sorry thats a bit mean but i'm feeling grumpy

[enigma]

lil_feisty, on Jul 23 2006, 01:45 PM, said:

OK... I'm probably going to get hammered for this one, but it happened just the other day... Keep in mind I'm in Tennessee...lol

My pet peeve:

Fat freaking rednecks who get a handicapped sticker because their obese and parking more than two spots away from the door at McDonalds requires too much exercise and just puts that much more distance between themselves and the next supersized order of french fries!

Grrrrrrrrrrrrrrrr!

i live in uk we got them here as well v good answer though

[enigma]

Dancingdolphin, on Aug 22 2006, 07:06 PM, said:

Well meaning friends asking 5 minutes 'are you ok?'

...and everytime I go to shift in my chair...move a leg. etc....people offering to help...and again asking if i'm ok?

long reply do you need help with writing

[htwhlz97]

Enigma,

You are most certainly are on a roll or in an excellent mood. You are definetly my comic relief for the day!
THANKS

Edited by htwhlz97, 24 August 2006 - 03:56 PM.

[Califanna]

enigma, on Aug 24 2006, 07:36 AM, said:

lil_feisty, on Jul 23 2006, 01:45 PM, said:

OK... I'm probably going to get hammered for this one, but it happened just the other day... Keep in mind I'm in Tennessee...lol

My pet peeve:

Fat freaking rednecks who get a handicapped sticker because their obese and parking more than two spots away from the door at McDonalds requires too much exercise and just puts that much more distance between themselves and the next supersized order of french fries!

Grrrrrrrrrrrrrrrr!

i live in uk we got them here as well v good answer though

I had one of these people come up to me as I was parking at the end of lot, crooked of course for my lift because that person took the last H-spot. He had the nerve to tell me that he was going to contact the police because I took up two spots. I just replied that "he was welcome to call, but that according to the law, when there are no handicap spots I am allowed two parking spots. Just like when he rides the plane, he is given two seats for his body." He looked stunned, but got in his car and drove away.

[Dancingdolphin]

enigma, on Aug 24 2006, 03:37 PM, said:

Dancingdolphin, on Aug 22 2006, 07:06 PM, said:

Well meaning friends asking 5 minutes 'are you ok?'

...and everytime I go to shift in my chair...move a leg. etc....people offering to help...and again asking if i'm ok?

long reply do you need help with writing

Best offer I've had all day!

[Vicki]

Not being able to scratch an itch!
(c3/c4 quad)
Vicki

[juls]

I just tell everyone if i'm not okay, then i'll tell them but otherwise I'M FINE!!

[crash]

People who try to tell me that recovery is mental

[juls]

crash, on Sep 2 2006, 03:25 AM, said:

People who try to tell me that recovery is mental

I was told 'that it's all in your mind, tell yourself you can walk and you'll walk'!! If only it was that easy

[John Anderson]

Just thought of something else as you guys are talking about the mental stuff...

Everytime I go for a check up, I get "the speech"

You know, the one about how I need to keep strong and that someday I'll be able to walk someday speech. If I'm happy that day, I would pretend I'm listening, and if I'm not, I would rebel and ask "When is someday?" and just basicly go against the speech.

It's just hearing it so many times just

[Ironside]

Probably the most annoying thing about being disabled is the price we have to pay for anything disabled related. Because I am a quadriplegic, I will be soon forking out just over £60,000 for a new vehicle. The bloody specialised controls are nearly twice as much as the vehicle. My electric wheelchair cost me £13,000. Imagine what sort of motor vehicle you could get for that. A wheelchair cushion, £300+. The list goes on.

People who neglect to pick the crap up after their dogs. If I could, I would take it to their house and smear it all over their carpet and see how they like it.

Putting up with able bodied people who moan to me about what a bad day they've had, and especially my sister (the lazy cow) who will not walk a mile into town, she has to take a car. Does she realise how lucky she is having a good pair of legs.

Being too hot in the summer, and too cold in the winter

Anyway, if I was to list everything that annoyed me about being disabled, I would probably fill the server up.

As far as I'm concerned, being disabled sucks.

Edited by Ironside, 02 September 2006 - 04:22 PM.

[coolparaguy]

Ironside, on Sep 2 2006, 09:16 AM, said:

Being too hot in the summer, and too cold in the winter

I totally agree

[bambam]

Most annoying things?

I consider myself to be very capable, at least in terms of knowing how many things can be done "well", from doing laundry to gardening, performing household repairs, cooking, fixing cars, etc. I used to be able to do everything "well" myself. Now I have to work with others and accept their version of what "well" is, for practically everything. It is hard to lose control of what "well" means to you. It can be as simple as working with someone to weed your yard. The right way is to dig/pull out the roots, otherwise, the weed will back within days. Explaining that to someone and then watching them take the weed eater to just chop the tops of the weeds off is annoying. Not being able to go and do it right yourself is more annoying.

The other annoying thing is that many of my lifelong dreams were shattered with my C6 injury. Many of the things I pictured myslef doing as a man will never happen, whether it is taking out the trash and mowing the lawn or having normal sex with my wife. Never again will I go backpacking, waterskiing, snowskiing, etc. etc. etc. the way I used to. This is very annoying to put it lightly. And yes, I have actually done the disabled version of all of these things and I have enjoyed each one. The level of enjoyment is about 25% or less of what it used to be mostly because I am so dependent on others.

I have actually been pretty successful focussing on the things I can still do, but I am not going to pretend that I am not annoyed that so many things will never happen again, at least the "normal" way.

[crash]

amen to that

[keps]

Vicki, on Sep 1 2006, 03:44 AM, said:

Not being able to scratch an itch!
(c3/c4 quad)
Vicki

One of my peeves about being paralyzed is not ever getting any itches below injury!


I would LOVE to have an itchy foot, or something!

[keps]

Oh yeah, and I soaked the bed with pee today, and that was really aggravating. I was drenched! Yuck.

[John Anderson]

keps, on Sep 4 2006, 10:46 AM, said:

Oh yeah, and I soaked the bed with pee today, and that was really aggravating. I was drenched! Yuck.

Yea that happened to me a couple days ago, hate it. Oh yea one thing I do like about being paralyzed is...

My tickle spot is no longer tickleable (if that's a word)- it was below my feet and now it won't matter, unless I got some other tickle spot that I don't know about...hmm....

[juls]

My tickle spot was behind my knees but now it's my neck

[John Anderson]

juls, on Sep 7 2006, 08:53 PM, said:

My tickle spot was behind my knees but now it's my neck

Yea my friends been trying to figure out if I got anymore tickle spots...:lo: I wouldn't know, I don't think about it!

[hisamsmith]

1. Not being able to get into anyone else's house without inconviencing everyone else, i.e. having to pick up me and the chair to carry it up the stairs.

2. Staring- my hair is bright red on top of being in the chair............. plus my live in boyfriend is also paralyzed at the C-5 level and we get stared at everywhere we go unless it's somewhere we go often

3. People talking down to me- I'm crippled (a term I know a lot of people HATE but I prefer it..... i prefer not to sugar coat anything) not retarded

4. In high school it was being on the level of everyone's butts and flys. Try having a conversation with the hot basketball player while tilting your head up to avoid talking to his crotch.

Edited by hisamsmith, 08 September 2006 - 05:17 PM.

[hisamsmith]

oh i forgot

5. Answering stupid questions about wheather they've found the "cure" for my "problem" yet from my maternal aunts in-laws. And being asked if I am getting any feeling or movement back because if I just want it enough or believe in god enough I'll be healed. I have been paralyzed 16 years and I can't even fathom the idea of me walking. I was only 6 and barely remember even how to walk.

[LadyPilot]

This usually happens when Im getting in or out of the car....

A person approaches asking if they can help. Then after you have politely said that on this occasion you can manage but thanks for offering, they then demand to know "What happened to you?"

In my head- " 'scuse me, WTF is that to do with you!!!"

[John Anderson]

hisamsmith, on Sep 8 2006, 10:16 AM, said:

1. Not being able to get into anyone else's house without inconviencing everyone else, i.e. having to pick up me and the chair to carry it up the stairs.

2. Staring- my hair is bright red on top of being in the chair............. plus my live in boyfriend is also paralyzed at the C-5 level and we get stared at everywhere we go unless it's somewhere we go often

3. People talking down to me- I'm crippled (a term I know a lot of people HATE but I prefer it..... i prefer not to sugar coat anything) not retarded

4. In high school it was being on the level of everyone's butts and flys. Try having a conversation with the hot basketball player while tilting your head up to avoid talking to his crotch.

oh i forgot

5. Answering stupid questions about wheather they've found the "cure" for my "problem" yet from my maternal aunts in-laws. And being asked if I am getting any feeling or movement back because if I just want it enough or believe in god enough I'll be healed. I have been paralyzed 16 years and I can't even fathom the idea of me walking. I was only 6 and barely remember even how to walk.

Let's see....
1. Agree
2. Agree, especially during first few weeks of school, every single year I got to re-tell the story to those darn freshies that don't know what the hell is going on.
3. Agree, a freshie call me that once got me hella pissed- turns out, I still got some of my martial arts skills- nailed him I would say
4. Totally agree- but sometimes, I like to pretend I don't know what I'm doing and look at girls butts - they can be really sexy
5. Agree- get asked every single year, usually from someone new to the school or freshies...i just look at them, then get out of there fast either that, if I feel like messing with them, I'll go through the trouble of telling them how much it hurts when they try to poke me- which I don't know, scare the hell out of those freshies

[bigsmiles]

LadyPilot, on Sep 9 2006, 11:59 AM, said:

This usually happens when Im getting in or out of the car....

A person approaches asking if they can help. Then after you have politely said that on this occasion you can manage but thanks for offering, they then demand to know "What happened to you?"

In my head- " 'scuse me, WTF is that to do with you!!!"

How rude is that !!!!! My love tells me what really annoys him is not being able to come to mine for dinner as im in a first floor flat. I told him just call me under my window a bit like Romeo and Juliet . Dont think it went down too well as hes not the romantic type.....shame

[CaptDave4499]

having anyone clean me up after I have a bowel movement

[newquad]

CaptDave4499, on Sep 20 2006, 10:03 PM, said:

having anyone clean me up after I have a bowel movement

As I cannot use my arms I depend on others to do my bladder-and bowel managment what annoys me a lot. Another thing: I use a chair with chin-joystick and a ventilator at the back, so it is rather conspicuouss and people look at me as if I were one of the wonders of the world.

[John Anderson]

Alin Steglinski, on Oct 3 2006, 06:52 PM, said:

sorry people. but nothing annoys me about being paralyzed. i think life on wheels is better.

I kind of have to agree with that...some it's better but others is like arg...

Like what, playing QB again for the football team? That's one bad one...

[Adams]

Oh there's so many things I could type here.

You know what grinds my gear? (that's a Family Guy reference, not a pun)

How about these?

I know when AB people hold the door, it's a nice jesture. Why is it when I get the door for myself and than continue to hold it if someone else is coming, they say "there ya go", like they just got it for me. Didn't I just hold the door for you? WTH?

Or if I'm walking (rolling) down a hall and I almost collide with someone, they say "don't run me over!". Isn't it possible this was their fault and not mine? I usually reply with, "Don't trip over me".

...more to come