33 replies to this topic

[Vanessamaee]

tsh3406, on 20 September 2011 - 01:59 AM, said:

Vanessamaee, on 20 September 2011 - 01:48 AM, said:

Just wanted to give a little update, my parents were (suprisingly) agreeing to the weed option. haha my mom said anything to keep me off baclofen, she said she would rather me take something whenever I need it instead of everyday because I have to. BUT since weed is not legal in the state I live, I decided to go for a more legal approach right now (due to college and trying to find a job, never know when you'll have to take a piss test!) and I got started on Zanaflex today. The part where the doctor told me I might start hallucinating SLIGHTLY worried me, lol but I start it once at night, so I might just have really interesting dreams, who knows (:

Holy shit man, lol....

The one and only time I ever came home with the marijuana, my lil 5'4" Catholic Kindergarten teachin' mom whupped my 6'5" 250 pound ass. You want Tim Howard to come have a talk with your parents? Haha....

HAHA! I could only picture that... and I was suprised too! I dont think weed and livestock mix well together either... so that choice is on the back burner. Thats why I talked to a different doctor today about if there was anything else to try. She explained a bunch of choices, along with their side effects and everything, unlike the first doctor who told me baclofen was the only option.

[Sandra62]

Does anyone have information or experience of taking magnesium chloride for spasms, particulary abdominal spasms that I have very often. A friend of mine suggested me that it could me much more effective than medication I usualy take (Sirdalud). I have not managed to find any relevant information.

[motodmast]

hows the new meds?
i dont take aything for spacticty/ tone.
but i do excerise my legs/ abes every day. i go twice a week to pushing boundries, use a stander frame once a day, and have a ems machine to build/ keep muscle in the lower half, doing all this keeps the spasms to a bare minumim.

hope it helps

[Vanessamaee]

motodmast, on 22 December 2011 - 07:53 PM, said:

hows the new meds?
i dont take aything for spacticty/ tone.
but i do excerise my legs/ abes every day. i go twice a week to pushing boundries, use a stander frame once a day, and have a ems machine to build/ keep muscle in the lower half, doing all this keeps the spasms to a bare minumim.

hope it helps

Spasms have decreased a lot. However hey got to the severity where they were pulling me out of my chair and would flip me backwards if I lifted up and also would trigger just pushing let alone turning. I ended up falling enough times my parents told on me and the doctors told me that I was causing more damage to myself and increasing the risk of breaking something, so I either needed to start taking something or get a pump. I am totally against getting a pump (personal reasons) so I started on low doses of Zanaflex. I now take 8 mg twice a day, which is still relatively low. but mixed with streching, and fes (electrical stimulation) my spasms are now very tolerable.