19 replies to this topic

[Kaylee]

At what we thought was going to be a routine prenatal check up yesterday we received heartbreaking news about our little girl Trinity Breanne, she has Anencephaly which is a condition that has caused parts of her brain an scull not to form. We are still unsure of how to absorb this news, to hear our little girl will most likely not leave the hospital is so hard to think of. We've learned 25% of babies who make it to term are still born, 50% of the babies who are born alive with pass with in minutes to 1 hour from their birth, wile the remaining 25% will live up to 10 days. We have a appointment with a specialist next week, I found my Doctor very cold when she told us the news, she pretty much told us we should terminate as soon as possible because that would be the easiest for us. In the little research we've done so far we have found that many do terminate, but we've read many stories of parents who carried to term and don't regret it for a second. We are going to bring our little Trinity Breanne in to this world, we have to meet our little girl. I'm sorry if me sharing this news offends anyone, I never would want to do that. I have something to ask of anyone who is willing, please pray for our Trinity Breanne.
Thank you,
Kaylee, Hunter, and Eden Marie

Edited by Kaylee, 15 October 2011 - 01:56 AM.

[wheelchairbarbie]

So sorry to hear about this Kaylee! I think you guys should do what is best for you two, and not what everyone else thinks is best for you. If you know in your heart what you want, do that!

Even if she never gets farther than the hospital with you, then that is what is meant to be!

I wish your family all the positive energy in the world!

[Beautiful]

Oh, Kaylee, I'm so sorry you & your family have been hit with this news.

"Rejoice with those who rejoice, weep with those who weep."

My heart hurts for you. I will be praying for all of you. Please don't feel as though it is yours or Hunter's fault; we never know God's plan for us or our loved ones. If you ever need/want to talk, you know where to find me.

[DannyR]

My heart goes out to you and your family.I know the pain of losing a child. I lost my son at 8 weeks over 30 years ago and still lose it when I visit his grave. You should do what is best for you and your family.

[goose]

Kaylee

I can't imagine how you feel or the shock that you must be going through. My heart goes out to you! I know this will take strength and courage to endure but somehow you'll find it. Thanks for sharing this with us. My thoughts and prayers will be with you and your family.

[jenny407]

Kaylee, I'm so very sorry. I will be praying for you all. May the bonds of your family and your friends and your faith give you all strength.

Jenny

[McTavish]

My thoughts and prayers are with your family.

[Tinbasher]

What terrible news to be given. You can only do what feels right for you. Perhaps your doctors 'coldness" was her own coping strategy.

Elaine and I will be thinking of you and you should know you have many friends all over the world.

Tom

[Tetracyclone]

Kaylee,

Of course I will keep your family in my prayers.

This is a terrible thing yet, faced with love, it can give you strength. Years ago a friend of mine and her husband got similar news. Their baby was stillborn. They spend the day with the body, naming her June Bug, dressing her, and taking pictures. They said their goodbyes.

It was their first child and they still keep June Bug's picture in the pantheon of photos of their other children. Handling the experience in this way allowed them to connect deeply with their own experience of this child, and of their loss.

Experiencing life fully is all about connecting deeply with our experiences and with the people who come into our lives, and we shall stay connected with you through our prayers.

Sometimes it is sad- always it is real.

[rue2you]

Kaylee,

I will be praying that God will give you the grace, peace and comfort that you need during this time. I cannot imagine what you are feeling and I don't even really know what to say except that we all will give you all the support we can during this time. Please take advantage of us if you need too!!

Much hugs and love!

[wheeliebear75]

I am so so very sorry. And I'm sorry that the Dr. seemed to hand you the news so callously. I'm sure that Tin is on to something with it being the only way SHE has found she can deliver such devistating news without being an emotional wreck herself.....not that it makes it any easier on YOU. You will ALL be in our thoughts & prayers!

[Kaylee]

Thank you so much everyone for all the support, the news has really sunken in with us now and we are trying to move forward with it. Hunter and I spent a lot of the last couple days crying and Praying together about how to deal with this all. I found a local support group for parents of babies with Anencephaly, the lady who runs it gave us the advise to plan as much as we can from how we want to spend our time with Trinity to how we're going to plan her funeral, she said it made it as easy as it could be for her when she had her little boy.

We have also decided that our little Trinity Breanne is going to be a organ donor, from the support group I've spoken to a couple Moms who donated their babies liver and heart valve. It makes me feel good to know in the loss of our baby we can go on to help other families to not go through loosing their babies.

Wile reading stories of other families who had babies with Anencephaly I found a quote that really hit home with me, " a lot of people dream of Angels, but we held one in our arms"

[Trinity]

I cannot imagine what you must be going through right know. Well done for making the decision for your little angel to save the life of others I hope that it will give you some comfort knowing a part of her will live on.

I hope the rest of your pregnancy passes without any problems and you enjoy every moment she is with you

[twisted_ophelia]

Oh Kaylee, I am so sorry to hear of your news. I think you are doing an amazing thing with donating her organs and that will help her to live on in the most precious way--by helping those other babies. Sending you lots of love and prayers. You are strong and amazing.

[Kaylee]

Just a little update, we met with the specialist yesterday. She was so sweet and loving and a very faith driven person, a very good fit for us to go through this with. She explained everything for us, in a way it helps to really understand everything.

Today is the first day Hunter went back to work since we got the news, it's hard not having him home with me today. I'm just taking it minute by minute, it's hard staying to focused on a lot.

The only reason we've been able to manage to even get out of bed in the mornings is our Eden, no matter how sad we feel you can't help but smile and feel so happy and blessed when we look at her. She gave me a great gift yesterday when I needed it the most, she said MaMa for the first time last night.

We can't say it enough, Thank you everyone for all the love and support!

How can we not smile with this little Blessing?

[Ginny]

You've got enough to deal with right now. I sure hope that no one makes it more difficult by imposing their opinions upon you. Only you know what is right for your family. I think the plan to donate her organs is beautiful. It will help others to live and will give meaning to her life, no matter how much time you have with her. My prayers are with you.

[Kaylee]

Ginny, on 18 October 2011 - 11:04 PM, said:

You've got enough to deal with right now. I sure hope that no one makes it more difficult by imposing their opinions upon you. Only you know what is right for your family. I think the plan to donate her organs is beautiful. It will help others to live and will give meaning to her life, no matter how much time you have with her. My prayers are with you.

Thank you, For the most part no one is making anything difficult for us. Our parents do want us to move home with one of them so they can help us, we're just not sure what we want to do.

[lavenderthistle]

My heart and my prayers go out to you! What a bittersweet blessing this is. Were I in your shoes I like to think I'd do the same. Knowing her gift will impact many may be a comfort to you all. A friend of mine went through this and also carried to term. I will pray for you, your family and of course sweet Trinity. I will pray for peace for you all, for love to surround you all and for Trinity to bless many to grow and lead fruitful loving lives.

[Niceparalegs]

Kaylee,
Let me first say how sorry I am that you have to go through this. Noone deserves a pain so horrible. However, I believe that God must have such incredible plans for you. He allows his children to endure trials out of love for them because he wants them to be strong for the wonders he had in store for them. You must be an absolutely amazing woman. Yours family is in my prayers. God bless.

[Soryfam]

I am so very sorry. You are brave and strong to donate Trinity's organs. Out of pain will come joy. You'll all be in my prayers. I'm so glad you have a doctor who you like now. Come talk to us anytime--we will listen with empathy and love.

Sandy