6 replies to this topic

[jtsky7]

Has anyone had one of these and had success?

My background
I had hemangioblastoma tumor from T-2 to C-2 removed in 1993. After surgery was paralyzed from chest down and after extensive therapy have made great recovery. I am certainly blessed. I also have been dealing with nerve pain, spasticity, skin sensitivity, and loss of proprioception issues ever since from the chest down and in my right arm.

Recently I was in to see my neurosurgeon because I had some symptoms that I thought returned. He did MRI Cervical, Thoracic and Brain and found no cause for concern for redevelopment of tumor.

He then said he would write a Pain Mgmt specialist and I just received a call to set up appointment for Cervical Epidural Steroid Injection. It caught me off guard, so I said I wanted to do some research before I set up appointment. I have tried all meds available to little to no effect for my symptons. Any drug that helped, the side effects were so terrible so I got off of them. I tried baclafin injection also to no avail. Currently I am not on any meds. I saw this same Dr. a couple times previously, the last time in 2005 when they tried the baclafin injection, and he basically told me that with central nervous system damage, there are very few options. So I am hesitant to even try something like this as this seems more like for someone for back and neck pain which I do not have.

[greybeard]

Had one in lumbar spine. Didn't do anything.

Welcome, by the way.

[jtsky7]

 greybeard, on 03 November 2011 - 04:10 PM, said:

Had one in lumbar spine. Didn't do anything.

Welcome, by the way.

Thank you. What symptoms were you having that they tired this procedure?

[greybeard]

 jtsky7, on 03 November 2011 - 07:28 PM, said:

 greybeard, on 03 November 2011 - 04:10 PM, said:

Had one in lumbar spine. Didn't do anything.

Welcome, by the way.

Thank you. What symptoms were you having that they tired this procedure?

Back pain, neuropathic pain, numbness, tingling, lightning strikes etc. The usual stuff!

Others reported here that they have found them beneficial, if my memory serves me right. I would go for it if I had your pain. What have you got to lose? It's relatively painless. You could be one of the lucky ones. Just don't expect too much.

[edlee]

My experience reflected GB's very closely. Same pains,, same result. But I also agree that you should try it. Really no downside to having it done. It's quick and as said above,, relatively painless.
ed

[Sarina]

Hi, my husband is a C5-C6 quad. He had a steroid injection on November 1, he was referred to a pain specialist and this is what the doc recommended. It was fairly straightforward outpatient procedure, however, my husband said he did not notice much relief, and what relief he DID have lasted only a couple of days.

Also, my husband developed a serious UTI a couple of days after the procedure. The day after he had the surgery, the hospital called to ask if he was urinating more frequently, etc, which he was not at the time, but we thought it was odd they should ask such questions. But the next day he had developed a bad UTI which is he just getting over now, after five days of antibiotics, and we think it has something to do with the injection, but as the doctor never responded to our calls, we don't know for sure.

Edited by Sarina, 12 November 2011 - 11:13 PM.

[AmericasHorse]

I had one Fall of 2010 and have not had any pain since. I still have nerve damage, soar stiff, etc. but at least the discs are back were they should be!