10 replies to this topic

[Dancingdolphin]

Hi all! I'm having major probs with self cath at present and had to resort to leaving in a catheter all the time.
Hopefully this is short term....incont hourly without UTI ....on antibiotic nightly, detrusitol every morning...cranberry capules etc

Anybody any suggestions?

Also wondering about long term side effects of indwelling catheters?

Thanks all in advance

[Lucydog]

Hi D/D

I can sypathise but not really suggest anything. Ive had big bladder trouble since october and its not really resolved. I use ISC at the moment although I have a constant UTI and REALLY suffer without antibiotics. I have also started to leak, its not gallons but enough to make me want to change my underwear. I also find that overnight my bladder is full to bursting and gravity almost does its job before I get to the loo. Im going to ask my urologist about a suprapubic at my nest appt in september. I dont think she is keen but Im not happy at my current situation either. Hope things work out for you
take it easy
L

[Philip]

Dancingdolphin, on Jul 22 2006, 03:00 PM, said:

Hi all! I'm having major probs with self cath at present and had to resort to leaving in a catheter all the time.
Hopefully this is short term....incont hourly without UTI ....on antibiotic nightly, detrusitol every morning...cranberry capules etc

Anybody any suggestions?

Also wondering about long term side effects of indwelling catheters?

Thanks all in advance

I have been self Cathing for over 20 years. You could wear a t-drain and leg bag and and cath every 6 to 8 hours. It's really hard to say. If you are eliminating enough to keep UTI down then it's could work for you. If you are not them it could be a problem. If you are within 2 years of post injury then trauma is not fully healed and you may be experiancing a change in how you are functioning.

[russ1]

I had problems with self cath in hospital which resulted in an emergency supra pubic being inserted. The doc and nurses I think would have preferred it had I tried again but I decided to stick with the SPC. Not regretted it one bit. You have to be careful to drink enough but there's no being careful before going to bed - no waking up in the night and I can pee in a convenient hedge if there's no accessible toilet.

I've had no UTI's (touchwood) sine it's been in (3 years now). I also learnt that 70% of sci injuries that leave hospital on self cath are on a supra pubic within 5 years anyay. I'd say go for it but you'll still need to get the leaks sorted (I think they use botoxfor this?) - I have theopposite problem.

[Dancingdolphin]

I have been self Cathing for over 20 years. You could wear a t-drain and leg bag and and cath every 6 to 8 hours. It's really hard to say. If you are eliminating enough to keep UTI down then it's could work for you. If you are not them it could be a problem. If you are within 2 years of post injury then trauma is not fully healed and you may be experiancing a change in how you are functioning.
[/quote]

Thanks for your reply.

Whats a t-drain? (Is it a boy thing?! :-)) I'm just over 2 years....... 25 months..perhaps still changing.....

[Dancingdolphin]

russ1, on Jul 25 2006, 08:40 PM, said:

I had problems with self cath in hospital which resulted in an emergency supra pubic being inserted. The doc and nurses I think would have preferred it had I tried again but I decided to stick with the SPC. Not regretted it one bit. You have to be careful to drink enough but there's no being careful before going to bed - no waking up in the night and I can pee in a convenient hedge if there's no accessible toilet.

I've had no UTI's (touchwood) sine it's been in (3 years now). I also learnt that 70% of sci injuries that leave hospital on self cath are on a supra pubic within 5 years anyay. I'd say go for it but you'll still need to get the leaks sorted (I think they use botoxfor this?) - I have theopposite problem.

Thanks for your reply.

Is SPC better than indwelling, d'ya think? I've had no probs with it...so far!! and you're right about the convenience of peeing in a hedge

[Dancingdolphin]

Lucydog, on Jul 22 2006, 09:19 PM, said:

Hi D/D

I can sypathise but not really suggest anything. Ive had big bladder trouble since october and its not really resolved. I use ISC at the moment although I have a constant UTI and REALLY suffer without antibiotics. I have also started to leak, its not gallons but enough to make me want to change my underwear. I also find that overnight my bladder is full to bursting and gravity almost does its job before I get to the loo. Im going to ask my urologist about a suprapubic at my nest appt in september. I dont think she is keen but Im not happy at my current situation either. Hope things work out for you
take it easy
L

Hi..thanks for reply.

Hope you get everything sorted out soon. I've had a puddle under the chair... can you imagine if I was in the
middle of a busy clinic at work!!!

Let me know how you get on x

[russ1]

Dancingdolphin, on Jul 26 2006, 10:49 PM, said:

Is SPC better than indwelling, d'ya think? I've had no probs with it...so far!! and you're right about the convenience of peeing in a hedge

Your medical team won't be keen as all the available research says that intermitents are better for you. It's not supposed to be good to have a foreign body in you permanently as you will always have a low level UTI. However if it suits and you follow the proper advice then the disadvantages can be minimised and it can enable you to get on with your life. It's a bit of a pain in the summer (shorts) but can be done. Personally it suits me and I wouldn't change unless I had to now. YMMV

[Dancingdolphin]

Your medical team won't be keen as all the available research says that intermitents are better for you. It's not supposed to be good to have a foreign body in you permanently as you will always have a low level UTI. However if it suits and you follow the proper advice then the disadvantages can be minimised and it can enable you to get on with your life. It's a bit of a pain in the summer (shorts) but can be done. Personally it suits me and I wouldn't change unless I had to now. YMMV
[/quote]


Thanks Russ....lots to think about. Whats YMMV) :-)

[russ1]

Sorry shouldn't use obscure acronyms - too much time spent on usenet! YMMV - Your Mileage May Vary or 'your particular situation may be different to mine'. It's quite a useful one though to say this suits me but it may not suit you.

[Dancingdolphin]

russ1, on Jul 28 2006, 09:50 AM, said:

Sorry shouldn't use obscure acronyms - too much time spent on usenet! YMMV - Your Mileage May Vary or 'your particular situation may be different to mine'. It's quite a useful one though to say this suits me but it may not suit you.

Cool site thanks!