10 replies to this topic

[Stillhope46]

Hello everyone, I'm not new to here but don't really get here that much, but my question to everyone is when do you accept the fact that your legs are still here but just don't work now? I have a problem with knowing that they are here, but I feel a discontinued from my legs and the rest of my body if that makes since. I know my legs are here but I forget sometimes that they are there, and sometimes I be afraid to touch them, is anyone else like that or is it just me? After my injury in April of 2009 I was in rehab, and I remember looking down at them and was literally afraid to touch them because it felt so weird, so how long did it take yall to accept the fact that the legs are still part of the body, but just don't work right now? Any members in here from Arkansas? I'm looking for Arkansas residents someone I can talk too, and find out about places to go in Arkansas for assistance. I hope everyone have a good day, and Thanks.

[Vanessamaee]

Im from Missouri, Kinda close to Arkansas. but I dont really know as far as getting support in arkansas... If you want to check this site (http://www.spinalcord.org/ ) out it may help... Im a member on it but I havent really used it to much. As far as accepting your injury goes... Im seven months post (Its actually exactly seven months today, accident was April 30th this year)and have "accepted" it as far as the fact im paralyzed. But I constantly feel as if Im trapped inside of my own body. I try to accept the fact I will never walk again (atleast thats what the doctors say) but at the same time, I dont want to accept it and I want to pursue the fight, but I also dont want to waste my life on something that may never happen. Its constantly a roler coaster ride of ups and downs. As far as not wanting to touch my legs... I have such bad spasms I usually throw them around and slam them on the ground and yell and hit them (yea I know, your not suppose to do this) but I get frustrated with them quite easily and probably should start being nicer to them.
Best of luck and hope your enjoying the holidays (and that your weather is warmer than here!)
Vanessa

[goose]

Welcome to the forum (still a newbie). I can't think of anyone from Arkansas but you should be able to find plenty of friends on here. Don't limit yourself to one area. I've made some really good friends from all over the world.

My SCI was 25 years ago and I've accepted it but I still feel trapped in my own body. I have very limited use of my hands as well as my legs. It's still frustrating to try to do something so simple a 2 year old can do but I can't. It has taught me to be creative and organized. I still get amazed at how some places I can feel something as tiny as a hair but other places I can't feel anything.

[A trophy guy]

Stillhope46, on 30 November 2011 - 11:04 PM, said:

Hello everyone, I'm not new to here but don't really get here that much, but my question to everyone is when do you accept the fact that your legs are still here but just don't work now? I have a problem with knowing that they are here, but I feel a discontinued from my legs and the rest of my body if that makes since. I know my legs are here but I forget sometimes that they are there, and sometimes I be afraid to touch them, is anyone else like that or is it just me? After my injury in April of 2009 I was in rehab, and I remember looking down at them and was literally afraid to touch them because it felt so weird, so how long did it take yall to accept the fact that the legs are still part of the body, but just don't work right now? Any members in here from Arkansas? I'm looking for Arkansas residents someone I can talk too, and find out about places to go in Arkansas for assistance. I hope everyone have a good day, and Thanks.

Did you join this site before your injury? Your avatar says you joined in Oct O8.

[Norsegoddess]

A trophy guy, on 01 December 2011 - 04:06 AM, said:

Stillhope46, on 30 November 2011 - 11:04 PM, said:

Hello everyone, I'm not new to here but don't really get here that much, but my question to everyone is when do you accept the fact that your legs are still here but just don't work now? I have a problem with knowing that they are here, but I feel a discontinued from my legs and the rest of my body if that makes since. I know my legs are here but I forget sometimes that they are there, and sometimes I be afraid to touch them, is anyone else like that or is it just me? After my injury in April of 2009 I was in rehab, and I remember looking down at them and was literally afraid to touch them because it felt so weird, so how long did it take yall to accept the fact that the legs are still part of the body, but just don't work right now? Any members in here from Arkansas? I'm looking for Arkansas residents someone I can talk too, and find out about places to go in Arkansas for assistance. I hope everyone have a good day, and Thanks.

Did you join this site before your injury? Your avatar says you joined in Oct O8.

Join date is October 8, 2011

[A trophy guy]

Norsegoddess, on 01 December 2011 - 04:13 AM, said:

A trophy guy, on 01 December 2011 - 04:06 AM, said:

Stillhope46, on 30 November 2011 - 11:04 PM, said:

Hello everyone, I'm not new to here but don't really get here that much, but my question to everyone is when do you accept the fact that your legs are still here but just don't work now? I have a problem with knowing that they are here, but I feel a discontinued from my legs and the rest of my body if that makes since. I know my legs are here but I forget sometimes that they are there, and sometimes I be afraid to touch them, is anyone else like that or is it just me? After my injury in April of 2009 I was in rehab, and I remember looking down at them and was literally afraid to touch them because it felt so weird, so how long did it take yall to accept the fact that the legs are still part of the body, but just don't work right now? Any members in here from Arkansas? I'm looking for Arkansas residents someone I can talk too, and find out about places to go in Arkansas for assistance. I hope everyone have a good day, and Thanks.

Did you join this site before your injury? Your avatar says you joined in Oct O8.

Join date is October 8, 2011

I'd claim dyslexia, but damn! Thank you for clearing that up for me !

[Norsegoddess]

A trophy guy, on 01 December 2011 - 04:22 AM, said:

Norsegoddess, on 01 December 2011 - 04:13 AM, said:

A trophy guy, on 01 December 2011 - 04:06 AM, said:

Stillhope46, on 30 November 2011 - 11:04 PM, said:

Hello everyone, I'm not new to here but don't really get here that much, but my question to everyone is when do you accept the fact that your legs are still here but just don't work now? I have a problem with knowing that they are here, but I feel a discontinued from my legs and the rest of my body if that makes since. I know my legs are here but I forget sometimes that they are there, and sometimes I be afraid to touch them, is anyone else like that or is it just me? After my injury in April of 2009 I was in rehab, and I remember looking down at them and was literally afraid to touch them because it felt so weird, so how long did it take yall to accept the fact that the legs are still part of the body, but just don't work right now? Any members in here from Arkansas? I'm looking for Arkansas residents someone I can talk too, and find out about places to go in Arkansas for assistance. I hope everyone have a good day, and Thanks.

Did you join this site before your injury? Your avatar says you joined in Oct O8.

Join date is October 8, 2011

I'd claim dyslexia, but damn! Thank you for clearing that up for me !

Haha no worries

[nomis]

Hmmm. Sounds like you're denying, trying to ignore part of your body. You need to do a little integrating.

It might sound strange but I'd suggest you get up on your bed and have a talk to your legs and tell them know how you feel about them. And explore them, following them with your hands, check them out, slowly and carefully.

No matter what you feel or are aware of, those legs are going to remain part of you and they're the same ones you were born with. You're gonna have to look after them the rest of your life, be kind to them and see they keep out of danger. That's your responsibility.

[Tetracyclone]

Listen to Nomis. He thinks before he types.

My experience may be different because I always had some sensation in my legs. I feel pressure just fine, but surface skin sensation is limited in some areas, missing in others. No, i never had a reaction like yours. Instead I was fascinated to touch my legs because they felt so weird. Now it is the new normal, but at first it was fascinatingly bizarre.

[qbounce]

Yeah, it's weird to think of your legs as disconnected. I don't get?

But, I accepted my injury as soon as I got home, 6 weeks post-op.


Anyway, welcome aboard and keep posting.

[wheeliebear75]

I do recall when I got my 1st post-SCI cavity filled at the dentist's office....it was both eerie AND fascinating the likeness between my numb cheeks (the Novocaine still in effect on my mouth) and the way my legs felt; both seemed to send signals to the brain saying the tissue itself was too cold, and I even dragged the eraser of a pencil across my face & then my finger and then did the same thing to the legs....same sensation of pressure but still couldn't tell the tactile difference between the fingertip & an eraser, + I also had those odd "after trails" (it's what I call the sensation of feeling an object such as a finger or hand that WAS there but is no-longer there). But although I do have some sensation & movement.....I don't think I've ever stopped feeling "trapped" by my body & this is now 21.5yrs later.....what I have done is just merely to grow accustom to this incarceration & make the most of which I can....it is after all a life-sentence without the possibility of parole.

Edited by wheeliebear75, 02 December 2011 - 04:31 AM.