11 replies to this topic

[A trophy guy]

Ok, as I have written about before, I have flaccid paralysis which has left me with extreme atrophy due to the total lack of spacticity. I have never experienced, until now, a single spasm of any sort, so I have always pondered what such experiences are like.

Last night, however, I do believe I experienced some very mild spacticity in my "ring finger" toe (next to my pinkie toe) on my right foot. It was just in this one digit, but I cannot imagine it was anything but spacticity, given the nature of the phenomenon. My toe just began to "wiggle" and contract, as if I were moving just that one toe on my own. And I could feel it completely as well, so it was so eerie.

It began while I was in bed, before I went to sleep. And it created quite the distraction to me being able to fall asleep. Now if this had been happening during the day, I could easily have just ignored it; but it was while I was lying motionless trying to get to sleep. It proved to be enough to drive me crazy. I didn't end up getting to sleep til like 5am.

Since then I haven't felt any spasms in the toe (or anywhere else). But it had to be spacticity that I felt, right? It was SOOOO weird to feel a part of my body moving without me controlling that movement; even with a tiny part like a little toe.

Edited by A trophy guy, 04 December 2011 - 10:39 PM.

[wheeliebear75]

What spasms I do have are pretty mild in regards to what some get & they're not a daily thing (which is why I don't want to take any Rx for it) but they've always been in larger muscles like the leg or ENTIRE foot...so I can't say for 100% sure. But it does seem as though it is a definite possibility. If you do find it happening more; try doing some stretches before going to bed or repositioning yourself once it does start up.

[Trinity]

sounds like a fasciculation to me ;)

[A trophy guy]

Trinity, on 04 December 2011 - 10:59 PM, said:

sounds like a fasciculation to me ;)

A wha??

[A trophy guy]

Trinity, on 04 December 2011 - 10:59 PM, said:

sounds like a fasciculation to me ;)

Yeah, I looked it up and it does sound more plausible than spasms.

But man! Way to rain on my parade!!

j/k

[pistol_pete]

Hey Man, I've got spasms to spare.
you want some I got loads, for a very reasonable price they're all yours. Payment plans available.

[dreamerr]

Trinity, on 04 December 2011 - 10:59 PM, said:

sounds like a fasciculation to me ;)

Why is that much different from a spasm? I get them all the time and spasms as well but thought they were all the same. I usually just identify them as being a different type of spasm.

[Vanessamaee]

Im sorry I couldnt help but laugh at this... your TOES "spasm" kept you up... lol this made me want to video tape my spasms so you can see how severe they can be...Congratulations. You may have recieved something everyone that has them doesnt want.

[A trophy guy]

Vanessamaee, on 05 December 2011 - 12:28 AM, said:

Im sorry I couldnt help but laugh at this... your TOES "spasm" kept you up... lol this made me want to video tape my spasms so you can see how severe they can be...Congratulations. You may have recieved something everyone that has them doesnt want.

I am very well aware of the difficulties other face with spacticity. I was making no comparisons bwtn what I had experienced and what others deal with. And don't be so quick to assume that no one wants spasms. There was just a recent thread that discussed many of the benefits people see from their spacticity. And since I have never experienced any level of spasm ever in my life, yes, a spasm in my toe was MORE than enough to drive me nuts and keep me up all night. I just wanted to talk about it, seeing that I may find a bit of comraderie here, because it was such a strange and eerie experience for me.

[wheeliebear75]

pistol_pete, on 04 December 2011 - 11:32 PM, said:

Hey Man, I've got spasms to spare.
you want some I got loads, for a very reasonable price they're all yours. Payment plans available.

You're too funny Pete.

[A trophy guy]

Trinity, on 04 December 2011 - 10:59 PM, said:

sounds like a fasciculation to me ;)

One question I have; if it is in fact this and not a spasm, would that time most likely be the one and only such occurrence I experienced in just that one toe? Because I just had it again. The same toe; same twitch; same everything. I was sitting here at the computer this time.



*I wonder why this is happening all of sudden?

Edited by A trophy guy, 05 December 2011 - 02:39 AM.

[AmericasHorse]

I spasms I call them full body multiple times a day even with Baclofen.

I tell everyone its kind of funny because when a dish brakes we most of the time know its not my 5 year old son who dropped it. We know have mostly plastic plates, bowls and cups, hehe