8 replies to this topic

[tripleexpansion]

hello everyone,

If I posted this in the wrong place please move it to the correct one!

I'm a new injury, 15 months since my accident. It was a car crash. I smashed my pelvis and various other bones in my legs which cause me to go dysreflexic when I use a tilt table. this is not helping my spasm.

Also, when I'm having my bowel cares I go dysreflexic when having digital stimulation. of tried using GTN spray but it leaves me really really tired afterwards and I often sleep for some hours or at least rest to recover.the doctors are going to give me an operation that will enable me to fill my intestine up with tap water which should enable my natural reflex to go to the toilet. I can't remember what the operation is called and I'm going to have it in a couple of weeks and I'm wondering whether anyone on this forum has had this operation, and also offers from the same symptoms as I do. Because I live in a small country (New Zealand) I haven't come across any other people with the same injury level who have this problem. So any hints would be most grateful.

sorry about any spelling mistakes you can blame my voice recognition software! :-)

Kind regards,

Courtney Edmonds

[russ1]

 tripleexpansion, on Jul 31 2006, 02:20 PM, said:

Also, when I'm having my bowel cares I go dysreflexic when having digital stimulation.

Do you mean seriously dysreflexic as in the whole blinding headache which lasts for ages or do you mean you get dysreflexic symptoms ie feel hot, get a headache etc while you're having the stimulation which then subsides in a couple of minutes if it's stopped. If the latter is it always or just sometimes? I get the latter to a greater or lesser degree most times, the blinding headache not that often but the minor symptoms most of the time. Thing is you know why it's happening so you stop, let the symptoms subside and then have another (gentler) go.

If you're going seriously dysreflexic though I'm afraid I can't help.

[tripleexpansion]

 russ1, on Aug 1 2006, 02:58 AM, said:

 tripleexpansion, on Jul 31 2006, 02:20 PM, said:

Also, when I'm having my bowel cares I go dysreflexic when having digital stimulation.

Do you mean seriously dysreflexic as in the whole blinding headache which lasts for ages or do you mean you get dysreflexic symptoms ie feel hot, get a headache etc while you're having the stimulation which then subsides in a couple of minutes if it's stopped. If the latter is it always or just sometimes? I get the latter to a greater or lesser degree most times, the blinding headache not that often but the minor symptoms most of the time. Thing is you know why it's happening so you stop, let the symptoms subside and then have another (gentler) go.

If you're going seriously dysreflexic though I'm afraid I can't help.

mainly the latter, but it leaves me really tired for the rest of the day and it's affecting the going back to work.
thanks for the reply!

[russ1]

You maybe don't need the GTN spray or you could change your routine to do your BP in the evenings?

[Simon]

What is your bp when you are in AD?

[aussie_rachel]

Considering you are in New Zealand I would imagine that stuff on the medical markets in our countries are pretty similar... I would definitely recommend lignocaine gel if you're having problems like this. Recently I had some problems with my bowel care and I started hyperreflexing every time a carer started manual stimulation. Lignocaine gel stopped the hyperreflexia from occurring, I also use lignocaine gel when I get my supra-pubic catheter changed because I get dysreflexia from that as well... I hope this has been helpful, and I would strongly recommend it, just ask your doctor's

PS it's really cheap as well!

[aussie_rachel]

PS (excuse the graphic speech)I forgot to mention that the way you use it is by getting your carer (or if you can do it yourself) to apply the gel to the rim of your anus and then wait a little bit, about a minute, and then proceed with regular care... the gel is basically just a local anaesthetic

[Avocado Baby]

Hi!

I'm afraid I can't help you on this topic, but I just wanted to welcome you to the site!

[tripleexpansion]

 Pink Ali, on Aug 17 2006, 10:20 AM, said:

Hi!

I'm afraid I can't help you on this topic, but I just wanted to welcome you to the site!

thanks nice to meet you :-)

 russ1, on Aug 3 2006, 10:19 AM, said:

You maybe don't need the GTN spray or you could change your routine to do your BP in the evenings?

180 - 200 systolic with lignocaine i stop b4 headache begins thumping

one time it was 240 over 180

i'm getting into a system of doing it at night thanks for the advice.