6 replies to this topic

[brockit79]

Hi guys,

I was going to post this as a reply to Apparelyzed's post about the disability benefit reforms but didn't want to hijack the man's thread with my rant.

As a person who has been crippo'd just last year and after spending nearly 12 months fighting to get the level of help I currently have I have come to the decision that despite my health problems, which have been made worse by not receiving the best possible care and intervention I could have to give me a better chance of recovery/less disabled/less pain, I need to go back to work because I can not afford not to. It scares the s**t out of me because I have no idea whether I will be in a position to or not. My brain is alive and raring to go but my body not so; will it ever be? I don't know. My employers won't wait forever.

I feel angry because it seems as though no money has been injected in to changing attitudes towards disabled people in the work place and making it more accessible generally. For me I feel going back to work is fundamental to integration and I will fight to get back there. I have had to do a lot of fighting to keep my job despite the fact that I have always communicated my keenness to get back there.

In my case, like many others I suspect, the government wants it both ways; the original hospital and SU I was under ducked out on giving me an MRI scan and performing any surgery and I can see no other reason than to save money, the original SU discharged me to an inaccessible property! with no access to a bathroom or a way out independently if there was a fire! TO SAVE MONEY the hospital under pressure from the government have taken my chances of any natural recovery, prolonged my pain; and now the government want to decrease our benefits and therefore quality of life! As it happens I am Miss Tenacious with a capital T and will not let this SCI get the better of me but if I stay like this forever i.e lonely and unable I may as well be dead.

The government want to pay me (UK resident crippers) for my misfortune with peanuts: I say go F*** yourself.

Sorry for my rant, if I don't write it my head will explode.

Broc

[Edinburgh Colin]

I hear you Kell, wish I could say something uplifting but you have kind of covered the situation well. The CAPITAL T for TENACIOUS may well be the best weapon you have and also the best hope.
You know where I am if you need a more private venting and some feedback!
EC

[brockit79]

lol, thanks EC. I will def call on that when I start going crackers again
B

[scaldedcat]

Hi Broc

Not much consolation, but it appears Governments are pretty much the same, the world over. While I can't complain about my medical care, as far as funding for you once you leave the hospital, it is just a joke. Nobody could live on what is paid, and they don't take into account how much it costs some SCI patients for catheters, gloves etc. I too wish to get back to work, but am unable to at this point. We have the grand situation (as i'm sure do many countries)of illegal immigrants landing on our shores, being housed and then paid more than twice the amount I am paid for my pension. While I feel for the lives of these people, you sometimes wonder where your Governments priorities are when it comes to its own citizens.

[brockit79]

Hey Scaldicat,

Very true governments are pretty much the same world over when it comes down to it, and some are even more twisted. It helps to get it off your chest though hey.
Thanks for the reply though, I think I was having a poor hard done by me moment. I just feel frustrated that they (in the hospital when I was on deaths door) made the decision to write me off. I think the anger and frustration has stopped me from giving up my fight to get through, but when will it run out? When I have given myself a coronary?

Broc

[scaldedcat]

I know it feels like that, a never ending bloody fight. I sitll had bowel issues when I left the hospital and yet they said that a nurse would visit me for up to six weeks at home and everything would be worked out. Well she did come, but nothing changed, and my bowels were just as bad as they always were. So she just said she had tried everything she knew and was out of answers, so my wife and I were left to deal with the issue with no further support. But two years down the track of constant accidents, and I was just about ready say enough is enough, and bow out of this life. But I just kept checking the net for possible solutions but it became obvious to me one day that the only solution to my issue was a colostomy. Not something I would have dreamt of needing at my level of injury (or any of the doctors, who have now changed their opinion)but i knew it was the only way I was going to have some semblance of a decent life for me and my family.

But good on you for having a rant, it doesn't change much, but at least it helps to get it off your chest. Hang in there, and keep fighting the good fight, I know you've been doing it for a long time, but things will get better. I'm a pessimist, but I'm fortunate my wife is the opposite and keeps me going with her advice, and she is nearly always right. (always if you ask her lol)

Just remember your not alone in many of the thoughts you have about going "crackers" etc, I've nearly convinced myself of the fact. But tomorrow's another day (sorry about cliche) and it could be the start of things getting better for you. I used to stand by the saying that "if we didn't have bad luck we wouldn't have any luck at all". Your overdue for yours to change, and I hope it happens soon.

Take care

Edited by scaldedcat, 11 January 2012 - 01:06 PM.

[brockit79]

I know it feels like that, a never ending bloody fight. I sitll had bowel issues when I left the hospital and yet they said that a nurse would visit me for up to six weeks at home and everything would be worked out. Well she did come, but nothing changed, and my bowels were just as bad as they always were. So she just said she had tried everything she knew and was out of answers, so my wife and I were left to deal with the issue with no further support. But two years down the track of constant accidents, and I was just about ready say enough is enough, and bow out of this life. But I just kept checking the net for possible solutions but it became obvious to me one day that the only solution to my issue was a colostomy. Not something I would have dreamt of needing at my level of injury (or any of the doctors, who have now changed their opinion)but i knew it was the only way I was going to have some semblance of a decent life for me and my family.

But good on you for having a rant, it doesn't change much, but at least it helps to get it off your chest. Hang in there, and keep fighting the good fight, I know you've been doing it for a long time, but things will get better. I'm a pessimist, but I'm fortunate my wife is the opposite and keeps me going with her advice, and she is nearly always right. (always if you ask her lol)

Just remember your not alone in many of the thoughts you have about going "crackers" etc, I've nearly convinced myself of the fact. But tomorrow's another day (sorry about cliche) and it could be the start of things getting better for you. I used to stand by the saying that "if we didn't have bad luck we wouldn't have any luck at all". Your overdue for yours to change, and I hope it happens soon.

Take care

yes I agree with you and I believe that there are no short cuts to happiness and pain is on that journey. I'm glad you have found your happy medium and insisted that you got the colostomy; I think we need to trust our instincts at times as Dr's, as experienced as they may be, can only know it text book; we are the experts on our own bodies if we listen to them carefully enough and, if we consider all options carefully we, are far better equipped to make the decisions that will affect us, if only I were not mashed up on morphine/unconscious after my accident I'd have put them straight *sigh, movin'on.....at least I have BBC6 music to get me through the dark days
Best wishes to you too