21 replies to this topic

[moses gichuki]

Is it just a fragment of imagination when l get a burning sensation on my toes especially the big toe. Am not a grown up of this board so am still learning to use it. Any opinion will be greatly appreciated. Thanx.

[Tinbasher]

Maybe, maybe not.

If they feel like they are burning when they are actually hot then maybe you have some nerves still connected. If they just feel hot when they aren't then its probably in your head and not your feet :-)

[moses gichuki]

Thanx l think its mostly in my head because l dont feel the pain of a cut. But the feeling just bothers. Its so cool to speak to people who understand.

[brockit79]

the dreaded neuropathic/phantom pain strikes again! I get this rather a lot and it is how I can imagine sitting in the bath for too long than either walking or sitting in stinging nettles or is comparable to having electrodes or high frequency vibration on the skin :/

If the pain gets too much then there are medications that can help but any kind of mental or physical activity will help to mediate the pain.

Good luck and welcome to the neuropathic pain club! ;)

[Tatiana]

I know how you feel

...last night both my feet felt like they were on fire but were cool to touch and to add to it i had real bad stabbing nerve pain in my toes in one foot only ..doesent make sense does it .....

[moses gichuki]

Thank you so much. Its like you reading my mind!

[wiggy]

I get these "phantom" pains as well, like my whole body is on fire. Lyrica helps with mine. You might want to ask your PnR doc about that particular med.

[D. Smith]

I get the same feelings in both of my legs. It alternates on how bad it feels and in which legs to boot. Another med that helps with it is Neurotin (also known as gabapentin) which is what I take. It doesn't make the feelings go away, but rather takes the edge off of it to make it bearable. I've heard a lot of good things about lyrica, too.

[Stand]

I can make my legs and toes burn just by trying to move them which I am very seldom successful in doing. It's definitely not just mental because it is really consistent. I think it's just another matter of the wires being connected by the signals being sent all over the place so no meaningful movement comes of it. It's a little frustrating but at the same time, kind of encouraging. Only time will tell.

[Kodie]

Stand117711, on 11 January 2012 - 08:25 PM, said:

I can make my legs and toes burn just by trying to move them which I am very seldom successful in doing. It's definitely not just mental because it is really consistent. I think it's just another matter of the wires being connected by the signals being sent all over the place so no meaningful movement comes of it. It's a little frustrating but at the same time, kind of encouraging. Only time will tell.

Mine do the same exact thing! I'll try to move them and they'll tingle/burn for hours. Very frustrating! I don't take meds for mine though. I guess I've learned to live with it.

[Shane G]

My legs have a painful burn quite frequently, but they aren't hot to the touch.

[airart1]

burn and tingle like they're in boiling water, all the time.....

[Ches]

It reminds me of having walked on a cold tile floor and that burning sensation you'd get as your feet found their way into a hot bath.

[Michael84]

moses gichuki, on 10 January 2012 - 02:34 PM, said:

Thanx l think its mostly in my head because l dont feel the pain of a cut. But the feeling just bothers. Its so cool to speak to people who understand.

I get the same burning sensation pains and they say it is all in your head but I don't feel it it my head.

[rue2you]

Mine burn worse the colder they get. The never feel cold to me as in my body but to the touch with my hand they are like ice! So, I just know that when my feet are burning like that (it is all of my feet - not just my toes)then they are cold. There is a different type of pain I get in my feet - more like a throbbing pain (like miniature jack hammers are in the bottom of my feet) and it only does that when I first lay down at night. I don't know why that pain happens but it is different than the burning pain.

[lavenderthistle]

I'm trying some lidocaine cream in addition to the mass amount of Neurontin I'm on. The cream is only 4% its by Triderma. I'm giving it a whirl on the hypersensitive spots to see if it will dull those.

Nerve pain is not my friend

[dreamerr]

I have burning as well. My feet usually feel like they are in buckets of ice even if it is warm in the room. I get burning pain but not a hot pain. I get it all over my legs. My guess is some is real and some if phantom in my case. I tried neurotin but I had a bad experience on it so now I just live with it.

[dsconneal]

I am new to this forum and one of the things I wanted to find out about was the severe neuropathy pain in my feet and lower legs. My feet feel like they have frostbite most of the time and then jack hammers and bee stings. Some times it hurts so bad that I do not sleep for days. It gets worse in the evening and if I don't wear special boots on my feet at night they get worse. I also have severe foot drop and my feet hang awkwardly inward. I have even broken a few toes putting shoes on (my toes get turned under when slipping my foot in) and I try putting pressure on my right foot since it doesn't slide out from under me like the left one does. I have tried most of the meds noted accept for Lyrica.

I was wondering how many people felt this pain and am glad to know I am not the only one.

[sherbs]

Same here, I have tried various meds, but i just cannot tolerate them, so just put up with it, but somedays it does get unbearable

[Pearl]

dsconneal, ask your podiatrist about AFO's. (Arizona braces) They are braces which are allowing me to walk (the little that I can) without my feet flopping around like a pigeon! Mind you, I've got the same L4-5 as you, injuries may be vastly different, but that foot drop is a pain in the butt! Oops, can't feel that either! ;-) What kind of special boots do you wear at night?

Neuropathy is awful, folks, I'm on gabapentin but it doesn't work as well at night. Moses, that blowtorch on the feet feeling is just the thing to keep me up until all hours, sigh. It's in the damaged nerves, not in your head. I used to use a cream containing gabapenting and lidocaine which was from a compounding rx, prescribed by podiatrist, but it's not covered by ins. any more and is hundreds of dollars! Until I hit the lotto, I can't even think about it. I can't even take a fan on low speed blowing air around my bare feet, it hurts too much. I have my feet uncovered by the blanket at night, but I wear diabetic socks and that seems to protect the heels and is what is best for me at present. Take care, y'all.

[munkypoop]

moses gichuki, on 10 January 2012 - 12:50 PM, said:

Is it just a fragment of imagination when l get a burning sensation on my toes especially the big toe. Am not a grown up of this board so am still learning to use it. Any opinion will be greatly appreciated. Thanx.

if it feels like when you put your tongue, a 9 V battery going through your toes, foot, and/or legs, usually it means that the nerves of trying to figure out what's going on and trying to work, it's aggravating, but you get used to it

[Christy]

rue2you, on 05 February 2012 - 04:51 AM, said:

There is a different type of pain I get in my feet - more like a throbbing pain (like miniature jack hammers are in the bottom of my feet) and it only does that when I first lay down at night. I don't know why that pain happens but it is different than the burning pain.

Oohh I know what you're talking about. I've gotten that a few times recently and it is awful! Mine happened right where the dip is in the bottom of my foot.

I've never had burning pain.. only tingling and stinging pains. A month and a half ago my doc increased my gabapentin from 900 mgs to 3600 mgs. It helped some but I started getting new pain like the foot pain and one night I had bad burning/vibrating pain. It happened about 15 times that night, and lasted about 20 secs each time. Haven't had it happen any other time thank goodness.