22 replies to this topic

[Lucydog]

Hmmmmmm I see there is no mention of the cost here?.....

You know I really bloody hate these things. Go away and dont come back.


but hey thats only my opinion,

[russ1]

Go away and dont come back


mine too

[LadyPilot]

"Ditto" the above two posts

[LadyPilot]

SCITreatment, on Aug 6 2006, 06:37 PM, said:

“Condemnation without investigation is the height of arrogance"
-Albert Einstein[/color]

I have spent the best part of 25 years with a SCI. I am as fit as I can be with no muscle wastage at all in my legs. I lead an active and very full life, more than a lot of ABs I know!. I DO NOT NEED TO WALK TO BE HAPPY or HEALTHY in my life. No-one is going to mess with my body I've got to much to lose if theres a mistake. Being able to walk isn't the be all and end all.

[russ1]

Quote

expert acupuncturist is able to treat the cause of illness thus heal the injury

This is junk science - offering new SCI's (like me) a cure or hope of potential improvement when there is absolutely no basis to do so is just about the worse that you can do. Far better to state as Lady Pilot does that it's better to get on with your life and maintain your body in as best a condition as possible.

We don't believe any of your claims for improvement - we await proper clinical trials but you and I both know that there's no chance that acupuncture can repair spinal cord and that proper clinical trials are never going to happen. We've seen similar claims from china for everything from stem cell implants to acupuncture to miracle tablets to prayer. They are all worthless and every study to ascertain their worth has shown this.

The only thing you state with any real believability is 'acupuncture has no side effect and your functions will never be at risk', functions really will never be at risk - either of improvement or otherwise.

Your claims are all about relieving the desperate from their money. Now please FOAD and leave these forums to those who offer realistic help and hope.

[DaveP]

SCITreatment???

What's your name and where are you from? Rather than being anon, with a Yahoo email address, give us some background on who you are?

If you're so confident that what you're saying is correct, then you should have no problem putting your name to what you're saying.

[juls]

All that i can say is that i am appalled as to how you have conducted yourself on this forum. Your replies to ladypilot were rude and insensitive. If, as you claim, ladypilot does not understand how a new sci feels (even though she has obviously been a new sci at one time!) how on earth would you know what it feels like??
No one wants to be in a wheelchair, but while we are waiting for a REAL cure we are going to live a happy, healthy, full life just like anyone else. You are trying to take advantage of vunerable, frightened people who need lots of support. You and your outrageous claims do not belong on this forum, that is setup to help people.

[juls]

You still haven't answered DaveP's questions.
Also, you could show us some case files of people with sci that have been 'cured' to back yor story up.

[LadyPilot]

SCITreatment, on Aug 8 2006, 03:28 AM, said:

LadyPilot, on Aug 6 2006, 02:34 PM, said:

I have spent the best part of 25 years with a SCI. I lead an active and very full life, more than a lot of ABs I know!

LadyPilot:
You are lucky to be in good shape. But your own story has no merit for this forum at all. You are telling new SCIs that it is OK to be SCI and you even live a better life as SCI for 25 years. Unbelievable! You want to be living model of SCI, is that right?

You don’t understand how new SCIs feel at all. You should know so many SCIs are suffering every day. Many new SCIs are under age 30. Their lives are devastated and they want to get back to their normal life. They surely cannot and will not wait for 25 years like you have done. They have a brighter future ahead of them.

You don’t want to walk again. That’s fine. But don’t spread your negative virus to other SCIs. Young SCIs want their life back. By the way, acupuncture has no side effect and your functions will never be at risk. Everyone knows this.

So please contain your negative virus at your home and do not contaminate the public forum.

Take care,
SCITreatment

What a strange person you are. You do not know me, yet you vitreolize me! I remember very clearly how I felt when I first broke my neck. The srews drilled into my skull for traction ( the scars still irritate). Not having the use of my hands, losing the job I loved, losing my independence, the realisation that I may never walk again, never dance, never paddle in the sea, never climb a flight of steps etc. I was 21.
Me, not want walk again? what an ignorant assumption. 15yrs ago I was prepared to spend £12,000 ($21,600) on a physical therapy program (to walk again)in Russia, but it fell through.
I have over time got 99% use of my hands back enabling me to live a full and active life despite being paralysed from the chest down. I effectively GOT MY LIFE BACK.

I am happily married (13years) to a guy in the Royal Airforce.
I have passed my Advanced driving test. Got my Private pilots licence (correct spelling), Silver "C" glider pilot, soloed a microlight, piloted a balloon, won competions against AB people with my pony and carriage (keep and look after my pony without help) and drive an MGBGT sportscar.
My point being, that while I have been waiting for a cure I have not wasted my life stuck in a hole, hating the world and wailing "I wish I could walk".

Edited by LadyPilot, 09 August 2006 - 08:31 AM.

[russ1]

SCI treatment

Gotta say I'm surprised you're hanging around after the reception you've had and I have some respect for you for doing that.

As far as acupuncture goes I'd like to believe that it can help but my limited experience with it was unsucessful to say the least and very uncomfortable. I do believe that in some cases it can help to relieve symptoms but to convince me it can help to improve function even in a very minor way would take either a huge leap of faith (something I don't do) or some convincing clinical trials.

The biggest problem anyone round here is going to have is with your claim to cure or to give people the ability to walk again. Like I said before without some real clinical trials or unless there is some real evidence that this program is part of an externally approved clinical trial then your claim is nothing more than junk science and hollow promises. The 100% money back gaurantee may be genuine but we all know that most 100% money back gaurantee's are worthless and given the lack of detail in your 'offer' this specific gaurantee just appears to be in the worthless category.

The next problem people have is with a yahoo email address and no web site or real names. Unless you are prepared to give some real details of the person involved, where they are and their real history with SCI treatments then no-one is ever going to believe that this is nothing more than a scam to relieve desperate people of their money. You are quite happy to quote costs for stem cell but you haven't told us how much your 'doctor' wishes to relieve your Guinea pigs of. So do tell.

At the moment I'm still firmly of the opinion that this is spam pure and simple and that anyone following up on your offer will, at best end up with a very expensive course of treatment that will leave them no better off than a course of physotherapy and exercise (which seems to be part of the treatment and which we know can improve things in a small way) and that there is no chance that any money paid out will ever be refunded under any circumstances. At worst they'll pay for a non existent therapy.

Your call, we see people promising non existent cure's (partial or full) pretty much daily so give us something to show that this is actually a genuine one and give us some actual details of costs or stop trying to justify junk science.

Tell us
1. Real Names
2. Real Locations
3. Costs
4. Some evidence of proper clinical basis for the 'claims' of improvement

Front up or get lost.

[dancin' johnny]

There are too many pricks in acupuncture.

[LadyPilot]

........YAWN,YAWN...........

[mrsE]

I agree with ladypilot, it has taken me many years to get my life just the way I like it and I am happily married, have great friends and family, part-time work, many hobbiesetc...and don't need to be able to walk. If I was offered a 'cure' I am not sure that I would choose to have it. It would change my life again dramatically and later the dianamics of my relationships. I do think for newly injured people finding a cure or a way to help the body heal itself would be amazing. I am sure there are many people out there hopefull that a cure is coming soon, but there may be just as many people who do not feel the need for a cure.

[Texaswheelz]

While I'm not convinced I am sad at the reactions here. Everyone keeps saying "cure" when I have yet to see the OP mentions Acupuncture as a "cure" but as a treatment. I'm 16 years post injury and live a happy healthy active live also. But, and you can argue with me if you want, why are you reading post in the Spinal Cord Injurty Research, Cure & Treatment News section if your not looking for a cure or treatment and are perfectly happy with the way you are? That's not saying you need to be fixed, cause I know I don't need to be fixed as I don't consider myself broken and neither does my wife or any of my family or friends. But here we are, looking for what? Research info? Cures? or treatment? I believe this falls under treatment. As I said I'm happy with my life and what it has turned into after thinking it was over at the age of 16(being the son of a football coach) when i woke up with tubes in me. While I really don't like the word cure for SCI injuries it seems to be what people want to call any treatment for it. If there was a medical or even non medical way to heal(it is a injurty after all) my ailments then I have no doubt I would take it. Not because I'm not happy with myself, but the chance to run across grass barefoot again would be to much to pass up.

I have no problems with the OP's claims as I see nothing that is spam or other nonsence, but a treament, not a cure or a promise of a cure and while he doesn't have much info to go on, nor does anyone that I've seen stating that it is bogus and that they have tried acupuncture as a treatment for anything and recieved nothing for it.

Now to the OP, the biggest problem I have with you is that you say you and your Dr. are looking for patients to test out his theory and SCI acupunture treatment and see if it works as he thinks it will, yet for that "test" you want some one to fork over $1500 a month. While I realized there are people paying 10's of thousands of dollars to fly over sea's(or even here in Amercia) for "test", I would think your Dr. could drop the cost and bring in a few patience for free. There is a difference in the cost for a team of Dr.'s and hospital and all that goes along with invasive surgery compared to coming into a clinic for a hour or so and having some needles stuck in you. If you were in my neighborhood and offering free 'test' then i would be there in a heartbeat, cause God knows I could in the least use some pain treatment and I've heard acupuncture works very well in that area. Could I use a treatment that improved by bladder/bowel functions? Yes.

Edited by Texaswheelz, 16 August 2006 - 09:40 PM.

[DaveP]

SCITreatment - as you seem so confident in what you're saying, why will you not put your name to your messages? Posting messages anonymously, especially on such a sensitive subject which people are natuarally questioning, doesn't help instill confidence in what you're saying.