5 replies to this topic

[silone74]

Hi i am having some issuse at the moment that I had no idea about and only from looking on the SIA site I realise these things should have been explained to me while in rehab and before I left rehad.

I was never told about AD or how to spot the signs i did this on my own and only recently found out about medication to ease AD this was never discussed with me at all,I was not shown properly how to do bowel routines I learnt when at home on my own I was only aware of what needed to be done never shown in rehab never had a lesson in that or even told about different types of medication or enima to help with bowel routines.

I was told four years after being out of rehab that I should have had an operation on my L1 fracture to make it secure and now to do the procedure would be too big of a job as it has healed and would need re breaking but it is causing problems now as it has healed on an angle and is pressing on other nerves that it would never have been touching if they had operated at the time of my accident I was not even given a brace that kept that part of my back from moving infact the brace that was measure by a physio for me was a full body brace but as the physio measured it wrong it did not fit so the same physio got a smaller brace from the ones they had in there office that was not a full body brace it only braced the top part of my body and back and no one ever checked it was the right one apart from the said physio?

I have only really started thinking about what happened in rehab due to things going wrong now and from reading about and been told about that should have been done that weren't done at the time I was there and if things where not going wrong with things now I would be none the wiser that these things where not done right at the time as I and every one else puts complete trust in thinking SCI hospitals know what they are doing

Has any body had similar happen?


Thanks

Si

Edited by silone74, 10 April 2012 - 10:15 PM.

[oldwheelz]

There were many things you had to learn before discharge. I don't think we will ever know all we need to know. When I was let out I was given a thick binder with all sorts of info. in it. Everyone should get a book like that.

[silone74]

I was not given any books, booklets, no info on benefits just my bag with cath's and night and leg bags it was my dad that found out what I could claim and even then it was some years later I was advised on benefits I knew nothing about, I went to see a flat that the local council had for me that was not adapted and I was discharged less than a week later and had to live in my mum an dads very small front room with no access to bathroom no ramps to get in the front door for over three months before my flat had a wetroom it still had no adapted kitchen but I moved in for some freedom.
I feel alot of things where not done correctly on my discharge from rehab but its the none information about my own care that I have found to be wrong.


Si

[munkypoop]

They kicked me out and did not learn anything, like stretching and ad until I went a few thousand miles away in Baltimore. Four years later and finally learned stuff

[rAdGie]

wow silone74 thats quiet bad i was taught quiet alot in hospital i think, i was taught about AD and checking skin etc, learning to cath and bowl routine etc but only really learned when i got home, but as far i as i can see its pretty much like learning to drive, you get taught the basics then when you pass thats when you learn for real and deal with the things that apply to you in your situation, i guess you will have to ask about on here for help which you will get, i have got alot of answers from here

[samanth919]

Yea right, I was told nothing after leaving rehab. All they taught me to do was transfer. I was not ready at all, but I had to come home and learn everything on my own, or actually.. with the help of my mother, thank god for her. Now, after four years, I'm just getting the hang of things. This is the first site i've found, hopefully it will help me learn more about things I should be great at...