Welcome to the Apparelyzed Spinal Cord Injury and Cauda Equina Syndrome Support Forum
- Start new topics and reply to others
- Subscribe to topics and forums to get email updates
- Get your own profile page and make new friends
- Send personal messages to other members.
- Talk to others in real time in the Chat Room
Stomach Spasm In Bed Stopping My Breathingfighting for breath
Posted 03 August 2012 - 06:44 PM
I can just about function when sitting up without passing out but can't breath enough to talk. BP is 100/50 so acceptable for me - I've been a lot lower. No other cold symptoms like cough, runny nose, sneezing, but hubby and daughter have both recently had bad colds.
I can't inhale enough and am fighting for every gasp when I am in bed, the restriction coming when my legs and more painfully my stomach spasms. My stomach acts as if an alien is going to explode out of the centre, the sides contract and a hard rugby ball rises in the centre. At its worst when I am getting dressed etc. The pain and puffing is excruitating - imagine watching a pregnant woman going through a contraction - thats me when my legs spasm.
My doctor has sent me for chest xrays, started me on Baclofen and ventolin to take before I go to bed and try to relax me. After recently having cancer I am hoping the xray isn't going to show anything more serious. Bloods have all come back OK, no iron deficiency.
I'm a complete c5/6 tetra of 30 years whose legs have always spasmed hard and have never been floppy. When I go over cobbles they go out straight. I've not ever resorted to Baclofen either.
Any thoughts much appreciated.
Posted 03 August 2012 - 10:52 PM
Edited by funkisfunkis, 03 August 2012 - 11:05 PM.
Posted 04 August 2012 - 04:35 AM
As far as treatment, I do take baclofen, not much though as I rely on my spasms. But marijuana does wonders for me. Went a little overboard the first time and went daaaaays with zero spasms.
Posted 04 August 2012 - 07:46 AM
All the sitting down we do cause our abs to shrink which makes them more prone to spasm.
Lying on your stomach, a pillow or two under your chest for even better results, will stretch you abs as well as hip flexors and quads.
- Nita Carling likes this
Posted 04 August 2012 - 05:35 PM
I would love to be able to lie on my stomach, but thats not been possible for a while, although I have done so every day for 30 years to help stretch me out. I am wondering what state my abs are in. I've had 2 kids post injury, the last just over 9 years ago at over 20 years post injury, and had hoped they had stretched my remaining abs!! The alien stomach spasm was there though when I was pregnant, my obs consultant and I used to laugh at it as it would be as hard as my unborn babies head.
I wish it would only last 5-10 seconds, I could cope with that. It lasts between 2 and 5 minutes so I do have to breath and I am screaming with agony if you could hear me.
The longer its lasting the more paranoid I'm getting that the xray will have bad news, but I've got to think more positive waves.
I've just had a neat rum - my doc has recommended that I have a drink to help relax me - and has given me the breath to write this. Along with watching our fab girls just win gold in the velodrome!!
- Nita Carling likes this
Posted 04 August 2012 - 05:54 PM
Posted 24 March 2013 - 02:36 AM
I am 47 years post injury, C4C5 incomplete quadriplegic, and all that time have never been bothered by severe spasticity. in the last year however it seems my whole body is changing. My spasms have become what I call severe to me. In particular I have got those major spasms that curled me up into a ball making it difficult to breathe… It does pass that frightens me. I too have started baclofen but hasn't done me much good. My doc says I'm at maximum dose. I just retired from employment and will begin a regimen of physically working out and hopefully the added physicality well help reduce my spasticity. Has anyone else seen a reduction of their spasticity due to physical activity are creased physical activity?
Posted 24 March 2013 - 03:56 PM
yes, increased physical activity reliably decreases my spasticity.
Has your MD carefully checked for other ailments that might be triggering the spasticity? I discovered last Nov. that low grade UTI had been the cause of most of my too-much-tone problem for several years.
Good luck with it- yeah it can be scary.
Posted 24 March 2013 - 10:02 PM