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Stomach Spasm In Bed Stopping My Breathing

fighting for breath

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11 replies to this topic

#1 Izziwhizzi


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Posted 03 August 2012 - 06:44 PM

I'm currently having a lot of issues with my breathing being in distress - has anyone any thoughts?

I can just about function when sitting up without passing out but can't breath enough to talk. BP is 100/50 so acceptable for me - I've been a lot lower. No other cold symptoms like cough, runny nose, sneezing, but hubby and daughter have both recently had bad colds.

I can't inhale enough and am fighting for every gasp when I am in bed, the restriction coming when my legs and more painfully my stomach spasms. My stomach acts as if an alien is going to explode out of the centre, the sides contract and a hard rugby ball rises in the centre. At its worst when I am getting dressed etc. The pain and puffing is excruitating - imagine watching a pregnant woman going through a contraction - thats me when my legs spasm.

My doctor has sent me for chest xrays, started me on Baclofen and ventolin to take before I go to bed and try to relax me. After recently having cancer I am hoping the xray isn't going to show anything more serious. Bloods have all come back OK, no iron deficiency.

I'm a complete c5/6 tetra of 30 years whose legs have always spasmed hard and have never been floppy. When I go over cobbles they go out straight. I've not ever resorted to Baclofen either.

Any thoughts much appreciated.

I xx

#2 anomiepete


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Posted 03 August 2012 - 08:24 PM

I've no ideas that you haven't mentioned in your post Izziwhizzi but it must be driving you mad. I get strong spasms but not like you describe - I hope someone comes along with something useful for you.
"How did you become disabled"? "I asked a bloke a nosy intrusive question without good reason and he took exception to it".

#3 funkisfunkis


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Posted 03 August 2012 - 10:52 PM

I have similar experience. It happens when my legs stretch out in bed and sorta stretch spasm happens for 5 -10 seconds in legs and chest. When this is happening Im unable to talk or breath. Doesn't bother me that much cause its controlled. I might suggest higher dosage of muscle tranquilers like baclofen for instance. I use 80mg of baclofen daily otherwise my upper body would throw me out of the chair and legs would start kicking. But talk to your local doctor or specialist as this is something you must do cause it is a danger to your health. The stomach spasms are gross and I can relate to that alien thing being born.

Edited by funkisfunkis, 03 August 2012 - 11:05 PM.

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#4 davidsons



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Posted 04 August 2012 - 03:44 AM

hope u feel better

#5 NegativeEntropy


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Posted 04 August 2012 - 04:35 AM

I also get strong spasms when my legs stretch out. My legs start shaking violently. It only lasts for about 5 seconds or so. But when it happens my whole body spasms. I can't breathe or talk during that time. It feels like somebody is giving a huge bear hug. I'm like funkisfunkis in that it never bothers me. I just hold my breath and wait it out, often times the spasms are so strong I end up letting out a slight moan for the duration. Ha! If people heard me in the other room they'd probably think I was constipated and trying to force one out! Ha!

As far as treatment, I do take baclofen, not much though as I rely on my spasms. But marijuana does wonders for me. Went a little overboard the first time and went daaaaays with zero spasms.

#6 MTB John

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Posted 04 August 2012 - 07:46 AM

Do you spend anytime lying on your stomach?
All the sitting down we do cause our abs to shrink which makes them more prone to spasm.
Lying on your stomach, a pillow or two under your chest for even better results, will stretch you abs as well as hip flexors and quads.
  • Nita Carling likes this
Out of the gloom a voice said unto me, "Smile and be happy, things could be worse." So I smiled and was happy and behold things did get worse.

#7 Baller95


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Posted 04 August 2012 - 01:55 PM

Like funkisfunkis and negativeEntrophy said, it lasts 5-10 seconds violently then relaxes a bit after

#8 Izziwhizzi


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Posted 04 August 2012 - 05:35 PM

Thanks guys for your kind thoughts and ideas.

I would love to be able to lie on my stomach, but thats not been possible for a while, although I have done so every day for 30 years to help stretch me out. I am wondering what state my abs are in. I've had 2 kids post injury, the last just over 9 years ago at over 20 years post injury, and had hoped they had stretched my remaining abs!! The alien stomach spasm was there though when I was pregnant, my obs consultant and I used to laugh at it as it would be as hard as my unborn babies head.

I wish it would only last 5-10 seconds, I could cope with that. It lasts between 2 and 5 minutes so I do have to breath and I am screaming with agony if you could hear me.

The longer its lasting the more paranoid I'm getting that the xray will have bad news, but I've got to think more positive waves.

I've just had a neat rum - my doc has recommended that I have a drink to help relax me - and has given me the breath to write this. Along with watching our fab girls just win gold in the velodrome!!

I xx
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#9 brockit79


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Posted 04 August 2012 - 05:54 PM

izziwhizzi, the breathing thing makes me think heart. meds that can affect smooth muscle such as some bladder meds work on all types of smooth white muscle tissue inc heart and lungs. any changes could change affect your breathing. get ticker checked out, any oedema in feet and legs? pm me if you like xxx
Neek me chawa, wermo, mo killie ma klounkee!

#10 Meadowlarkmark


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Posted 24 March 2013 - 02:36 AM

I am 47 years post injury, C4C5 incomplete quadriplegic, and all that time have never been bothered by severe spasticity. in the last year however it seems my whole body is changing. My spasms have become what I call severe to me. In particular I have got those major spasms that curled me up into a ball making it difficult to breathe… It does pass that frightens me. I too have started baclofen but hasn't done me much good. My doc says I'm at maximum dose. I just retired from employment and will begin a regimen of physically working out and hopefully the added physicality well help reduce my spasticity. Has anyone else seen a reduction of their spasticity due to physical activity are creased physical activity?

#11 Tetracyclone


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Posted 24 March 2013 - 03:56 PM


yes, increased physical activity reliably decreases my spasticity.


Has your MD carefully checked for other ailments that might be triggering the spasticity?  I discovered last Nov. that low grade UTI had been the cause of most of my too-much-tone problem for several years.


Good luck with it- yeah it can be scary.

#12 NancyE


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Posted 24 March 2013 - 10:02 PM

Sounds very scary. My spasms are pretty bad, or were before we added Zaniflex to Baclofen. They used to toss me out of bed occasionally . The worst ones I have now are from positional changes- stretching out in bed for the first time after being in chair, my legs go out straight and I spasm all the way up to where injury is, at T3 now, and it stops my breathing for an uncomfortably long time. New aids freak, thinking I am seizing. Old aids only freak when I start going blue around the lips. Yours sound horrible and I hope they find something that helps.

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Spinal Cord Injury & Cauda Equina Syndrome Support

This website is a way for those with spinal cord injuries and cauda equina syndrome to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.