Jump to content

  •  
  • Forum Help

Welcome to the Apparelyzed Spinal Cord Injury and Cauda Equina Syndrome Support Forum


Sign In  Log in with Facebook Log in with Twitter

Create Account
Welcome to Apparelyzed, an active and vibrant spinal cord injury and cauda equina syndrome support forum. Like most online communities you must register to view or post in our community, but don't worry this is a simple free process that requires minimal information for you to signup. Be apart of our spinal cord injury support community by signing in or creating an account.
  • Start new topics and reply to others
  • Subscribe to topics and forums to get email updates
  • Get your own profile page and make new friends
  • Send personal messages to other members.
  • Talk to others in real time in the Chat Room
Don't forget to follow the latest spinal cord injury news articles on our Facebook and Twitter feeds.

Posted Image Posted Image

We look forward to welcoming you to our community and reading your contributions and questions.
 
Simon
Forum Administrator.
 

Photo
- - - - -

Stomach Spasm In Bed Stopping My Breathing

fighting for breath



  • Please log in to reply
11 replies to this topic

#1 Izziwhizzi

Izziwhizzi

    Intermediate Member

  • Closed Account
  • PipPip
  • 594 posts
  • Gender:Female
  • Country:UK
  • Spinal Injury Level:c6 - complete

Posted 03 August 2012 - 06:44 PM

I'm currently having a lot of issues with my breathing being in distress - has anyone any thoughts?

I can just about function when sitting up without passing out but can't breath enough to talk. BP is 100/50 so acceptable for me - I've been a lot lower. No other cold symptoms like cough, runny nose, sneezing, but hubby and daughter have both recently had bad colds.

I can't inhale enough and am fighting for every gasp when I am in bed, the restriction coming when my legs and more painfully my stomach spasms. My stomach acts as if an alien is going to explode out of the centre, the sides contract and a hard rugby ball rises in the centre. At its worst when I am getting dressed etc. The pain and puffing is excruitating - imagine watching a pregnant woman going through a contraction - thats me when my legs spasm.

My doctor has sent me for chest xrays, started me on Baclofen and ventolin to take before I go to bed and try to relax me. After recently having cancer I am hoping the xray isn't going to show anything more serious. Bloods have all come back OK, no iron deficiency.

I'm a complete c5/6 tetra of 30 years whose legs have always spasmed hard and have never been floppy. When I go over cobbles they go out straight. I've not ever resorted to Baclofen either.

Any thoughts much appreciated.

I xx

#2 anomiepete

anomiepete

    Intermediate Member

  • Members
  • PipPip
  • 328 posts
  • Gender:Male
  • Country:England
  • Spinal Injury Level:T6 Complete
  • Injury Date:14-11-1978

Posted 03 August 2012 - 08:24 PM

I've no ideas that you haven't mentioned in your post Izziwhizzi but it must be driving you mad. I get strong spasms but not like you describe - I hope someone comes along with something useful for you.

#3 funkisfunkis

funkisfunkis

    Intermediate Member

  • Members
  • PipPip
  • 260 posts
  • Gender:Male
  • Country:Oslo, Norway
  • Spinal Injury Level:c6 incomplete
  • Injury Date:25-08-2011

Posted 03 August 2012 - 10:52 PM

I have similar experience. It happens when my legs stretch out in bed and sorta stretch spasm happens for 5 -10 seconds in legs and chest. When this is happening Im unable to talk or breath. Doesn't bother me that much cause its controlled. I might suggest higher dosage of muscle tranquilers like baclofen for instance. I use 80mg of baclofen daily otherwise my upper body would throw me out of the chair and legs would start kicking. But talk to your local doctor or specialist as this is something you must do cause it is a danger to your health. The stomach spasms are gross and I can relate to that alien thing being born.

Edited by funkisfunkis, 03 August 2012 - 11:05 PM.

Victoria Concordia Crescit-Victory comes through harmony

#4 davidsons

davidsons

    Member

  • Members
  • Pip
  • 78 posts
  • Gender:Male
  • Country:trinidad and tobago west indies
  • Spinal Injury Level:c5 c6 quad

Posted 04 August 2012 - 03:44 AM

hope u feel better

#5 NegativeEntropy

NegativeEntropy

    Intermediate Member

  • Members
  • PipPip
  • 171 posts
  • Gender:Male
  • Country:Carlsbad, CA, USA
  • Spinal Injury Level:C5-C6 incomplete
  • Injury Date:05-01-2000

Posted 04 August 2012 - 04:35 AM

I also get strong spasms when my legs stretch out. My legs start shaking violently. It only lasts for about 5 seconds or so. But when it happens my whole body spasms. I can't breathe or talk during that time. It feels like somebody is giving a huge bear hug. I'm like funkisfunkis in that it never bothers me. I just hold my breath and wait it out, often times the spasms are so strong I end up letting out a slight moan for the duration. Ha! If people heard me in the other room they'd probably think I was constipated and trying to force one out! Ha!

As far as treatment, I do take baclofen, not much though as I rely on my spasms. But marijuana does wonders for me. Went a little overboard the first time and went daaaaays with zero spasms.

#6 MTB John

MTB John

    Intermediate Member

  • Members
  • PipPip
  • 1,344 posts
  • Gender:Male
  • Country:New Zealand
  • Spinal Injury Level:C6, Incomplete
  • Injury Date:19-02-2010

Posted 04 August 2012 - 07:46 AM

Do you spend anytime lying on your stomach?
All the sitting down we do cause our abs to shrink which makes them more prone to spasm.
Lying on your stomach, a pillow or two under your chest for even better results, will stretch you abs as well as hip flexors and quads.
  • Nita Carling likes this
Out of the gloom a voice said unto me, "Smile and be happy, things could be worse." So I smiled and was happy and behold things did get worse.

#7 Baller95

Baller95

    Intermediate Member

  • Banned
  • PipPip
  • 1,059 posts
  • Gender:Male
  • Country:Ontario, Canada
  • Spinal Injury Level:Admin Note: Deliberate Breaking of Forum Rules

Posted 04 August 2012 - 01:55 PM

Like funkisfunkis and negativeEntrophy said, it lasts 5-10 seconds violently then relaxes a bit after

#8 Izziwhizzi

Izziwhizzi

    Intermediate Member

  • Closed Account
  • PipPip
  • 594 posts
  • Gender:Female
  • Country:UK
  • Spinal Injury Level:c6 - complete

Posted 04 August 2012 - 05:35 PM

Thanks guys for your kind thoughts and ideas.

I would love to be able to lie on my stomach, but thats not been possible for a while, although I have done so every day for 30 years to help stretch me out. I am wondering what state my abs are in. I've had 2 kids post injury, the last just over 9 years ago at over 20 years post injury, and had hoped they had stretched my remaining abs!! The alien stomach spasm was there though when I was pregnant, my obs consultant and I used to laugh at it as it would be as hard as my unborn babies head.

I wish it would only last 5-10 seconds, I could cope with that. It lasts between 2 and 5 minutes so I do have to breath and I am screaming with agony if you could hear me.

The longer its lasting the more paranoid I'm getting that the xray will have bad news, but I've got to think more positive waves.

I've just had a neat rum - my doc has recommended that I have a drink to help relax me - and has given me the breath to write this. Along with watching our fab girls just win gold in the velodrome!!

I xx
  • Nita Carling likes this

#9 brockit79

brockit79

    Advanced Member

  • Members
  • PipPipPip
  • 2,036 posts
  • Gender:Female
  • Country:UK
  • Spinal Injury Level:t10
  • Injury Date:27-07-2010

Posted 04 August 2012 - 05:54 PM

izziwhizzi, the breathing thing makes me think heart. meds that can affect smooth muscle such as some bladder meds work on all types of smooth white muscle tissue inc heart and lungs. any changes could change affect your breathing. get ticker checked out, any oedema in feet and legs? pm me if you like xxx
Neek me chawa, wermo, mo killie ma klounkee!

#10 Meadowlarkmark

Meadowlarkmark

    Intermediate Member

  • Members
  • PipPip
  • 175 posts
  • Gender:Male
  • Country:Salt Lake city Utah
  • Spinal Injury Level:C-4-C-5 partial quad

Posted 24 March 2013 - 02:36 AM

I am 47 years post injury, C4C5 incomplete quadriplegic, and all that time have never been bothered by severe spasticity. in the last year however it seems my whole body is changing. My spasms have become what I call severe to me. In particular I have got those major spasms that curled me up into a ball making it difficult to breathe… It does pass that frightens me. I too have started baclofen but hasn't done me much good. My doc says I'm at maximum dose. I just retired from employment and will begin a regimen of physically working out and hopefully the added physicality well help reduce my spasticity. Has anyone else seen a reduction of their spasticity due to physical activity are creased physical activity?



#11 Tetracyclone

Tetracyclone

    Super Advanced

  • Members
  • PipPipPipPip
  • 9,173 posts
  • Gender:Female
  • Country:Upstate New York, USA
  • Spinal Injury Level:C-5-7 incomplete
  • Injury Date:27-05-2008

Posted 24 March 2013 - 03:56 PM

 Mark,

yes, increased physical activity reliably decreases my spasticity.

 

Has your MD carefully checked for other ailments that might be triggering the spasticity?  I discovered last Nov. that low grade UTI had been the cause of most of my too-much-tone problem for several years.

 

Good luck with it- yeah it can be scary.



#12 NancyE

NancyE

    Intermediate Member

  • Members
  • PipPip
  • 1,796 posts
  • Gender:Female
  • Country:USA
  • Spinal Injury Level:T3 incomplete
  • Injury Date:27-01-2006

Posted 24 March 2013 - 10:02 PM

Sounds very scary. My spasms are pretty bad, or were before we added Zaniflex to Baclofen. They used to toss me out of bed occasionally . The worst ones I have now are from positional changes- stretching out in bed for the first time after being in chair, my legs go out straight and I spasm all the way up to where injury is, at T3 now, and it stops my breathing for an uncomfortably long time. New aids freak, thinking I am seizing. Old aids only freak when I start going blue around the lips. Yours sound horrible and I hope they find something that helps.
Reality continues to ruin my life. - Calvin and Hobbes


Spinal Cord Injury & Cauda Equina Syndrome Support

This website is a way for those with spinal cord injuries and cauda equina syndrome to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.