I have CES (Cauda Equina Syndrome), im 17 months in and my mobility is managed by spending some time upright on two crutches and the some of my time in my wheelchair.
I tend to have found a happy medium between the two..managing my muscle power by not walking too much and managing my pain by not pushing it too much. I am normally relatively comfortable (pain wise) but i do have a high pain threshold but i consider my pain level, on a 'normal' day to be relatively low, maybe 3/10.
My worse pain is nerve pain which i cannot control but can manage, to a degree, with medication.
So..to my point....in rehab once towards the end of therapy as i was due to leave rehab my upright mobilty was encouraged....in moderation at that time.
Every time i go back to my spinal unit im asked how far im managing to walk now on my crutches and am i still working hard...
I push myself and exercise as much as possible but every now and then i will take myself out of my comfort zone and try to spend more time on my crutches and walk more/further and every time i do this i suffer the consequences for doing so.
I have now come to the conclusion that i have to keep to my limits....i do not get stronger the more i walk....in fact i get worse.
The pain becomes inbearable in my lower back as if my back is seizing up and i then have to be more confined to my chair until recover and the pain starts to ease, which normally takes approx a couple of weeks at the best.
Consequently, my walking gait worsens and i become not as independent, transfers are hard work and getting out of bed etc is more difficult....basically all practical tasks are painful and uncomfortable.
I also notice that my muscle power in the muscles that have some power to them seem to tire and run out of power...and this never strengthens either with more walking or exercise or physio.....my gradings never increase now.
In fact when i went to rehab my gradings decreased due to pain i ended up in from standing too much and damn wobble boards which i hate with avengence lol ( i went to rehab 11 months post injury)
So..im wondering if in fact too much walking for us incompletes can be detrimental and does anyone else suffer this same problem?
all replies welcome!
Edited by Tatiana, 29 August 2012 - 09:06 AM.