Spinal Cord Injury Level Question

Spinal Cord Injury Level Question Newbie Question Rate Topic:

#1 rkzenrage

Member

Group: Members
Posts: 548
Joined: 10-October 06
Gender:Male
Country:Central, FL, USA
Spinal Injury Level / Relationship:L1-L5, S1, stenosis

Posted 10 October 2006 - 10:49 PM

I really did not know what to put... mine is not so simple. I have a birth defect that is from L1-5 and down into the S area, but also have injuries all through my spine. I have Osteoporosis and degenerative disc disease as well as a number of other problems like a severe stenosis of the epidural space (basically it is a birth defect like my lower spine and spinal cord), advanced arthritis, bla, bla, bla. There is no name for what is wrong with me, it is tied in with my hormonal system and other stuff like my liver.
I just don't want anyone to think I was being dishonest with my answer when signing-up.

Thomas Jefferson-
"If a law is unjust not only does a man have the right to disobey it, he is obligated to do so!"

#2 Alin Steglinski

Member

Group: Banned
Posts: 208
Joined: 25-September 06
Country:Palatine IL
Spinal Injury Level / Relationship:.Admin Note: Inconsitatant Claims

Posted 11 October 2006 - 12:59 AM

rkzenrage, on Oct 10 2006, 05:49 PM, said:

#3 bigsmiles

Member

Group: Members
Posts: 721
Joined: 01-June 06
Country:West Mids (uk)
Spinal Injury Level / Relationship: Friend is T6 / carer

Posted 11 October 2006 - 06:38 AM

rkzenrage, on Oct 10 2006, 11:49 PM, said:

I like honest people... Welcome mate :specool:

Nobody can make you feel inferior without your consent....Eleanor Roosevelt.

#4 LadyPilot

Member

Group: Members
Posts: 870
Joined: 11-June 06
Gender:Female
Country:England
Spinal Injury Level / Relationship:C7 Incomplete

Posted 11 October 2006 - 06:49 AM

You have a lot to deal with don't you?!!!

Welcome, I hope you get to enjoy this site as much as I do...... :yahoo:

Any questions? just ask :type:

If you don't want to die, your life still has meaning.

#5 cvelusc

Member

Group: Members
Posts: 216
Joined: 16-August 06
Spinal Injury Level / Relationship:T1

Posted 11 October 2006 - 12:47 PM

Welcome to the site rkzenrage!

#6 rkzenrage

Member

Group: Members
Posts: 548
Joined: 10-October 06
Gender:Male
Country:Central, FL, USA
Spinal Injury Level / Relationship:L1-L5, S1, stenosis

Posted 11 October 2006 - 06:05 PM

Thank you all for your welcome. I have been feeling a little apprehensive about trying sites again.
My first attempt last year did not go well.
I was, in not so many words, asked to leave, since I can walk short distances and am not confined to my chair at ALL times.
Kinda' why I wanted to be sure that I was VERY clear about my condition and make this thread, so no one felt that I was being unclear.
I was not intentionally unclear on the other site. I have to use the chair a lot and cannot leave the house without it and use it in my home a great deal. If not in the chair I use a walker or cane (on a REALLY good day) just to go to the bathroom, etc, but not to do any real traveling.
Apparently, they only wanted to speak to those who were strictly confined to chairs 100% of the time and seemed pretty ticked that I had joined their site.
I read your description and that did not seem to be the case here.... so I just wanted to be clear.

I've been sick for a long time. It gets pretty lonely. I'm in a weird place. My ribs break if I push a regular chair, so I have to use a power chair, but I can get up and go to the restroom or get a drink if I need to.... so no one really looks at me as able or fully quad. I have no community, no sangha. It has been years.
Do you suppose this may be the one for me?
If not I will understand and there will be no hard feelings.

Thomas Jefferson-
"If a law is unjust not only does a man have the right to disobey it, he is obligated to do so!"

#7 Avocado Baby

Member

Group: Members
Posts: 620
Joined: 25-May 06
Gender:Female
Country:Newbury, Berkshire. UK
Spinal Injury Level / Relationship:T8(ish) Spina Bifida

Posted 11 October 2006 - 07:28 PM

Hi! Of course you're welcome here! :mfromg:

Just cos you don't fit into a particular 'category' doesn't mean that we can't share experiences and views on things. We all have our differences but there are lots of issues we share and can help each other out with! I have Spina Bifida, so mine is a birth defect and not an injury either and everyone has been very welcoming! :icecream:

I hope you like this site as much as I do. It's been a great help to me!

Paraplegic with Spina Bifida. Sensory and function level is T8. T11-L5 fusion 1993. Laminectomy and decompression T10 2006. Spinal fusion T8-T12 with instrumentation Feb 2007. Moderate kyphoscoliosis. Taking 75mg Lyrica 3xday for neuropathic pain.

#8 rkzenrage

Member

Group: Members
Posts: 548
Joined: 10-October 06
Gender:Male
Country:Central, FL, USA
Spinal Injury Level / Relationship:L1-L5, S1, stenosis

Posted 11 October 2006 - 07:53 PM

Whew...
Thank you very much for your kindness.

Thomas Jefferson-
"If a law is unjust not only does a man have the right to disobey it, he is obligated to do so!"

#9 Joed

Member

Group: Members
Posts: 1,283
Joined: 30-August 04
Country:US of eh/Indiana
Spinal Injury Level / Relationship:Incomplete para

Post icon Posted 11 October 2006 - 11:36 PM

Hi rkzenrage....and welcome! :lol:

I'm a part-time walker too, and no one has kicked me outta here yet.

It's hard for people in our 'in-between' condition to find a place where we really fit in. I'm glad I found this site two years ago, as the forums where I had been posting were mainly people with disk issues...and although they were a good group, I wasn't able to get the kind of info/feedback that I really needed.

I hope you'll find this place as useful and supportive as I have.

This post has been edited by Joed: 11 October 2006 - 11:37 PM

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Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.