[faithdude]

Hi!
I'm not used to being in a place that's got freezing temps, blustery cold breezes, frozen rain, and bucco snow. I'd move in a heartbeat outta here if were possible. I'm not able to move at least for now.

Before this newest disability occurred my way, I had lived a decade in a state where I was able to wander around all winter in shorts and tshirt. I owned a jacket, but down there I rarely wore it.

Now, wow. I'll be living my first "white snow winter" for the first time in about 12 years. I'm already paying a big price. My pain level is through the roof at times due to the cold. And now, I either walk slower than a turtle the 25% of the time I do walk, or I'm out in a wheelchair laboriously freezing my tail off going point A to B in a manual wheelchair one-handed. Between the freezing cold and pain, my spasticity is outta control.

I seriously doubt I'm the only one in this situation. So, what do you do? I sure don't want to jack up the baclofen pump level if I can help it. So all ears, advice/ feedback?

Faithdude

[lori2050]

Don't have any suggestions but I get stiffer when it is really cold. Any change in weather can be an issue and I am in NC and it doesn't get really cold.

Lori

[Shadybug]

HI ;
My son is disabled, and we live in a burr butt cold area in Oregon. He has spina bifida, and I am disabled too, and the weather does make the pain worst. He goes in for his baclofen pump surgery on January 17th, he just came in to his teen yers, and he's a little scared. " and so am I " Anyway if it wasn't for heating pads, hot water bottles, warm massages, and a tens unit he, and I, wouldn't be able to walk, or move in the winter. I've seemed to notice that my son has more problems, and pain from the dampness due to Oregons famous rain, more so than the snow, or ice. Well I don't know if you've tryed the heating pad ect... that I listed above, but if you haven't it's worth a try.
Good Luck, and stay warm !

Shadybug




Hi!
I'm not used to being in a place that's got freezing temps, blustery cold breezes, frozen rain, and bucco snow. I'd move in a heartbeat outta here if were possible. I'm not able to move at least for now.

Before this newest disability occurred my way, I had lived a decade in a state where I was able to wander around all winter in shorts and tshirt. I owned a jacket, but down there I rarely wore it.

Now, wow. I'll be living my first "white snow winter" for the first time in about 12 years. I'm already paying a big price. My pain level is through the roof at times due to the cold. And now, I either walk slower than a turtle the 25% of the time I do walk, or I'm out in a wheelchair laboriously freezing my tail off going point A to B in a manual wheelchair one-handed. Between the freezing cold and pain, my spasticity is outta control.

I seriously doubt I'm the only one in this situation. So, what do you do? I sure don't want to jack up the baclofen pump level if I can help it. So all ears, advice/ feedback?

Faithdude
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[cdngrl]

i live in canada ... need i say more ... the best way to fight the cold warm fire cuddly cat and a good blanket but since we all can't be hermits i find the 2nd best way to beat the cold is a "magic bag" i make my own to fit my lap. I take two peices of cotton and fill it with flax seeds sew them together than there you go...