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What Does Your spinal cord injury Feel Like?

sensation feeling



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#1 LittleLAM

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Posted 18 October 2013 - 05:26 AM

I suffered a spinal stroke during spinal surgery in May. Since then, my legs always feel as if they are asleep. I don't notice any sensations at all unless I move them. Then I notice that tingling feeling in my legs, and my feet feel as though they have something wrapped around them, "binding" them. It is the weirdest feeling, especially when the dog jumps on my legs, or I have my shoes put on. This is all still very, very new to me and I am curious to know what SCI feels like to others and if any of the feeling changed over time.

 

I truly thank God for this site. I am learning so much and laughing more than I have in a long while!

Thank you!!!


What you've just said is one of the most insanely idiotic things I have ever heard. At no point in your rambling, incoherent response were you even close to anything that could be considered a rational thought. Everyone in this room is now dumber for having listened to it. I award you no points, and may God have mercy on your soul. --Billy Madison


#2 nowave

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Posted 18 October 2013 - 08:30 AM

I'm quite new to spinal cord injury too - to start with my legs ached, burned and tingled all over - the joints were sore too.

Now they feel almost normal - so the feelings can and often do change over time. 



#3 Tetracyclone

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Posted 18 October 2013 - 01:49 PM

Your sensations are common ones.  It takes several years for those sensations to not feel alarmingly different.  As memory of normal sensation recedes this will feel ordinary.  the new normal.   :lol:



#4 D. Smith

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Posted 18 October 2013 - 04:48 PM

Aye, I have the binding anf tingling all the time so its just become a new norm.
When in Rome, go naked! --xbox360 tag: Ice764
-- You have to crawl before you walk; You have to slide before you depress; You have to love before you live. --

#5 The Black Sheep

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Posted 18 October 2013 - 05:24 PM

My lower half feels completely normal, I think. I don't realize the lack of temperature or pain sensation unless my hands are cold or warm and I set them on my belly or legs. Only then I'm reminded that I can't feel those things from the chest down. Pressure is normal, so when I touch my skin, light or soft, it's the same as I would feel on my arms or neck. I don't have tingles or numbness, or pain, although I feel uncomfortable pressure when I sit too long, or if I have a fold in my clothing that I'm pressing on. When my legs get stiff and tighten, the arch of my feet tickle and my toenails feel like they're constantly snagging on my socks... but they're not.

 

I'm most grateful that I don't feel pain. I've dropped many-a-boiling-items on my lap and I'm rather glad I don't have to feel the pains of my stupidity. Or neuropathy. Or any type of pain for that matter.


3 doctors diagnosed me with hysterical paralysis (weee!), 1 diagnosed an incomplete T7, another T2 and the last (and most accurate) T5. Trampolines are BAD. Sleep is unpredictable. And never kiss strangers. Life has moved on.

#6 NancyE

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Posted 18 October 2013 - 09:07 PM

I have the binding feeling and lots of burning, no pins n needles since the accident- I had a degenerative problem that caused the fall that caused my SCI. I had been praying that God relieve me of the horrible sciatic pain, if it was his will.....be careful what you pray for. ( Less this cause controversy, I think the fall was a natural by product of my degenerative condition, not that God shoved me down to fix the pain. He could, I just doubt he did ) Anyway, I actually have less pain now than I did then. My sensation is different in different areas. I dont feel temperature, but this somehow causes me to feel cold often. I feel pressure, but not needles. The podiatrist has removed two toenails without numbing me up, and I didnt feel it. Had I watched however, I am sure I would have. My nerves sometimes accommodate my expectations. I did feel a dull ache later, not enough to bother me. The nerve pain doesnt really bother me during day, or while reading, but when I lay still and try to sleep they are annoying. Sorry such a long answer, but...its complicated. 


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#7 Millard

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Posted 18 October 2013 - 09:18 PM

It looks like all the physical descriptions are covered.  Now from a psychological man's point of view, it's like getting kicked in the groin over and over.


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Millard
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#8 LittleLAM

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Posted 19 October 2013 - 05:10 AM

This is all very helpful. Outside of this site, I don't know anyone else with a sci, so I don't know if what I'm feeling is "normal" or not. It seems it is. I guess the upside to what I  feel now is that I no longer have the searing pain in my legs that I used to have due to fractures from my bone disease (x-linked hypophosphataemic rickets). The strangest (and often most humorous) thing is when I find out I've been lying or sitting on something and didn't even know....like a hairbush (with the bristles digging into my legs) or my dressing stick!!! Um, yea :::giggle::: :doh:


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What you've just said is one of the most insanely idiotic things I have ever heard. At no point in your rambling, incoherent response were you even close to anything that could be considered a rational thought. Everyone in this room is now dumber for having listened to it. I award you no points, and may God have mercy on your soul. --Billy Madison


#9 Aaron Watkins

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Posted 20 October 2013 - 06:07 AM

Your sensations are common ones.  It takes several years for those sensations to not feel alarmingly different.  As memory of normal sensation recedes this will feel ordinary.  the new normal.   :lol:

I don't want it to be the new normal. I really don't. God.



#10 Tetracyclone

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Posted 20 October 2013 - 01:01 PM

 

Your sensations are common ones.  It takes several years for those sensations to not feel alarmingly different.  As memory of normal sensation recedes this will feel ordinary.  the new normal.   :lol:

I don't want it to be the new normal. I really don't. God.

 

Two problems with rejecting your body- it feels bad (depressing, low-energy, bleak), it hears your thoughts and lives down to your thought.


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#11 Aaron Watkins

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Posted 20 October 2013 - 10:43 PM

 

 

Your sensations are common ones.  It takes several years for those sensations to not feel alarmingly different.  As memory of normal sensation recedes this will feel ordinary.  the new normal.   :lol:

I don't want it to be the new normal. I really don't. God.

 

Two problems with rejecting your body- it feels bad (depressing, low-energy, bleak), it hears your thoughts and lives down to your thought.

 

You're right. I was just having a bad day.



#12 Tetracyclone

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Posted 21 October 2013 - 12:26 AM

 

 

 

Your sensations are common ones.  It takes several years for those sensations to not feel alarmingly different.  As memory of normal sensation recedes this will feel ordinary.  the new normal.   :lol:

I don't want it to be the new normal. I really don't. God.

 

Two problems with rejecting your body- it feels bad (depressing, low-energy, bleak), it hears your thoughts and lives down to your thought.

 

You're right. I was just having a bad day.

 

I do hope today is better!  and tomorrow.





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