[quadrugby]

just wonderin if other people piss themselves frequently and how do u prevent it

[Ironside]

Are you talking about people who wear condom drainage? If so yes, I piss myself occasionally. Normally when I am sitting in front of the computer and forget to check my bag. I always check to make sure that the sheaths have been put on properly so it is quite rare that they actually go wrong. Having said that, sometimes you can have one that looks absolutely perfect and it will still leak so sometimes there is absolutely nothing you can do to stop accidents happening.

[In The Wind]

Yeah, describe what you mean with a little more detail. Do you know that you need to go? Or are you blowing condoms off?

There can be different solutions depending on what the problem is...

[RYAN68]

happens way to much for me...i self cath, so its hard to tell when you need to go, all depends how much you drink, and when the last time you cathed... it sure sucks getting your jeans all wet, especially when your out in public, or waking up in the morning soaked

[quadrugby]

i am a complete injury so i can kinda tell when i have to go.. i also straight cath and am tired of pissin my pants out in public

[Texaswheelz]

I straight cath also and I did get tired of it, but it was my own fault 90% of the time. I can normally tell that I need to go, hard to explain how, just a feeling I get that if I don't get to the bathroom soon then I'm going to need a shower soon after. Since I started paying more attention to this "feeling" I've had less accidents, as in it's been over a year since my last. I used to would get the feeling and think hmm I probably better go soon, and 2 minutes later I'd be wet. Now I get that feeling and I think hmm, I have to go right now. Sadly I'm not always in a place that is accessible, but I try to minimize the time I spend in such places as much as possible and always find the closest accessible bathroom before I go and normally take a wiz before I go to minimize me needing to while there. I never drink much of anything when I do go out where there is going to be more then 1-2 minutes for me to get to the bathroom and almost never drink alocohol anywhere but home these days.

[In The Wind]

I wear a condom cath and a legbag when I go out. And I wear shorts most of the time so really there isn’t a need to be getting wet when you’re out in public.

I normally don’t use these at home because I can hold and release urine to a point but I don’t get much warning when I need to go.

So that’s what it sounds like you might try is wearing a condom cath. Get the self adhering type, not the kind with the tape strap.

[keeptrukin]

Well it sounds like all men here but i'll put my 2 cents in. I can't tell when I have to go no feelings at all. I cath myself every 2 hours and still have to wear a diaper. I am on vesicare pills to help stop contractions but am getting my bladder test done tommorrow with hopes of getting scheduled for a super pubic cath. My urologist lets my put a foley in once in a while to ease my suffering and I wear the leg bag, which always seems to spring a leak. I can't wait till I get the surgery.

My suggestion is if you are not on any anti-bladder spasm medicine to posible talk with a doctor about it, it does help with the leakage at least for me.
Another suggestion if your a guy is to get the condom cath, like the others are describing. That from what I've heard works and helps stop the accidents alittle.

Pissin on yourself sucks and getting up in cold urine sucks, diapers don't hold crap. So I feel with you.

Hope you can figure something out.
KT

[chairman]

Hi to all.
I sometimes have a problem with my stick on condom catheter coming off, i do find it very embarressing and ruinins my day. Like Texaswheelz i have very little warning so i am always looking for toilets and if i cant find one, say stuck in traffic, this makes me nervous, and then i need to go badly. Some thing else that happens to me at night is that i dream im weeing then i wake up bursting for a pee or, often the case, peed the bed. Does this happen to anyone else?

[In The Wind]

My nightly output is about 2 liters on average and I have awaked in the morning to find myself floating in urine literally from my ears to my knees. Not much fun.

I have found that when applying the condom to;
Wash and thoroughly dry my penis
Apply a skin barrier film
Then shake the little bastard until an almost full erection is achieved
Then roll on the condom and squeeze my penis for 30 seconds or so

Using this technique I’ve almost stopped all accidental leaks. The only thing I’ve had to be careful for are blow-offs and most of them seem to be because the leg bag flapper is folded so I’m careful about how I place the bag when I wear shorts…

For me, using things like ditropan or some of the other bladder control drugs does help with the leakage but makes my AD much worse, so I don’t use them…..

[quadrugby]

where can i order these condom caths from?

[keeptrukin]

quadrugby, on Nov 9 2006, 02:53 PM, said:

where can i order these condom caths from?

It depends on location, in Maryland they no longer have them in medical supply stores they have to order them. I get alot of my incontenance supplies through catalogs. You can go on the web to any online supply store and by them. Or if you get a script from your doctor you can have a local medical supply store order them for you. There is usually a minimum if you order via online, not sure if it's the same from a local supply. I use this online site alot for replacement leg bags.(http://www.allegromedical.com) They vary in price depending on what you want but range around a dollar per cath.

I hope this helps.
KT

[In The Wind]

Yeah you should be able to get them just about anywhere that handles medical supplies. I get all of my monthly supplies through the shepherd center and they bill Medicare for them. I have a friend who just happens to have a few thousand of them that he has been selling for the cost of shipping; it’s about 100 in a box for $10. They are the 28mm medium “Freedom cath” from Mentor. I’ll be happy to put you or anyone in touch with him if you wish… They are OK, but I prefer the “Ultraflex” by Rochester.

[mulepower]

I don't know why urologists don't have good solutions for incontince and i don't understand why pills like ditropan don't help that much. I thought about going back on entex but it makes me so nauseous i can barely eat and stay sick on my stomach.


When i'm in bed i have to cathe about every hour. While i'm sitting up, a lot less comes out and i go less frequently. Estimating when to go can really be frustrating.

Waking up soaked with diapers all over you is something i'm never going to get used to. Its bad enough i got sleep apnea.

Its good to find others with the same problems.

[exojam]

I always base when I have to go on time, usually around every four hours or by how much I drink. After 6 years in a chair I can usually tell by how much I drink when I need to go. I self cath so if I am going to be doing something where I have to bend over allot I always go so when I bend over and place pressure on my stomach I do not get wet. Also, if by chance I am not paying close attention to the time, my spasms start kicking in as a warning. I also stop drinking large amount of fluid around 9:30 at night so I do not leave large amount in me while sleeping.

[studinchair]

hey i was pissing myself right from the start of my accident anytime i tried to transfer or moved a little i would piss all over myself. I had a surgery called " the male satmey " surgery. It is something where they tighiting something up downthere and i have not pissed myself since. I know it sounds bad but, sometimies when i do forget or at a game i will go up to 10 hours without pissing and still have no problems. If anybody is even thing about this i would love to tell you more about it. i was having to wear a diaper just to make sure it didn't show when it happnned, This surgery really changed my life. I wasn't afraid that when i went to a concert or a ballgame that i might piss myself in front of my friends....now if i could just get hard and get myslef back on a motorcycle i could carless about being paralized. i live outside chicago and this is where i had the surgery...
gary

[Joed]

I had the Stamey procedure too, back before the surgeries that resulted in my paralysis. It worked great for years, but since my paralysis it's not as dependable. I think most of that is my own fault, as I don't cath on a schedule, as much as cathing when I feel my bladder is full....which is often too late.

The Stamey procedure basically just uses a clip to hold the ureter in such a way as to put a kink in it, which provides a better counter-pressure against the urine in the bladder. That's how it was explained to me.

I wonder if this clip can become 'undone' over time, and how would they go about finding out if it had? I've had mine since '91, or somewhere thereabout....is there such a thing as a 'maintenance check' on these things?

[studinchair]

yeah he told me that in about 5+years i might need to come back in to retighting the hold

[Joed]

Thanks for that info, studinchair.

I need to be asking about that on my next visit then.

[John Anderson]

Like Ryan, I self cath too, but you just never know when to empty the tank and what not. (If you go to a party and just drink all out...you better watch out )

I hate it when I wake up and the bed is wet, that's not as bad as when I try to talk to girls or something and it just, you know, happen...talk about being stupid.

[RYAN68]

Well I kinda got it figured out...I put a indwelling catheter in, and just hook a tube and run it down the inside of my jeans, there is a valve at the end of the hose down by my boots...so depending what I'm drinking so i either just go outside wherever I'm at or into the bathroom and put my leg up on the toilet and open the valve....so that so far has ended my unexpected leaks when I'm out and about... but occasionally i still have an accident w/o it, but that is usually my fault