Jump to content


Welcome to the Apparelyzed Spinal Cord Injury and Cauda Equina Syndrome Support Forum


Sign In  Log in with Facebook Log in with Twitter

Create Account
Welcome to Apparelyzed, an active and vibrant spinal cord injury and cauda equina syndrome support forum. Like most online communities you must register to view or post in our community, but don't worry this is a simple free process that requires minimal information for you to signup. Be apart of our spinal cord injury support community by signing in or creating an account.
  • Start new topics and reply to others
  • Subscribe to topics and forums to get email updates
  • Get your own profile page and make new friends
  • Send personal messages to other members.
  • Talk to others in real time in the Chat Room
We look forward to welcoming you to our community and reading your contributions and questions.
 
Simon
Forum Administrator.
 

Photo
- - - - -

Chance Of Recovery To Regain Control Of Bladder




  • Please log in to reply
19 replies to this topic

#1 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 04 April 2005 - 02:40 PM

Anyone knows whats the % chance of recovery for the regain control of bladder and bowels after a spinal cord accident?

I got an L3 and L5 spinal cord burst fracture 2 years ago and still not regain the function. Is it lost forever?

#2 AHolland

AHolland

    Intermediate Member

  • Members
  • PipPip
  • 331 posts
  • Gender:Male
  • Country:Canada
  • Spinal Injury Level:T3/T4/T5 complete severe

Posted 04 April 2005 - 08:51 PM

Sorry, but I have nothign to add. I am looking into the same issue.

I am a T4 and had perfect bladder control until my first and only bladder infection. At that time I lost bladder control and even though the infection is over, I have not regained it. It is something I am looking into and will psot here if I come up with anything.

I have had any issues with bowel control. If anything I get stuffed up instead.

My general doctor did warn me that I may lose both bladder/bowel control from the infection and not ever regain them, but he is really not well versed in these areas so I am going to a specialist on April 20th for a better read on the situation.

As a quick update, I have not regained bladder control after 8 months. The bowels are much more unpradictable as well. The specialist had nothing further to offer.

Edited by AHolland, 30 November 2005 - 11:53 PM.

T4/T5

#3 Joed

Joed

    Intermediate Member

  • Members
  • PipPip
  • 1,284 posts
  • Gender:Female
  • Country:US/Indiana
  • Spinal Injury Level:Incomplete para
  • Injury Date:04-29-1959

Posted 04 April 2005 - 10:19 PM

Popsune....
During my research for 'tethered cord syndrome' a couple of years ago, I ran across an article that stated after a tethered cord release, any resulting loss of bowel control is more likely to be eventually regained as opposed to any loss of bladder control. I can't remember what time frame this recovery fell into, though. And now I can't find that particular article. I'm still looking...hopefully I'll find something that might shed some light on your particular question.

Although it's a different medical condition...a tethered cord does usually involve the lumbar/sacral region.

Would you be able to do Kegel exercises? That may help in retraining any latent function you still have, but just aren't able to presently access fully due to atrophy, etc.

AHolland....
I'm so sorry that you've experienced these losses after a simple bladder infection! I can't help but think that something can be done...I'm glad you're seeing a specialist soon. BTW, constipation can also be a symptom of neuro deficit, affecting the natural muscle contractions of the bowel (peri-stalis (?) or something like that) to move material through efficiently, the biggest risk being possible impactions/obstructions. Usually a good natural stool softener, not a laxative, used regularly will prevent any problems with that. Over time, the stresses placed on the bowel from chronic constipation could distend the bowel to the extent that it becomes harder for it to effectively contract enough to move material through it. Not trying to scare you or anything, because it's really something that can be prevented easily, and certainly much more minor a problem than loss of actual control. I just thought I'd pass that info along to you.
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#4 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 05 April 2005 - 11:17 AM

The problem is that my penis and my anus region are all numbed still after the 2 years after the accident so its ever since after the accident, the control functions never return.

#5 Joed

Joed

    Intermediate Member

  • Members
  • PipPip
  • 1,284 posts
  • Gender:Female
  • Country:US/Indiana
  • Spinal Injury Level:Incomplete para
  • Injury Date:04-29-1959

Posted 05 April 2005 - 08:06 PM

Popsune....

Have you experienced any improvements? Such as increased 'urge sensation'? Or the ability to even start a urine stream on your own?

I know it can be very disheartening waiting for improvements to happen...not knowing if they will or not. I too, am two years post-injury (this Aug. will be two years). Personally, I'm using the three year mark as my point of assessment for improvements.

And not meaning to give any false hope here, but there have been cases of patients, who suffered a spinal cord stroke(lack of blood supply to cord), that regained significant mobility function as well as increased bladder/bowel function, as long as five years after injury. In some rarer cases, even longer.

My personal mantra...and I doubt that I'm alone in this...is to never lose hope. I try to remain realistic and prepare for the worst outcome, but my hope for improvement will always remain very much alive.
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#6 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 06 April 2005 - 09:05 AM

Popsune....

Have you experienced any improvements? Such as increased 'urge sensation'? Or the ability to even start a urine stream on your own?

I know it can be very disheartening waiting for improvements to happen...not knowing if they will or not. I too, am two years post-injury (this Aug. will be two years). Personally, I'm using the three year mark as my point of assessment for improvements.

And not meaning to give any false hope here, but there have been cases of patients, who suffered a spinal cord stroke(lack of blood supply to cord), that regained significant mobility function as well as increased bladder/bowel function, as long as five years after injury. In some rarer cases, even longer.

My personal mantra...and I doubt that I'm alone in this...is to never lose hope. I try to remain realistic and prepare for the worst outcome, but my hope for improvement will always remain very much alive.

I have the urge to urinate, but the peins is numb, the bladder cannot control the opening.

I can ejaculate sperm though, I think this ability was not lost from the beginning.

#7 PinWheel

PinWheel

    Member

  • Members
  • Pip
  • 13 posts

Posted 21 April 2005 - 04:54 PM

hey, i tried to look for some stuff over the internet...these might help you figure things out:
http://www.cnn.com/H...y/DS/00460.html
http://www.cureparal...pring/VIII.html
http://www.jyi.org/v...res/shobab.html
well, these are some of the best of what i could dig up...hope it helps. :D

#8 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 30 November 2005 - 10:22 PM

hey I've started to regain some of bladder control today. I've actually felt some very warm and hot sensation and be able to pass out urine but not all. Will I be able to gain full control? This is very good news.

#9 Joed

Joed

    Intermediate Member

  • Members
  • PipPip
  • 1,284 posts
  • Gender:Female
  • Country:US/Indiana
  • Spinal Injury Level:Incomplete para
  • Injury Date:04-29-1959

Posted 30 November 2005 - 11:22 PM

This is good news! B)

And this is probably one of the few places one can go and celebrate 'going potty'. :angry: :D

But don't go getting all full of yourself, like I did years ago when I had some return to bladder function. I stopped cathing altogether, but my bladder wasn't emptying effectively, even though it felt like it was. Just be sure and continue to cath to empty the bladder effectively and avoid infection.

I hope improvements continue...
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#10 AHolland

AHolland

    Intermediate Member

  • Members
  • PipPip
  • 331 posts
  • Gender:Male
  • Country:Canada
  • Spinal Injury Level:T3/T4/T5 complete severe

Posted 30 November 2005 - 11:55 PM

I wish I could be as lucky. You may find improvements for a number of years after you trauma. Keep your fingers crossed.
T4/T5

#11 *Guest*

*Guest*
  • Guests

Posted 01 December 2005 - 07:09 AM

Hey although I''ve regain partial bladder control, there is not much regain of feelings at the numb areas yet.

#12 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 01 December 2005 - 07:43 AM

Hey although I''ve regain partial bladder control, there is not much regain of feelings at the numb areas yet.

Sorry this is my post, forgot to log in..

#13 popsune

popsune

    Member

  • Members
  • Pip
  • 94 posts
  • Spinal Injury Level:L3 L5 Burst Fracture

Posted 01 December 2005 - 07:44 AM

Hey actually I've only regained partial control today, 2 years 8 months after my accident and loss of control.

#14 AHolland

AHolland

    Intermediate Member

  • Members
  • PipPip
  • 331 posts
  • Gender:Male
  • Country:Canada
  • Spinal Injury Level:T3/T4/T5 complete severe

Posted 02 December 2005 - 12:22 AM

Hi Joed,

I should have added that I am playing around with a number of new medicines and they are adding to my constipation problems. I'm also going to be a guinea pig for a new pain medicine (doctors here have never used it, I'm the first) which will probably screw me around in the bowel department. I dont know why, but I seem to be quite sensitive to new medicines. Each time I try a different med, it throws my bowels for a loop. Eventually things settle down.

Popsune you should be aware that changes in meds also affect a percentage of people in their bladder as well. I don't think this is really the case for you as "feeling" seems to be more of an issue, not bladder control.
T4/T5

#15 Joed

Joed

    Intermediate Member

  • Members
  • PipPip
  • 1,284 posts
  • Gender:Female
  • Country:US/Indiana
  • Spinal Injury Level:Incomplete para
  • Injury Date:04-29-1959

Posted 02 December 2005 - 12:43 AM

AHolland...

My system seems to be ultra sensitive too...but it's the other way around...the laxative type of remedies throw my body for a loop. With me, a little goes a loooong way. In hospital and rehab, they were Milk-O-Maggin' me to death. My neuro finally told them to stop giving it to me and give my system a chance to at least attempt to return to 'normal'. I swear they were trying to kill me. :D

I am playing around with a number of new medicines


Now, now...didn't your mother ever tell you not to play with your mediciine? :) :D

And the very best luck with the new Rx. God knows it's about time to find a pain killer that works for you. I'll be keeping my fingers crossed.

Edited by Joed, 02 December 2005 - 12:44 AM.

* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#16 EDD

EDD

    New Member

  • Members
  • 1 posts

Posted 02 December 2005 - 03:16 AM

Anyone knows whats the % chance of recovery for the regain control of bladder and bowels after a spinal cord accident?

I got an L3 and L5 spinal cord burst fracture 2 years ago and still not regain the function. Is it lost forever?

What ever you get back in the first 6 months is all you are going to get. I.m a L 1 complete and what i had from the day of my accident is all i got to this day, i dont mean to be pesimestic but forget about it because its gone.

#17 joisliniad

joisliniad

    Member

  • Members
  • Pip
  • 86 posts

Posted 02 December 2005 - 03:33 AM

I disagree with EDD, I know by experience, that some people regain control and function of certain abilities after past time longer than 6 months...
Again not all cases are the same, but being pesimist is not the best in sci, you should always prepare for the worse, and hope for the best....

#18 studinchair

studinchair

    Member

  • Members
  • Pip
  • 60 posts
  • Country:Hammond Indiana
  • Spinal Injury Level:T-6

Posted 02 December 2005 - 03:58 AM

i just wasnted to add that i had real bad leaking when I first got hurt so I had a surgery at northwestern memorial called Male stamey. It has worked very well and i would recommend it to anyone.
gary

#19 Joed

Joed

    Intermediate Member

  • Members
  • PipPip
  • 1,284 posts
  • Gender:Female
  • Country:US/Indiana
  • Spinal Injury Level:Incomplete para
  • Injury Date:04-29-1959

Posted 02 December 2005 - 04:29 AM

Gary...

I had the Stamey procedure done in '91. I can't say whether it improved things or not, as I have tethered cord and my progressive symptoms from that coincided with the surgery.

Have they ever checked to see if your clip is still holding? I've often wondered, in the event that it slipped or failed, would they go back in and repair or remove it altogether? I was never told to follow up with any monitoring...were you?
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#20 studinchair

studinchair

    Member

  • Members
  • Pip
  • 60 posts
  • Country:Hammond Indiana
  • Spinal Injury Level:T-6

Posted 02 December 2005 - 02:38 PM

as far as i know as long as you don't have any problems you don't have to go back. My surgery was a gift from god everytime i transferd or did any kind of activity i would leak all over myself. i would have to were this big ass diaper. the surgery has held up really well and I just self-cath every 4-6 hours, now if i could stop the uti's i would be in great shape.
gary


Spinal Cord Injury & Cauda Equina Syndrome Support

This website is a way for those with spinal cord injuries and cauda equina syndrome to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.