1 reply to this topic

[hugi]

Greetings,

I am a 40 year old C5 incomplete that is almost 15 years post injury. I have been in excellent health beyond the occasional cold or UTI. The past few days, I have been getting throbbing headaches whenever my legs spasm or there is much stimulus below the waist. This includes such activities as pulling up/down my pants, washing myself, bowel program or slight movement of my suprapubic catheter.

I went to the ER and they assumed I had an obstruction in my catheter. They changed the tube. They also ran an urinary culture, which came back fairly significant infection, gave me 10 days of Levaquin and sent me on my way.

I've been taking 20MG of Baclofen 3 times a day. This has worked quite well for me. My spasms have not increased or decreased over the years. This headache thing is new and I don't have a clue as to what it could be or who I should go see. I have had UTIs before and they never came with this throbbing headache.

The headache is very similar to one I would get if my urinary tract was plugged up.

Any suggestions or has anyone ever heard of such a thing?

Thanks for any replies.

[LadyPilot]

hugi, on Dec 9 2006, 04:43 PM, said:

Greetings,

I am a 40 year old C5 incomplete that is almost 15 years post injury. I have been in excellent health beyond the occasional cold or UTI. The past few days, I have been getting throbbing headaches whenever my legs spasm or there is much stimulus below the waist.

It sounds as though you are experiencing Autonomic dysreflexia. Click on the link below for more informaton.

Autonomic dysreflexia

I routinely carry a Nitrolingual pumpspray (glyceryl trinitrate) to use if I suddenly experience AD. It will lower your blood pressure and thus relieve the severe headache. Ask your GP to prescribe one for you.
Hope that helped.