The Loneliness Of Disability
#1
Posted 13 December 2006 - 07:44 PM
Since becoming SCI of course some friends have vanished and most just dont get it. I feel as if my own personal points of referance have changed completly, perhaps I just dont have much in common with people anymore.
So anyway I dont know why I posted this, there isnt an answer, Ive tried all the usual joining stuff but to no avail. Its not like Im after thousands of friends, its just Id like one or 2 I could meet for a chat and coffee once a month, thats all. Anyone out there in the north who would like to make a date?
#2
Posted 14 December 2006 - 01:02 AM
The fact remains that I have dozens of "Hi how are you" friends but no one that I spend any time with and I think that it does have to do with how I relate to people now and how they relate to me.
I think it would be easier for people who didn't know me before to get to know me now rather than trying to relate to the before and after, one reason being, all that people who know me talk to me about is my situation because.....when they see me, that's all they they see now, me in this chair, not at all who I was.
And, when I need to talk to someone who "gets it", I come here. Just like now. You and I know exactly how we are feeling and what the chair has to do with it.
Sure wish I could come have a cup of coffee with you!
**Life is indescriminate in it's suffering.
***"Worry looks around, sorry looks back, faith looks up."
#3
Posted 14 December 2006 - 03:23 AM
that's hard to do because, of course i have needs i want met in a friendship. but those will hopefully come if a real friendship develops. of course, we have to be alert to not get trapped in friendships that are all about one person and totally disregard the needs of the other.
maybe being disabled means you have to over compensate to show others that, yes, you have alot to OFFER as a friend. meet people at their need first and then your needs will be met.
i think being someone who has gone through some pretty heavy life challenges like injuries (or birth defects), makes a person stand out more than just physically. we've seen life from a different angle and dealt with stuff most people avoid or are afraid of. i think that can be intimidating to many but awesome and inspiring to others. i like to think that the people who have stepped out and become my friend are really special people because they are willing to appreciate my experiences and perspective in life.
developing and maintaining friendships is alot of work!
#4 *onion*
Posted 14 December 2006 - 05:08 AM
onion
#5
Posted 14 December 2006 - 05:45 AM
"If a law is unjust not only does a man have the right to disobey it, he is obligated to do so!"
#6
Posted 14 December 2006 - 07:32 AM
Don't worry you will find some buddies but must be out going and never say never.
#7
Posted 14 December 2006 - 09:28 AM
where abouts do you live anyway? im heading up to see a mate soon and i might have an hour or spare if its not too far
T10 inc since 2001 prolapsed disc C5/6
#8
Posted 14 December 2006 - 04:57 PM
At least you and your hubby live in the same place !!!!!!! I'm in Glasgow and lonely cos my sweetheart lives up in the north of Scotland.....going up at new year, all being well !
Anyway, how is the pregnancy going ? And how is your little boy ? Do you buy him Xmas presents despite being Jewish ?!! I don't have kids, don't keep well enough to have more than a cat but do enjoy hearing all about the adventures of my boyfriend's 3 yr old grandson !!!!
Not meaning to be nosey, just friendly !!
Lots of luv,
Scotsgal xxx.
#9
Posted 14 December 2006 - 05:04 PM
lee
This post has been edited by Lee: 14 December 2006 - 05:05 PM
#10
Posted 14 December 2006 - 09:24 PM
I know that being SCI can feel extremely lonely at times, regardless of how many friends you have as it can feel like people just don't understand no matter how hard they try.
Keep smiling and remember we're all here for you!
#11
Posted 14 December 2006 - 10:15 PM
I have a wondeful family and a large extended family but sometimes its weird because I can be at a massive family do like a wedding, and be in a room full of 150 people and still feel like I'm on the outside looking in, as if I am a million miles away
I also think when you are in pain and when your perspectives and priorities change so much, which I think happens naturally when you are dealing with a physical restriction and have been through trauma, it is harder to relate to people. I often find myself wondering what the hell people are talking about when they are having a 'normal' conversation, and think to myself - why on earth are they even wasting time think ing about what they are discussing? When I am on top of things I am good company, but I feel I withdraw a bit when I am up against it, and find things considered 'normal' to be trivial.
It is easy to feel lonely when you have a disability. Even the people closest to you don't fully understand, even if they try really hard, and that leaves you vulnerable to feelings of isolation.
Just concentrate on the good things in life, no matter how small, and remember there are places like here where people know exactly how you feel
Some of the posts that other people have put on here could have been written by me, word for word, as they are exactly what is in my head. That is so comforting.
#12
Posted 15 December 2006 - 12:01 AM
Good support here as always. I'm AB, but did feel lonely when we moved to an area far removed from friends and family about 10 years ago. Our son was 3 at the time and I remember wondering if I would ever meet anyone who was not from work. But I did, and mostly through his school friends. I suppose it doesn't always happen, but he happened to make friends, mostly, with kids whose parents I liked.
I'd like to bet that as your little one(s) progresses through school you will find some mothers/fathers with whom you have things in common - most of all - the kids! And the great thing is you can get to know the parents (and more importantly they can get to know you) by inviting them in for a coffee/tea (or better still - if the sun is over the yardarm - a glass of wine) when they pick their children up from playing. It worked for me, I'll keep my fingers crossed for you.
Keep smiling.
Annie
#13
Posted 15 December 2006 - 12:44 PM
Break the old bad habits of sitting around doing nothing... don't get into routines like watching series on TV, etc... Start creating new habits and routines, so you get out and about, where you're going to bump in to people all the time. It starts off with a "hello", then "it's nice to see you again", and so on.
OK, many AB's seem to be stand-off-ish because of disabilities, but this is normally because they've not had any experiences with disabled people - before becoming SCI I'd never met any disabled person, nor had most of my family and friends. Yeap, many AB's in this situation make comments and remarks that could be taken the wrong way (and are often taken badly!) but this is only out of naiivity - it makes them look stupid, in actual fact - but if we react and kick-off at these all the time, it only works against us as we end up looking like "whinging crips that think the world owes them something", and that doesn't help create or encourage the development of new friendships.
Get out and about, and you will meet new people. Read a book in a park... have a coffee every day in a local cafe... go to the pub... Start creating new routines and habits - break the old ones, as they're not working!
#14
Posted 15 December 2006 - 05:47 PM
DaveP, on Dec 15 2006, 11:44 AM, said:
Sorry dave but i dont agree. I dont sit at home feeling sorry for myself and point the finger. Im out and about everyday and dont mope. I was rather pissed off at my so call mates dropping me like a ton of shit because of my health getting worse when at one time they were around me all the time. Everytime i see them them brush me aside and very rarely have time for me if they are in a group, its only wen they are by themselves they can be arsed, so sorry i dont mope and feel sorry for myself, get depressed yes about health problems, but dont mope cause my mates are a bunch of wankers.
#15
Posted 18 December 2006 - 04:10 AM
You stopped me in my tracks with that line. I really hate being dragged to a large function only to spend the time gazing about and trying to match the occassional sheepish grin received from someone who accidentally met with me.....eye to eye. I don't know if there's a good answer to this predicament.
It brought to mind the awful times being at house parties. After being carried up a flight of stairs and placed in a spot in the living room with 'the gang', I realize that moving much is not an option. Coffee tables and furniture block me in! That's when I find 'the party' has moved up or down stairs. There was no warning....just left like a herd, usually to a location not W/C accessible even if you could get around the coffee table things. Time passes slowly when staring at a cat or some inanimate object.
Besides feeling ostracized the most awkward is when someone you know, or knew, tries to talk to you. An uneasy feeling hits you smack in the face. From there it's a staggeringly slow series of questions and attempts at jokes...from both parties. Once it's clear that neither had any idea of what to say, there's usually a fumbling for parting words followed by that distant feeling of being 'on the outside looking in....alone in a crowd'.
This post has been edited by icarus_melt76: 18 December 2006 - 04:18 AM
#16
Posted 19 December 2006 - 01:29 AM
Lee, on Dec 14 2006, 10:04 AM, said:
lee
Yup thats exactly what I'm going through right now, then they wonder why I never call them or talk to them. Well all summer long I sat at home while they went to concerts/parties, never once was I invited, unless I planned it, Then it was like they were going clear outta of there way just to take me, even though they benifetted by getting front row seats to a kenny chesney concert and close parking. When I tried talking to them about this stuff, they ignore it, put it off or find somthing else to do when I bring it all up. Now their getting all defensive because I've posted a note on myspace and facebook, like its all my fault why they never talk to me.
Oh well, I know its my fault why I had an SCI, but it's still just as much their fault, cause they were in the passenger seat drinkin just as much as I was. But that shouldn't be a reason to forget about me.
Ryan S 21 years old
Iowa
#17
Posted 19 December 2006 - 04:44 PM
I live in a small town, actuall I live about 8 miles outside of a small town in a very rural area. I have to drive 8 miles to get to the closes store, gas station, etc and all you can find in that small town is a gas station, small town grocery store, motel, post office and a fast food place. Anyways, I still go to rehab 3x a week and I need to drive 40 miles to get there. Once I am done with rehab I figure I drove all the way up there for an hour I dont want to go home right away and would rather get out to do something, anything. So I head over to the mall or other store and go shopping. I may not actually buy anything but just browsing gets me out of the house. I go to restaurants and movies by myself and at the mall I may stop for a quick snack while shopping. Anyways, I have had a lot of people talk to me while out and about. Some clearly just to pass the time and no more, but others looking to make a friend. I have found that as much as there are people who want to avoid me and just stare, there are just as many people who want to talk to me and hang around me. I guess I dont worry much about what drew them to me in the first place, weather it was interest in me because I am in a wheelchair or not, because people are all drawn to other people for some reason and Im a good person. If I were to obsess about why a person wanted to talk to me then I could have done the same thing as an AB by thinking they just came to talk to me because I was a brunette... I figure it doesnt really matter WHY they want to start up a conversation but weather or not you want to continue that friendship or not.

Quotes are nothing but inspiration for the uninspired.
#18
Posted 26 December 2006 - 05:56 PM
Anyway, back to the original point. The holidays have made it more obvious to me... and not just because of the SCI, I think, but being single on top of all of it, ya know? I watch my brothers with their wives, and my parents and aunts and uncles, and married friends, and what not, and I think it would all be easier if I had someone other then my parents to lean on. Dont get me wrong, my parents are wonderful people, but I miss having a significant other to confide in, its a different sort of support, I think.
Not that that has anything to do with this thread, I think I'm just venting and maybe whining a bit. After all, I have my kids, and that is truly what keeps me treading as hard as I do, but then they leave, and I'm here and there is no one to take care of, and the feeling of being lonely gets so intense and disheartening. I'm so glad I found this forum. At least when I get really bored to tears, I can log onto here and read about others that feel some of the same things.
T-6 incomplete para
#19
Posted 04 January 2007 - 10:34 PM
www.chesapeakelife.com
#20
Posted 08 January 2007 - 07:21 AM
onion, on Dec 13 2006, 08:08 PM, said:
onion
Very well put... I agree...just got to make yourself known.. be a sqeaky wheel...guess I am one that cannot be ignored...
#21
Posted 11 January 2007 - 01:37 AM
I saw a lady on a television show today who had moved into a new neighborhood not knowing anyone and having a difficult time making new friends so she got creative about meeting the neighbors. She baked cookies and she and her son took them to the neighbors on a plate or in a container that had to be returned so she could invite them in for a cup of coffee when they returned it. I thought that was a pretty cool way to say hello.
**Life is indescriminate in it's suffering.
***"Worry looks around, sorry looks back, faith looks up."
#22
Posted 13 January 2007 - 06:14 AM
Some of my favorite pick-me-up-when-I'm-feeling-down activities are:
1. Taking classes (non-credit, no pressure) at the local University. I have met several neat people my age that are doing the same thing, escaping the rat race in an interesting "young" environment.
2. Exercise to a set schedule (especially with a buddy, got to find one first)
3. Art - paint, draw, whatever - I'm not very good, but it is a wonderful escape.
4. Karaoke - again, not very good, but it's fun to try.
5. Reading - can indirectly meet and read what interesting people have to say.
But that's just me ....
Maybe you could join a coffee club if you want to hang out with folks and drink coffee...? Getting out of an lonely rut just takes a little creative action.
A girl once told me "You are boring." It really bugged me and made me feel like, "Oh, and you are sooo interesting?!" Sometime later I read a quote somewhere that I loved and dedicated to her, "If you are bored then you are boring." Through her I learned a good lesson from that. It is nobodies responsibility to entertain my boredom, only mine.
Anyway, just started rambling.... helped me write this down for my own self realizations. So, thanks for helping me!
Good luck finding "it".
#23
Posted 13 January 2007 - 07:49 PM
This post has been edited by cprahl: 13 January 2007 - 07:57 PM
#24
Posted 18 January 2007 - 02:53 AM
Lucydog, on Dec 13 2006, 06:44 PM, said:
Since becoming SCI of course some friends have vanished and most just dont get it. I feel as if my own personal points of referance have changed completly, perhaps I just dont have much in common with people anymore.
So anyway I dont know why I posted this, there isnt an answer, Ive tried all the usual joining stuff but to no avail. Its not like Im after thousands of friends, its just Id like one or 2 I could meet for a chat and coffee once a month, thats all. Anyone out there in the north who would like to make a date?
*Wheelchairs are made of a special ocular magnetic alloy......they're "eyeball magnets".*
*I USE a wheelchair, that does NOT make ME a wheelchair!*
#25
Posted 21 April 2007 - 04:08 PM
Lucydog, on Dec 13 2006, 06:44 PM, said:
Since becoming SCI of course some friends have vanished and most just dont get it. I feel as if my own personal points of referance have changed completly, perhaps I just dont have much in common with people anymore.
So anyway I dont know why I posted this, there isnt an answer, Ive tried all the usual joining stuff but to no avail. Its not like Im after thousands of friends, its just Id like one or 2 I could meet for a chat and coffee once a month, thats all. Anyone out there in the north who would like to make a date?
Well hmmm. When my brother first got in his accident, his girlfriend dumped him
#26
Posted 21 April 2007 - 10:49 PM
If I lived up North Id come and have coffee with you. I had a thought to be best friend. We went everwhere together laughed, talked, had coffee together and when my acciedent happened she came to the hospital the night of the accident and when they transfered me to rehab she came right before I was to come home. The only reason she came to see me at rehab was because she had a fight with her boyfriend. After I came home she didn't call or come to see me. After a few weeks I called her and she said she was going to come and see me but never did. The sad part is she is a nurse. I have gone into Dysreflexia several times and saw her at the hospital and if she wasn't the nurse to take care of me she wouldn't speak and I would be right beside her. Then I got real sick and was in and out of it. Someone had told her how hurt I was at how she was acting so I remember her sitting by my bed and telling me she was sorry but she just couldn't handle it. I remember looking at her and telling her that was a cop out. She said she would be back the next day and never came. I know she didn't because I was in a regular room and my daughter or Mom stayed with me and said she never came back. Shes transfered hospitals but lives 30 mins. away from where I live. I haven't talked to her in 3rs. I was hurt more than I can say but I came to the decission I can't help how she and others act. Im just me and I like who I am. Lucy I have friends at church and a few friends from before and have met new friends at church. Is there a group there that you can get involved in. I have been in the hospital 10 times sense spring. Before that I was voluntering for Alzheimer's organization. I would put stamps on envelopes or put letters into the envelopes or other things I could do. Maybe that would be a way for you to meet others. Wish I was close by. Your friend ParaForGod
#27
Posted 22 April 2007 - 05:08 PM
#28
Posted 23 April 2007 - 10:54 PM
I have been alone many times in my life, and usually I don't mind. I read once that " if you don't enjoy yor own company, why should anyone else". I couldn't agree more. I only listen politly, when someone chooses to only talk about what interests them. If all I talk about is my "condition" , I shouldn't expect others to do any more, and certainly not come back for more.
I should think that in order to attract new friends (or old ones) we need to think in terms of fishing. First you gotta go to where the fish are. Then you need the right bait ( something to say that will be interesting to them). And finially you gotta be quiet ( Most people would rather hear themselves than you). Be patient, they aren't always biting.
Well , there I go again, another rant. No wonder I have no friends.
I wish you all better luck than mine. Ed
#29
Posted 24 April 2007 - 05:58 AM
#30
Posted 24 April 2007 - 10:31 AM
icarus_melt76, on Dec 17 2006, 10:10 PM, said:
You stopped me in my tracks with that line. I really hate being dragged to a large function only to spend the time gazing about and trying to match the occassional sheepish grin received from someone who accidentally met with me.....eye to eye. I don't know if there's a good answer to this predicament.
It brought to mind the awful times being at house parties. After being carried up a flight of stairs and placed in a spot in the living room with 'the gang', I realize that moving much is not an option. Coffee tables and furniture block me in! That's when I find 'the party' has moved up or down stairs. There was no warning....just left like a herd, usually to a location not W/C accessible even if you could get around the coffee table things. Time passes slowly when staring at a cat or some inanimate object.
Besides feeling ostracized the most awkward is when someone you know, or knew, tries to talk to you. An uneasy feeling hits you smack in the face. From there it's a staggeringly slow series of questions and attempts at jokes...from both parties. Once it's clear that neither had any idea of what to say, there's usually a fumbling for parting words followed by that distant feeling of being 'on the outside looking in....alone in a crowd'.
God i hate that
I only have one really really close friend that i hang with very often,but we know people together that we meet up with here and there.I'm also close with my family and we do stuff together fairly often.
A problem i often find myself in is that in Wisconsin,pretty much every house has a basement.So usually whenever i'm at gathering with a group of people,they are held in a mix between the basement/fixed up party area and then upstairs.Things generally shift from where most everyone is from downstairs to upstairs.It's pretty embarrassing enough being carried downstairs once,i'm not going to ask to be carried up and down everytime the momentum of the party shifts from up or downstairs.This leads to those very awkward situations where one or two people will stay with me so i'm not alone until the party shifts back to where we are,makes me wanna crawl in a hole.
Been to many gatherings outdoors at some of great parks in Wisconsin during the summer months.Everyone will be drinking,playing volleyball,and other outdoor stuff.I'll be stuck watching and often unable to mingle around like everyone else is because it on bumpy and somewhat hilly grass that makes wheeling around very diffacult unless someone constantly pushing me around the whole time.This like the house parties to often leaves me stuck by myself if whoever i'm talking to leaves to mingle or get involved in an activity going on.So now that very awkward alone feeling hits even while surrounded by people mingling.As always in these situations,someone eventually sees and notices i'm now by myself.
He/she will meet my eyes and of course feel obligated to come by me,whether i know them well,haven't seen them in awhile,or barely know them.The forced "hi how are you,what are you up to,or anything new going on?" questions are traded and if we don't know each other really well,the fun then starts sometimes.When you both know the conversation is forced and struggling,the awkwardness is horrid for me because i've seen before how many people feel uncomfortable in that spot at just saying take care and going back to mingling.So more time is spent at uncomfortable conversation until others show up to to ease things.
Being at home alone sucks,but many party situations do also and make for wanting to be invisible.
This post has been edited by ziggy: 24 April 2007 - 10:33 AM

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