10 replies to this topic

[bensinjury]

My 18 yr old son has a incomplete L2 SCI, my question is does anyone know of any excercise that he can be doing to try and get the bladder working again...we do accupuncture 2 times weekly, as well he goes to reg Physical therapy 2 times a week, he is 3 months out from the injury date...Hates self cathing...but at this point have no other options, started out as a complete injury and now told went to an incomplete!!?? I hope and pray the rehab doc is right on that diagnosis..anyone out there with an incomplete injury that ended up getting bladder control back??? We are interested in hearing from you. THANKS

[Santa Cruz Soul Surfer (LRO)]

Hello, How long has it been since he injured himself? I'm L3-L4 (incomplete) and it's been 9 month now for me. Things did get much better over time, however I still have to self cath every 5-7 hours and bag at night. Alot of it has to do with when and how often your stomach muscles spasm...I take (Detrol LA) and it has seemed to quell many of these problems over time....Unfortunatly there is a certain degree of incotinence that comes with a SCI.

Edited by Santa Cruz Soul Surfer (LRO), 16 January 2007 - 06:49 AM.

[bensinjury]

bensinjury, on Jan 15 2007, 08:35 PM, said:

My 18 yr old son has a incomplete L2 SCI, my question is does anyone know of any excercise that he can be doing to try and get the bladder working again...we do accupuncture 2 times weekly, as well he goes to reg Physical therapy 2 times a week, he is 3 months out from the injury date...Hates self cathing...but at this point have no other options, started out as a complete injury and now told went to an incomplete!!?? I hope and pray the rehab doc is right on that diagnosis..anyone out there with an incomplete injury that ended up getting bladder control back??? We are interested in hearing from you. THANKS

he is 3 months out from his accident date..accident was in Oct 2006

[Santa Cruz Soul Surfer (LRO)]

Ya, those first few months are always a challenge. There is alot of adapting to be done, both physicaly and emotionaly.....You'll find that once you establish a routine, things will start to become much easier for both you and him. Just try to be patciant and take it day by day!

[georgie]

Hi

You may want to ask to see a Urologist who can determine the extent of the damage to the bladder. With pelvic floor exercises and similar, I think you can regain some amount of control.

After 15 years of a spinal tumour crushing the nerves to the bladder, Doctors were convinced my hubby could regain control but sadly, the tumour had completely paralysed the nerves.

It might be worth a try to see what can be done.



Georgie

[bdmpastx]

I too had a lot of bladder issues. I was always going in my pants and sometimes there were days that I changed clothes 7 times! It really happens when I am working on something and bending over. I thought it would never stop. But it has and my bladder has been trained better. Keeping a tight schedule on the cathing helps. But I go when I feel like I get a hot feeling on my right side of my arms and head. It is always a sign that my bladder is full. I know that isn't your answer but I wanted to let you know that things change slowly over time. I too hated cathing but now it just seems like part of the job. He'll get use to it over time.

[Tarkus]

bensinjury, on Jan 16 2007, 04:24 AM, said:

bensinjury, on Jan 15 2007, 08:35 PM, said:

My 18 yr old son has a incomplete L2 SCI, my question is does anyone know of any excercise that he can be doing to try and get the bladder working again...we do accupuncture 2 times weekly, as well he goes to reg Physical therapy 2 times a week, he is 3 months out from the injury date...Hates self cathing...but at this point have no other options, started out as a complete injury and now told went to an incomplete!!?? I hope and pray the rehab doc is right on that diagnosis..anyone out there with an incomplete injury that ended up getting bladder control back??? We are interested in hearing from you. THANKS

he is 3 months out from his accident date..accident was in Oct 2006

Very early. For me it was about 6 months, but I still have a problem from time to time.

As the Rolling Stones said "Time is on your side". The injury is fresh and those nerves are really "pissed off" as a young neuro once told me.

Time......

Be Big,
Alan

PS-As far as Complete then Incomplete, the truth is that when it comes to SCI medicine is in it's infancy, period. Get ready for many varying diagnosis, they are truly "practicing" this part of medicine.

[Santa Cruz Soul Surfer (LRO)]

^^^2nd that!^^^ I can't tell you how many times my prognosis has changed in the past 9 months...More often than not though, it's allways been for the better....Has he started his rehab yet?

Edited by Santa Cruz Soul Surfer (LRO), 17 January 2007 - 01:12 AM.

[Survivor35]

I just hit my year, and still struggle with this more often than not, but just recently, like within the past 2 or 3 weeks, it seems to be "getting better" I was mortified a couple of times in the beginning, and my rehab team talked me into Depends... How embarrassing, and I hate them, but to this day I am still wearing them... and am so excited that it seems that soon enough I'll be able to get rid of them.

It seems that I'm starting to learn my own body better, and cathing will always be a necessity, but I can sense it somewhat when my bladder is full, and have learned to cath right away... and they just started me on Ditropan, a urinary retetion type drug, which will hopefully help curb more of the accidents. Yay! So, to second some of the other posts on here, it takes time, and learning and paying attention to your body... if I could change any of it, this would be it, but unfortunately it doesn't work that way....

It'll get better. Promise.

[bensinjury]

Santa Cruz Soul Surfer (LRO), on Jan 16 2007, 06:12 PM, said:

^^^2nd that!^^^ I can't tell you how many times my prognosis has changed in the past 9 months...More often than not though, it's allways been for the better....Has he started his rehab yet?

yes he has started rehab...he was released from hosp the 1st week in November and we started rehab the 2nd week of Nov..i did not want to loose any valuable time...he also see's an acupuncturist 2 times a week as well...we keep on praying and he is very positive...so we just keep hoping.

[Santa Cruz Soul Surfer (LRO)]

Thats Great! I'm glad to hear you guy's are'nt wasting any time and he's keeping a possitive outlook on things. I'll pray for you both!.... If you ever have any questions in the future, or just need someone to talk too. We're allways here for you!

Take care, Christiaan