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A couple of years ago I got some advice on this forum about a baclofen pump my neurologist had discussed, and I decided to put it off and try some lifestyle changes. Now I've lost weight and gotten into better shape, but my mobility still leaves lots to be desired. I have cerebellar degeneration which shows up as spasticity and ataxia--I walk, but others think I'm drunk, an inconsiderate jerk, or a drunk inconsiderate jerk. Also I'm real slow. My neurologist never has quit mentioning the pump, and I'm considering exploring it further. I live 100 miles from my doctor and I'm real concerned about things like changing the dosage and getting it refilled. Thoughts?
Thanks, Bill
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Considering Baclofen Pump Again--
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#2
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Posted 23 February 2007 - 09:45 PM
I would kill for my pump, bill. It is truly a life changer. I was taking 80mg. baclofen and 30mg. valium every day before the pump. I have an extremely high dose but still only need refilled once per month. Most can go for almost two months. As for refills, I have a nurse that comes to my home to fill it. i would have it even if I had to go to my doc to get it filled.
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People with courage and character always seem sinister to the rest. --Hermann Hesse
Morality, like art, means drawing a line someplace. --Oscar Wilde
Morality, like art, means drawing a line someplace. --Oscar Wilde
#3
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Posted 18 April 2007 - 01:30 AM
Had a very successful trial last week and am going to have the pump implanted as soon as I can schedule it. I'm really looking forward to it--just hope I can avoid the headache I had after the trial!
Best to all, Wm. E.
Best to all, Wm. E.
#4
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Posted 18 April 2007 - 05:01 AM
I don't have violent spams but my legs and ankles will tighten up and want to extend if I have been in the same position for a while. So if I lean back in my chair and let my legs extend just a bit they will go ahead and straighten out and hold there for about a count of 10. I use this as a means of keeping tone in my legs.
14 years ago in rehab I hated it. Body was moving when I didn't want it to. Surgeon was all but ready to put one until I changed my mind. Glad I did back then. Now I know how my body better and the spasms are not a surprise when they will happen.
But it does sound like good idea in your situation.
14 years ago in rehab I hated it. Body was moving when I didn't want it to. Surgeon was all but ready to put one until I changed my mind. Glad I did back then. Now I know how my body better and the spasms are not a surprise when they will happen.
But it does sound like good idea in your situation.
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