2 replies to this topic

[momof3]

I don't know if I'm posting in the right section. My husband is 40 and has CP in his legs which has gotten worse. His muscles have tightened during the last year or so and it's making it increasingly difficult for him to walk. His dr. wants him to try the baclofen pump, but we're looking at alternative treatments first. Have any of you with CP tried hyperbaric oxygen therapy (HBOT)? I've done a quick Google search on it mainly showing sites dealing with children. This makes me wonder if it even works in adults or if by this age it's too late for something like this to work. Thanks for any help.

[Alin Steglinski]

momof3, on Mar 26 2007, 03:00 PM, said:

I don't know if I'm posting in the right section. My husband is 40 and has CP in his legs which has gotten worse. His muscles have tightened during the last year or so and it's making it increasingly difficult for him to walk. His dr. wants him to try the baclofen pump, but we're looking at alternative treatments first. Have any of you with CP tried hyperbaric oxygen therapy (HBOT)? I've done a quick Google search on it mainly showing sites dealing with children. This makes me wonder if it even works in adults or if by this age it's too late for something like this to work. Thanks for any help.

im 15 with autistic quadriplegic spastic CP and were not eve sure of that diagnosis, i might have progressive disease. you can try, but most doctors agree that it is usually a futile attempt as even by the age of 15 the brain looses more than 80% of its plasticity (meaning ability to regenerate) by the age of 20 the brain has little to no plastic ability.

if the doctor reccomends a pump get the pump, ive heard nothing but great things on the baclofen pumps.

if u really dont want to deal with surgery get him a good physical therapist, powerchair and let it ride!

Edited by Alin Steglinski, 27 June 2007 - 09:26 PM.

[wheels5894]

HBO seems to have been tried on various conditions including MS. Reports of the effects always seem to be rather vague and subjective such as, "Patient A felt his continence was better." Extending this into CP is an obvious choice but I am unsure if it doesn't do much in MS is it likely to do much for CP.

With luck the baclofen pump will get some comments but look on this site to see Simon's stuff on these pumps. They certainly seem to workand the results are quite impressive. I'd go with the pump just to see how much improvement it makes. Before the real operation they test the potential to be helpful so you only go forward for the op if there is gong to be benefit. What has you husband got to lose?