BillS, on May 30 2007, 02:57 PM, said:
Here we can all relate in some ways. Most of us here have had that embarrasing bladder/bowel accident. Most of us have fallen out of our chair at sometime. Most of us have had that frustrating situation trying to just get inside of an old non accesible building. But the ABs here haven't and some people probably aren't comfortable exposing themselves to the ABs.
Personally I think that those who are hear to learn because they're in some sort of a relationship with a SCI person should be welcome here. But I can see how some might be uncomfortable with it.
I can see what your saying that we have not necessarily been though it ourselves, but trust me, evertime my boyfriend has an accident with his bowels, bladder, falls out of his chair, cant get into a building, has an embasasing moment with 'the little fella downstairs' etc, i am always there, and always the one who cleans it up, hauls him back in the chair, gets frustrated that he cant get in the building! So despite the fact that it is not me physically going through it, trust me i definately feel like its happening to me also!!!
I understand why some might feel uncomfortable talking with AB's around, but people who are in my situation are just as able to offer support and advice, especially seeing as (i) am the one who is doing EVERYTHING to do with the cathether, bowels, bladder, dressing, washing, cooking, driving, cleaning, chair maintenance, bleeding, falling out of chairs, physio, UTI's, being stuck at home/bed with pressure sores, lifting, gardening, shopping, i could go on!!!
So trust me, although im not the one who is actually sat in the chair, i certainly feel like im affected by the SCI just as much as he is sometimes.
We both get equally frustrated and fed up when he is ill, and i usually end up with a sympathy migrane or something because im just so frustrated that he feels shitty again and there is nothing i can do!!
I know its hard for some of you guys to understand and accept, but please, just give us carers/partners a little understanding for all the hard work we put in also, and know that everything you go through, we go through it with you!!!
im not moaning about what i do, i wouldnt have it any other way, just dont say that we dont get it, because some of us do!!
xx