So here I am with seven able-bodied people, the sun is setting and the bugs are coming out full force. It's kind of a frustrating thing; being prostrate in my wheelchair while everybody else is getting busy. I was able to lend a hand, reading the directions for the assembly of a new tent. One thing good I learned is that mosquito bites outside of my area of sensation don't itch!
We brought along my alternating pressure mattress -- this thing has really saved my skin. It is a very sad and calamitous affair, trying to get me inside of the tent, lying down on this air mattress, however. We brought along and used a Hoyer lift. The second night, my wife and I slept in our conversion van. This was kind of nice, listening to "19 Minutes", a new book by Jody Picoult, on audio CD and then later the RAIN, pitter-pat on the roof of the van!

We took the kids to a theme park one day. I was somewhat dismayed at having to pay a $10 "walk around" pass -- I was tempted to try to return it -- it didn't work -- I couldn't walk. This place, FUNTOWN USA, boasts one of the largest all-wood roller coasters. It rained like hell in the afternoon, so we all got out and caught a movie. Our group was split between Shrek III and Pirates of the Caribbean/At Worlds End, I saw the latter and understood it less than the other two. I felt grateful at having been brought along at all. I did enjoy myself but felt sad and guilty because my wife and my son had to work so hard to accommodate me. I recall thinking once "cheer up chum, don't make them regret it."

I guess I sound a little grim. Sometimes I get to thinking I've got it bad. And then I take a look at something like this and realize, I've got the best support guy could have, I continue to have a wonderful life.
Edited by Captain Pike, 05 June 2007 - 06:51 PM.





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