Hello I Am New

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#1 wildfire1638

Newbie

Group: Members
Posts: 10
Joined: 18-July 07
Spinal Injury Level / Relationship:c6/7

Posted 18 July 2007 - 01:23 PM

I am not sure if I belong but I wanted to say hello and hopefully be welcome here. I have enjoyed reading the posts at this website. I have a disease known as syringomyelia, and eventually I will be completely disabled. I have central pain in my left arm/hand that can be severe. The cyst (syringomyelia) is in the c6/7 area and I have known about this disease for four year. The cause of the syringomyelia is unknown. I am becoming progressively worse, my doctor says that payalysis can be expected and I wish I didn't know, because now I am waiting for it. I feel like I am still young at 39 years old, and the future has left me feeling scared. Thank you

#2 hockeydahc

Member

Group: Members
Posts: 333
Joined: 15-April 07
Gender:Male
Country:Southern IL U.S.A.
Spinal Injury Level / Relationship:T5 inc. Walk;cane;chair

Posted 18 July 2007 - 06:32 PM

you're always welcome here.

I can't speak intelligently on Quad situations, but worry equals stress, and stress is not good for your health.

get out there and live it up. If it is going to degenerate, why waste the time before it happens?

#3 cate

Member

Group: Members
Posts: 222
Joined: 25-May 07
Gender:Female
Country:cambridgeshire uk
Spinal Injury Level / Relationship:daughter has c5 c6 sci

Posted 18 July 2007 - 07:40 PM

wildfire1638, on Jul 18 2007, 02:23 PM, said:

Hi
You are welcome. I hope you can get help and information on here, But agree with poster, enjoy things while you can and do all that you can. and hope things do not move fast for yhou. Think also stress will not help, So try to not fret too much. Easy to say but not do.
Cate

#4 nomis

Advanced Member

Group: Members
Posts: 2,691
Joined: 05-June 07
Gender:Male
Country:New Zealand
Spinal Injury Level / Relationship:Para T4

Posted 19 July 2007 - 12:01 AM

Hi wildfire1638
You're right to be scared. It's an uncertain future. I guess if any of us look to our future we can find things to freak out about.
The future is going to happen, whatever.
I'm with hockeydahc on this - lap up life now like there's no tomorrow. Minimise any future regrets by doing and seeing what is important to you.
Have fun doing it. Let tomorrow take care of itself.

Stephen Hawking, physicist, cosmologist and something of a dreamer:
Although I cannot move and I have to speak through a computer, in my mind I am free.

#5 wheeliebear75

Advanced Member

Group: Members
Posts: 2,655
Joined: 08-November 06
Gender:Not Telling
Country:San Diego California
Spinal Injury Level / Relationship:L2 incomplete 4/28/1990

Posted 31 July 2007 - 06:49 AM

You know I think that if we knew we were going to become paras or quads we may have done a few things that we'd wanted to do. You do at least have that. It may not make it easier, but if you do everything you want now while you can at least you'll have happy memories to look back on rather than a bunch of "I wish I had"s. And you most certainly are welcome here.

*Enjoy every sunset, but be grateful for every dawn.*
*Wheelchairs are made of a special ocular magnetic alloy......they're "eyeball magnets".*
*I USE a wheelchair, that does NOT make ME a wheelchair!*