4 replies to this topic

[JoJo1107]

Hi Everyone,
I am new to this site but have gotten more in one visit than all other sites I have been to. I am a C7 and have been home for 11 months. I came home from rehab with a bad pressure wound that has kept me home and only out of bed for eight hours a day. Of all my questions the top one is, Is the discomfort something I have to live or is it there something I can do or hope for? Thanks in advance.

Edited by JoJo1107, 27 August 2007 - 08:01 PM.

[nomis]

Greetings JoJo1107
The first year almost routinely produces the hardest lessons which, generally, means there are better, less problematic times to come.

I’m para, so your experiences are going to be greatly different but there is some common ground. In my first year, I had skin problems, leaking urinary problems, fatigue problems and problem problems. I thought this SCI life was going to be really tough and scary. But much of that melted into oblivion over the years.

Your pressure wound is a serious setback and hard lesson. It’s also a stark realization of the care you now need to take to stay healthy. So you’ve already learned a significant lesson. Loaded with the knowledge you now have, if you take good care of that wound to heal it to its maximum and continue to take sensible care of your skin you may never have that problem again.

I now look back on my early years as a bit of a joke (the years have removed the pain) because my life got so much easier and more rewarding than I imagined it was going to be. From my experience, for the first year my mind was a confused turmoil, the second it was only slightly better and it wasn’t till the third that I felt I was me again

So, I’d say you’ve got serious work on your hands to get that pressure wound healed and get through the slow, patient process of getting mobile without it breaking down again. That means sticking rigidly to the rules set by your medical people. Once that problem is out of the way, there’s a rewarding life to grab.

[itsjustme]

Hi JoJo1107 and welcome to the forum!

Ummmmm...discomfort? Can you be a little more specific about what causes your discomfort and I'm sure that lots of people will jump in and offer suggestions.

The first thing that I think of when you say "pressure wound" is your bum. How in the world did they let that happen to you in rehab of all places? If your bottom is the problem there are options as far as cushions are concerned. I sit on a ROHO but fellow Apparelyzers have told me about even newer, more innovative cushions that they swear by. I started out on just a regular gel cushion and when I have to trade out for a little while for any reason, I can hardly stand sitting on the gel. My ROHO, air filled and adjustable, is so much more comfortable.

Again, welcome, and just ask away. There's always someone here to offer up some advice.

[wheeliebear75]

I'm with Justme. I too have a ROHO air filled, mine is a quattro low profile....but next time I may go for the high profile.....jury is still out there. And I'm only a para so that's a big difference as nommis said. I've gotten skin lesions but it was when I was stuck on total bed rest while I was pregnant. Enough about me, welcome aboard.

[JoJo1107]

wheeliebear75, on Aug 28 2007, 08:14 AM, said:

I'm with Justme. I too have a ROHO air filled, mine is a quattro low profile....but next time I may go for the high profile.....jury is still out there. And I'm only a para so that's a big difference as nommis said. I've gotten skin lesions but it was when I was stuck on total bed rest while I was pregnant. Enough about me, welcome aboard.

Thanks everyone. It all so much, i have alot of people around but nobody can understand just what i feel. I have not been around quads or paras for nearly a year. I will be active with you.