22 replies to this topic

[evanpara]

My name is evan and I was accepted to have a stem cell treatment done at Tiantan Puhua hospital in Beijing China, The cost is estimated at 38,000 for two months of treatment, includes Pt, Ot, speech, and chinese medicine. I was wondering if anyone has done this treatment or has done research about this place? Also is Portugal a better place to go to recieve stem cell treatment? How do I come up with $38,000? a loan?

Edited by evanpara, 30 August 2007 - 09:53 PM.

[Jsec64]

evanpara, on Aug 30 2007, 10:48 PM, said:

My name is evan and I was accepted to have a stem cell treatment done at Tiantan Puhua hospital in Beijing China, The cost is estimated at 38,000 for two months of treatment, includes Pt, Ot, speech, and chinese medicine. I was wondering if anyone has done this treatment or has done research about this place? Also is Portugal a better place to go to recieve stem cell treatment? How do I come up with $38,000? a loan?

Hi.
Not sure about the finances but I remember seeing a programme here in UK about an Icelandic lady whose mother found stem cell treatment in China for her daughter. As a result of her perserverence she received Woman of the Year Award for her diligence in pursuing help for her daughter. I'm sure theres soemthing out there about it.
Best of Luck
John

[Luz Helena]

Jsec64, on Sep 5 2007, 03:15 PM, said:

evanpara, on Aug 30 2007, 10:48 PM, said:

My name is evan and I was accepted to have a stem cell treatment done at Tiantan Puhua hospital in Beijing China, The cost is estimated at 38,000 for two months of treatment, includes Pt, Ot, speech, and chinese medicine. I was wondering if anyone has done this treatment or has done research about this place? Also is Portugal a better place to go to recieve stem cell treatment? How do I come up with $38,000? a loan?

Hi.
Not sure about the finances but I remember seeing a programme here in UK about an Icelandic lady whose mother found stem cell treatment in China for her daughter. As a result of her perserverence she received Woman of the Year Award for her diligence in pursuing help for her daughter. I'm sure theres soemthing out there about it.
Best of Luck
John

HI,
my friend is going towards the same kind of treatment in puerto rico, and it costs 25.000 US dollars, he could get a loan for half the money, so if you find a way of getting the money , let me know. Thanks

[game_artist]

I am a quad since 1996 and I am 25 years old now. The big question for me is so how do you guys come across this info and how do you trust where you're going?

It seems to be common knowledge for myself representing a quad experience there so much up and down about stem cells surgery like did it cure anyone, is it risky, why are there no cures yet things like that. We never seems to be anyone coming out finally saying, we are doing it and it's working everybody come check it out. And when you ask your doctor like, Dr. John McDonald I had a chance to get therapy by him in Baltimore where I live close to Kennedy Krieger rehab program, the doctor that treated Christopher Reeves, even himself he doesn't have an answer.

The big thing now is he's doing excessive treatment but you have to be committed every single day it's good to do if you have some time to learn some good techniques but as soon as you fulfill your goals they let you go. And if you're like most quads who is at home to help you exercise especially if you're in school, trying to do something other than worry the heck about your health all the time.

So if anyone has a few places to look into for serious treatments by reputable people for stem cell surgeries please let me know. Feel free to e-mail me directly.

Edited by game_artist, 01 October 2007 - 09:36 PM.

[jass1]

HI
the coast in india 3 to 8 thousend, a friend went to china he can move hi toes a little bite but no more improvment

[wheelkid]

I wanna get the stem cell thing done so bad, but do you guys think its a scam??? why can't the USA or UK do it why only like india and china do it

I wish we had a cure SOON I HOPE

[jass1]

My friend did,a year a go he say he can move one toe a little?

[edlee]

Was your friend, by chance, incomplete??? It seems that is where they have the best luck.

Well,,, that and in the first few monthes after injury.

Has anyone heard from evanpara, or anyone else who has had a similar treatment?
ed

[hannahbear]

evanpara, on Aug 30 2007, 03:48 PM, said:

My name is evan and I was accepted to have a stem cell treatment done at Tiantan Puhua hospital in Beijing China, The cost is estimated at 38,000 for two months of treatment, includes Pt, Ot, speech, and chinese medicine. I was wondering if anyone has done this treatment or has done research about this place? Also is Portugal a better place to go to recieve stem cell treatment? How do I come up with $38,000? a loan?

Hi Evan, I know a family that their friends and other people in the community, held a benefit for him, and he ended up getting the money plus, and going to China.

Best of Wishes Evan!

[milosNS]

OK ... I see that everyone is speaking about china and India ... Anyway i know a girl fom my country that went twice in China (para) and nothing . I will post a new topic about stem cells that i did...

[Tinbasher]

wheelkid, on Feb 20 2008, 05:20 AM, said:

I wanna get the stem cell thing done so bad, but do you guys think its a scam??? why can't the USA or UK do it why only like india and china do it

I wish we had a cure SOON I HOPE

I truly believe that stem cells will lead to a real breakthrough but ask yourself would you buy ANYTHING that sounded too good to be true from China or India? It isn't available in the UK or the USA because it isn't a proven therapy. Incompletes do have the best luck but only in that they were incomplete in the first place.

Its not easy to accept it but the world is full of Drs who are unscrupulous and no better than snake oil salesmen.

[E-DOG]

evanpara, on Aug 30 2007, 02:48 PM, said:

My name is evan and I was accepted to have a stem cell treatment done at Tiantan Puhua hospital in Beijing China, The cost is estimated at 38,000 for two months of treatment, includes Pt, Ot, speech, and chinese medicine. I was wondering if anyone has done this treatment or has done research about this place? Also is Portugal a better place to go to recieve stem cell treatment? How do I come up with $38,000? a loan?

You applied for and got accepted to this thing BEFORE figuring out where the money's gonna come from?
Working without a net. I LIKE IT
E

[quadcam]

i have a question for evanpara.

how did u apply for stem cell treatment? where are u going to get it? and what kind are they going to use (cord blood,adult,or embryonic)
i saw a show on national geografic called supercells (everyone should try to see it, unbelibable). it was about a quad who got cord blood stemcells, he got his hands,trunk mussles, and can now stand 20 mins a day. he had 6 injections, one a week, done in bejing.
i am a level 5,6 quad and very interested in getting treatment. anyone with info please reply or e-mail me at my girlfriends e-mail muffin666@hotmail.com

[squarie41]

Hi my fiance and i went to india and slogged it out for nearly 3 months,hes a t6/7 para ,it cost us nearly 50 grand all up,he went thru some tuff physio therapy and lots of injections of stemcell and procedures where he had to stay in hossy wich i may add are in poor condition,u wouldnt let your dog stay in one,for days on end laying nearly upside down all for not weeing befor hand unless by catherter to comming home and weeing all the time so that now he wears teena underpants.
so not sure wich was better lol,but he said he does feel a lot stronger in the trunk area but not that much has benefitted from it if u ask me so ,who knows its up to the indavidual i think as i seen a few patients over there from australia and america get some pretty amazing things back,depends on your level break i think as the lower the break the better results so i noticed.Now he wants to go to china..........enuff said.

[New Dimension]

quadcam, on May 11 2008, 11:22 PM, said:

i have a question for evanpara.

how did u apply for stem cell treatment? where are u going to get it? and what kind are they going to use (cord blood,adult,or embryonic)
i saw a show on national geografic called supercells (everyone should try to see it, unbelibable). it was about a quad who got cord blood stemcells, he got his hands,trunk mussles, and can now stand 20 mins a day. he had 6 injections, one a week, done in bejing.
i am a level 5,6 quad and very interested in getting treatment. anyone with info please reply or e-mail me at my girlfriends e-mail muffin666@hotmail.com

My son is a C5C6 20 year old, 6 months since his auto accident. I would be very interested in any info you receive about (cord blood cell treatment....

Peace be with you!!!!!!!!!!!!

[C Herod]

There is a place in Cologne, Germany called XCELL-CENTER. They treat patients by using their own stem cells. My husband was approved for the program, but we were unable to come up with the money. Depending on what you do it's about $9,300 - and up. Again, there were no actual success stories. There were some about people getting certain sensations and, or bladder or blowel control. Which i guess would totally be worth it. They won't just take anyone though. Gotta get approval. www.xcell-center.com

[quadcam]

New Dimension, on Jul 29 2008, 04:21 AM, said:

quadcam, on May 11 2008, 11:22 PM, said:

i have a question for evanpara.

how did u apply for stem cell treatment? where are u going to get it? and what kind are they going to use (cord blood,adult,or embryonic)
i saw a show on national geografic called supercells (everyone should try to see it, unbelibable). it was about a quad who got cord blood stemcells, he got his hands,trunk mussles, and can now stand 20 mins a day. he had 6 injections, one a week, done in bejing.
i am a level 5,6 quad and very interested in getting treatment. anyone with info please reply or e-mail me at my girlfriends e-mail muffin666@hotmail.com

My son is a C5C6 20 year old, 6 months since his auto accident. I would be very interested in any info you receive about (cord blood cell treatment....

Peace be with you!!!!!!!!!!!!

Hi I will give you any information that i recieve im still looking myself but i will let you know i hurd about one in australia that im really looking into

[CRC]

Hello All. I am the father of a 16 month old with Spina Bifida and although, depending on who you ask puts her in a different category then an "injury" derived cord issue; I believe at the end of the day that all people with spinal cord issues are fighting the same fight in varying degrees. My daughter can't move or feel her feet. We don't know and won't know for sometime the level of feeling in her legs but the movement from the knee up is good. Of course there is the cathing (4) times a day and other issues that paras share.

To maybe not offer an answer but an opinion on why so many people are talking about countries outside the US for special treatments and experimental treatments is because of American politics. Simply put, our President has declared a jihad on science and the advancement of science for the past 8 years. This is not a push for Obama over McCain. I would vote for Mickey Mouse if I thought it would put someone in charge that gave a crap about these issues. Let me tell you folks, and I know other parents on this board would probably agree, when it comes to my daughter and her care and eventual positive progression.....I couldn't care less about what I pay at the pump, pay for a mortgage, how many troops are on the ground in Iraq or if McCain has skin cancer and if Obama is a muslim. Are any of those issues going to make stem cell research etc. a reality in this country??? NO!!!!

Until we get over what this President and future President's interpretation of what a "life" is; and we get them to recognize the millions of actual, visible, tangible and valuable lives that is our disabled children and selves; we will always have to go to foreign countries to participate in these programs. Widely unregulated, expensive and unproven treatments that we are forced to try and use. My wife and I are talking about traveling to China where it is rumored that a Doctor has successfully and has put into general practice a nerve reroute that will eventually restore somewhat normal bladder and bowel function. Our Urologist at clinic laughs at this notion and says China has problems. I say NO Doctor, my daughter has problems. China is offering a solution that might be real, might be fake or it might be dangerous. The point is, procedures like this and others would be easier to wrap our minds around and maybe get funding for if they were right here in the US. In our experience, as soon as you mention new procedures done in foreign countries you immediately get the half crooked smile from the doctor before you even finish the sentence.

I apologize for the long post but you know....we should be further along with these things. We should be well past the dawn of a new age with such a topic in this country. I'll admit, some Doctors are saying we are. Some Doctors have told us that if there was ever a time in history to have a spinal cord injury, it is now. Really exciting things coming down the line they say.

I certainly hope so; for us and for all of you.

[Hapahowlee]

Well put CRC.

I am a registered voter and I absolutely cringed and almost threw up both times "Dubya" was elected. What is the difference between government disposal of these embryos and using them for research? Disposal was just flat out stupid!!! There were so many more embryos that could have been used for reasearch and we might be further along. But this administration is known for waste and progress is not in their vocabulary.

Have you checked with research facilities within the U.S.? I called a few around this time last year when my husband's daughter was due to have her second child and she wanted to give the blood cord to her father. I wanted to know what types of projects were in the hopper before we committed to paying the $1,700 for the initial harvesting of the stem cells and the yearly storage fee. These types of stem cells are already being used on children with diabetes and with great success. I spoke with many M.D.s and Ph.D.s from several research centers around the nation and got very positive feedback regarding the types of cures being sought by using stem cells from blood cord. These cells are being tested as a possible cure for SCI, but unfortunately the embryonic stem cells are the key and would help scientists find a cure a lot sooner.

All we can do is hope the new administration is not so strict on their regulations when it comes to funding for research centers that rely on U.S. Govt. funding. Keep in mind there are private research centers funded by philanthropists and these centers are not subject to the ridiculous govt. restrictions.

The other day I read an article about the Japanese extracting stem cells from wisdom teeth. I'm not being biased here, but I do believe the Japanese just might surpass the U.S. researchers b/c their govt. is more open minded and they are very intelligent people, very clean and health conscious. Since I am no longer bilingual, I can't just make calls over there, but I plan to Google a lot on Japanese SCI research. I read they are 2nd (the U.S. being first) in the amount of money distributed towards medical research, inparticular for SCI.

I will continue to do what I can and vote for the people who can make a difference, such as members of congress. Keep an eye out for healthcare bills in particular and bombard your Senators and Representatives with calls letting them know how you feel about the issue in which they are due to vote. They actually do hear us, especially when it's close to their term ending.

CRC, I wish you all the best in finding something or someone who can help your sweet daughter. I know the "Dr. Look" you are referring to and however frustrating it is, they are actually trying to be sure you know the FDA is part of the U.S. govt. to help protect us from possible "Frankensteinish" methods of treatment that may be in use in countries that do not have guidelines to follow. It would be tragic to get your hopes up, go to one of these countries, spend a great deal of money and have something done that makes the condition worse. Just my opinion, but I would check U.S. facilities first.

Regards - Hapa

[CRC]

I appreciate it Hapa. I get fired up about this stuff. My wife and I were worried when Huckabee was doing well. Good Lord Almighty, we would have been thrown into a terrible state. Huckabee couldn't spell science let alone support it. I have a very very strong faith and believe strongly in God and the Lord but there is faith and then there is folly. As the great comedian Lewis Black said "these people watch the Flintstones as if it were a documentary". The shinning light here is that both McCain and Obama sound pro science, pro advancement so let's hope that happens.

Anyway, thanks.

[strngink]

umm just wanted to ask 1question becuz i also wanna go to china..umm does anybody know if stem cell would work for my kind of injury??i got shot in my L1 but it did not cut any nurves the bullet went through the spine bone an hit the pouch an just really really bruised me to where in paraplegic so idk know if stem cell would work becuz its bruised not cut..plz lmk if u might have any info..i was looking into www.stemcellchina.com

[FlyPelicanFly]

strngink, on 26 December 2011 - 08:57 PM, said:

umm just wanted to ask 1question becuz i also wanna go to china..umm does anybody know if stem cell would work for my kind of injury??i got shot in my L1 but it did not cut any nurves the bullet went through the spine bone an hit the pouch an just really really bruised me to where in paraplegic so idk know if stem cell would work becuz its bruised not cut..plz lmk if u might have any info..i was looking into www.stemcellchina.com

There are no stem cells cures at this point in time. Please take a look at http://www.escif.org...n_therapies.htm for more information. Please please avoid blowing your hard-earned cash on these unproven therapies. We are getting closer and closer to the real thing everyday. For every anecdotal success story out there, there are 100s of very regretful people out there that parted with a lot of cash for no benefit - many of whom are too embarrassed to tell the world their story.

On the bright side, there are reputable clinical trials underway in humans at the moment and more in the pipeline. There is cause for optimism.

[richo]

quadcam, on 04 August 2008 - 03:24 AM, said:

New Dimension, on Jul 29 2008, 04:21 AM, said:

quadcam, on May 11 2008, 11:22 PM, said:

i have a question for evanpara.

how did u apply for stem cell treatment? where are u going to get it? and what kind are they going to use (cord blood,adult,or embryonic)
i saw a show on national geografic called supercells (everyone should try to see it, unbelibable). it was about a quad who got cord blood stemcells, he got his hands,trunk mussles, and can now stand 20 mins a day. he had 6 injections, one a week, done in bejing.
i am a level 5,6 quad and very interested in getting treatment. anyone with info please reply or e-mail me at my girlfriends e-mail muffin666@hotmail.com

My son is a C5C6 20 year old, 6 months since his auto accident. I would be very interested in any info you receive about (cord blood cell treatment....

Peace be with you!!!!!!!!!!!!

Hi I will give you any information that i recieve im still looking myself but i will let you know i hurd about one in australia that im really looking into

hi i would like too know where in australia please....ps.good luck to all,richo