2 replies to this topic

[tmp]

hi

my son is due to have this procedure done due to spinal cord trauma from sacral cancerous tumour... had 10 months chemo and 31 sessions radiotherapy now in remission but left with life long neuropathic bladder and bowel.

we don't know anyone who has this and just want to know pro's and con's, at this moment it looks to be a great option as he should be continent inbetween.... at 13 years old this is BIG issue re school etc.

thanks in anticipation

t x

[wheels5894]

I suggest you have a look at some other sites for this one.

The Incontact Message Board has at leats one person who had the ACE procedure done, though I think she moved on to a colostomy after wards.

Cauda Equina Message Board you should be able to find someone on there tot alk to about ACE.

[tmp]

wheels5894, on Sep 2 2007, 05:13 PM, said:

I suggest you have a look at some other sites for this one.

The Incontact Message Board has at leats one person who had the ACE procedure done, though I think she moved on to a colostomy after wards.

Cauda Equina Message Board you should be able to find someone on there tot alk to about ACE.

thanks for the advice i shall go have a look at them both, cauda equina was what A&E originally thought was wrong with my son.

t x