11 replies to this topic

[Mike 2253]

hello everyone,

I am brand new to the site. Just an hour old. I am a t3 para in severe burning pain for many years.
I take 240 - 10 mg oxyxontin every month on top of 100 microgram morphine patches. I cannot stand the pain anymore. I am still working an love my job but cannot continue much longer due to the burning pain. Does anyone have any advice. My doctor says the only thing left is a nerve block. This is a very serious decision I'm about to make. I'd appreciate any advice.
Nothing I do helps.

Thanks

Mike

[Texaswheelz]

tried weed? I know some people are against it, but for pain relief it is hard to beat, illegal or not.

[hockeydahc]

sounds naiive...where exactly is the pain?

if my lower back vertebrae twist or compress a bit, I get a dull burning sensation and more muscle spasms there. I see the chiropractor for traction. I'm sure yours is much worse than this, but a slow traction to relieve pressure feels good anyway.

[Joed]

To my understanding the medications you've mentioned do not do much toward nerve pain...it can dull it somewhat, but it's impact isn't as significant as other meds like neurontin or lyrica for nerve pain. I suggest at least trying something else before going for the nerve block. Some people get a lot of relief with Neurontin, etc....personally, it didn't help me much, but I just couldn't get past the dopey, underwater feeling it gave me, and I probably didn't give it a fair shot. But my son was three at the time, and I found myself falling asleep a lot, so I thought it best to muddle through without the meds.

I hope you find a solution that works for you. Don't give up searching....

[LuckyinKentucky]

I have to agree with Joed on this one, the med's you listed are in no way for nerve pain. I've noticed some opiates help a little, but probably mostly because my mind is hopped up and i just don't care as much! This is OK if I'm doing something active that requires extra effort, but if you try & make it work full time you'll probably just be left with a nasty addiction.

If ya wanna care less about the pain comin and going...smoke pot... I dont find it to help the pain alot...just being able to deal with it. Like you , I could probably get any script I wanted(& my doc's have pushed quite a few on me without regard to their side effects) doctors feel like there is a pill cure for everything so if they see it's not working they'll just advise you to either take more or find something stronger. I listened to them for a while & lived in a daze, hell on more than one occasion the med's I was prescribed were in such a concentration I could have been in real danger...not from overdose but from their effects.

After a particularly nasty episode I decided to rebuke all pills. The pain was worst for the first month or so (while the med's slowly filtered out) but balanced out after a while. Granted, the pain is still nasty and it often has me twitchin and squirmin but I do so with a somewhat clear mind (minus the pot) and am alot happier.

good luck.... and if ya manna know more... Holla!

Edited by LuckyinKentucky, 04 September 2007 - 09:03 PM.

[Mike 2253]

Thank-you for your support.
I am hoping to find an answer amoung folks that understand what I am going through. After 13 years you would think I would have it all figured out by now.

Thanks again
Mike

[Texaswheelz]

LuckyinKentucky, on Sep 4 2007, 03:46 PM, said:

I listened to them for a while & lived in a daze,

Exactly how I felt, the only RX I have now is for heartburn. I tried so many different Dr. prescribed pills that I felt like I could open my own pharmacy. Neurotin didn't do anything for me either. It wasn't possible to work or do much with people while always doped up, the only thing strong enough left me drooling and unfunctional. Weed never did that to me.

[wheeliebear75]

I'm also of the opinion that none of the drugs you listed are for nerve pain. Nerve pain is one of the hardest for Dr.s to treat. I do use pot and for me it's been the best decision I've made. I like you was talking it over with pain management to do the nerve block......this is a drastic measure. I can tell you that I stop having that "I want to cut my legs off" feeling. I can stay awake and I have an easier time thinking straight then doped up on Rx scripts. I think you need to find a pain management specialist more than anything........they will address not only pain, but what kind of pain.

[Avocado Baby]

Hi there,

I'm sorry to hear youve been in such awful pain for such a long time. I have neuropathic pain and I know exactly how waring it is. I've been taking Lyrica for nearly 3 months now and it does help. I certainly know when I'm due my next dose! I'm going to talk to my dr about getting the dose increased cos my pain has been pretty awul the last couple of weeks. I've tried lots of different eds but have found this to be the best.

Good luck and I hope you get some relief soon

[dave420atya]

When the stabs (of pain) get real bad , don't mind being doped up.Sometimes it's so intense , I scream ,cry , beg for mercy and then get mad. No pills have helped. It get so bad sometimes, I border on insanity.

I SMOKE POT. IT DOESEN'T STOP THE PAINS, IT PUTS ME IN A STATE OF MIND WERE I CAN HANDLE IT.

Good luck with finding some relief.
Well it's 4:20 somewhere .Time to smoke my meds.

[john S.]

Mike 2253, on Sep 3 2007, 10:05 PM, said:

hello everyone,

I am brand new to the site. Just an hour old. I am a t3 para in severe burning pain for many years.
I take 240 - 10 mg oxyxontin every month on top of 100 microgram morphine patches. I cannot stand the pain anymore. I am still working an love my job but cannot continue much longer due to the burning pain. Does anyone have any advice. My doctor says the only thing left is a nerve block. This is a very serious decision I'm about to make. I'd appreciate any advice.
Nothing I do helps.

Thanks

Mike

Mike, most of what your taking is just knocking you out. you can't even stop taking them because they are addictive and will cause more pain. as weird as this sounds you may want to check for kidney stones and try a bowel cleanse. It is not uncommon for small stones to form in the gall bladder and kidneys after becoming paralyzed. The other common problem is an inability to evacuate your bowel and colon. For some reason people describe the constant discomfort as burning pain. It could be other problems but often the simple solutions are overlooked. If you decide to use weed then cook it and take it orally. Smoking is bad for you and besides, it lasts hours longer.

I wish you the best,
john

[Avocado Baby]

dave420atya, on Oct 8 2007, 06:33 PM, said:

It get so bad sometimes, I border on insanity.

I hear ya!