9 replies to this topic

[Somebody]

Thought this might be interesting.

c7 quad
not much real pain
pins & needles in arms some
but my legs tingling gets on my nerves
doesn't hurt after I take meds
just burns & tingles, aggravating

I take 20 mg baclofen every 4 hrs, 6 times a day
and I rarely spasm at all
as long as I get rom twice a day

How about you?

[darrel]

I had to punch "other" because my pain is still in my neck, lower back, between the shoulders. went into the hospital C5/C6 incomplete came out as C6 incomplete.(as far as I'm concerned "f***ed up") sencetivaty is srewy...a drop of cold water on my skin feels like a cigarette burn. finger tips that have function feel like if you held your hands in ice water for 30 minutes,that pins & needle feel the spasms are very frequint,about every 30-60 minutes unless I'm tired then about every 5-10 minutes. I try to do ROM at least 4 times aday for spaticity and I find that tha spasms aren't quite as severe. trust me I'd rather be slinging steal around any, day than deal with this ...only thing that I like out of this trade is "I don't feel chigger bites or meskeetoes, plus when I fall I don't feel the road rash(cuts&scrapes) the worst pain of all though is the friends that I have lost they act like it's the black plague. you find who your true friends are. thats what is sad.

[wheeliebear75]

I get pins and needles in my legs and buttocks and hot stabbing pain in my back. I put down para......it's kinda a tossup with me. Some medical staff would list me as having "a gross bilateral neurological deficit" and others would just list me as being PARTIALLY paralyzed. Well get your car in a wreck and even if the mechanic can bang out the dents and replace the vital pars.......they just never run quite right. LMAO For some reason I'm starting to feel like an old Dodge.

[john S.]

My pain is like i'm being crushed with occasional hot spikes and shooting pains. It is all over but different degrees at different times. The worst is when I get supersensative. The air from a fan can feel like it is beating me to death. Sometimes it triggers AD siezures and other times its brain siezures. The AD is worse because I don't blackout and the headache I have with it is just another world. Monday I was at the Dr.s when the nurses used their new lift and sent me into AD and the doctor who had never seen a full blown AD siezure actually sat and tried to talk to me during it. He was making phone calls in case I stroked or had a heart attack. Did get my blood pressure down before leaving. Glad I had my emergency pills cause I forget everything else I normally took.
322/196...and he was scared. Now he believes pain can be a trigger? GEEES!

[dave420atya]

Stabs from a big hot knife in the bone with a twist. The bad ones as I call them. I have a variaty of other pains(hyper- sensitivity) but they seem insignificant to me after I have felt the "bad ones". I get quick stabs sometimes and long slow ones that seem to build up in intensity. Those are the ones that make me scream , beg , cry , and just get so mad at how much it hurts.
Water hitting my leg in the shower can set it off big time.
Somrtimes I want to cut my left leg off. Hell the only thing I feel in that leg is pain. It doesn't work any more so why do I even need that leg?

[smokymtn memories]

Describe the pain, okay................from the neck down. I don't even count my arms and torso, the discomfort in those places is mini compared to my hands: cold, burning, stabbing, hyper sensitive and from the waist down: burning, burning, burning, hyper sensitive, sometimes cold, plus my feet feel like I'm walking on razor blades.

I don't even count the tingling, it's nothing compared to the rest. I have spasms often. The most at night, sometimes, not often, bad.

Oh yeah, the muscles in my neck and back that were cut for surgery, still get pretty achy at times.

Describe the pain, okay................from the neck down. I don't even count my arms and torso, the discomfort in those places is mini compared to my hands: cold, burning, stabbing, hyper sensitive and from the waist down: burning, burning, burning, hyper sensitive, sometimes cold, plus my feet feel like I'm walking on razor blades.

I don't even count the tingling, it's nothing compared to the rest. I have spasms often. The most at night, sometimes, not often, bad.

Oh yeah, the muscles in my neck and back that were cut for surgery, still get pretty achy at times.

[hanguk]

I have pins and needles sensations in my legs especially the feet. I am extremely spastic despite baclofen. The spasticity has pulled my pelvis into a tilt so that one knee sticks out further than the other when I'm sitting. I do range of motion sometimes. I have Neurontin for the pins and needles but that and all medicines for spasticity and pain make me sleepy and I have to be alert to do my job.

[Mikerowaved]

 hanguk, on Jan 14 2008, 10:51 PM, said:

...and all medicines for spasticity and pain make me sleepy and I have to be alert to do my job.

I agree. The drowsyness and severe dry-mouth were the side effects that drove me to "the pump". I've had one now for about 5 years and spastcity is about 98% gone without the side effects of oral meds.

I'm still on Neurontin, but I'm not affected by it near as much as I was on the anti-spasm meds.

[Notwheels]

Pretty much hurt anywhere, anytime. Never know what's going to hurt and when or what's going to spasm and when.

Carolyn
C3-7 Incomplete

[McTavish]

I count myself very fortunate that I have no pain whatsoever and very little spasms. I put it down to exercising every day without fail, half hour standing frame, half hour motomed and swimming once a week. I am forever grateful for being so pain free.

T4 incomplete