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Fao The Walkers Out There


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#1 PsychoSimon

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Posted 16 September 2007 - 04:43 PM

Hi all,
I'm getting stronger in my legs now and want to use the crutches a lot more than I am. The only thing that's stopping me is the thing of sitting down. Nowhere has nice soft padded seats around here, and would mean I'm sitting on hard plastic/wooden chairs. I don't have any mass left on my butt with muscle wastage and when sitting down I'm siting on my bones, and am paranoid about pressure sores.

What do you guys do? Please help as I feel I'm being held back here :yahoo:


Cheers guys,
Simon
Don't knock on death's door - Ring the bell and run..... he hates that

L5 incomplete paraplegic. Learning to walk again and not letting anything stop me!

#2 hockeydahc

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Posted 18 September 2007 - 02:26 AM

got teh same problem... at someone's house, they offer to get a pillow or something. other than taking a pillow or pad or seat cushion with you, thers not much you can do. I can sense when it hurts, and I can shift a little, but mostly I just have to take a break from sitting now and then.

#3 Cheshire

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Posted 18 September 2007 - 03:34 AM

My brother gave me the coolest birthday present this year for this very reason: a self-inflating camping pillow. I can't remember the company that makes mine, but it's basically like a Therm-A-Rest pad, only pillow-sized.
Deflated (done by opening the valve and rolling it up), it fits perfectly in my bag.

I'd recommend going (in person or online) to an outdoor equipment/camping store and seeing what they have/can order in the way of camping pillows.

#4 PsychoSimon

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Posted 18 September 2007 - 01:08 PM

nice one guys that sounds great.
I wish they made one i could fit down my pants to make it look like i'v got a butt!! lol


Will go off in search of an inflatable one
Thank again guys
Don't knock on death's door - Ring the bell and run..... he hates that

L5 incomplete paraplegic. Learning to walk again and not letting anything stop me!

#5 Joed

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Posted 18 September 2007 - 10:02 PM

Quote

I wish they made one i could fit down my pants to make it look like i'v got a butt!! lol

:shitfan: Same here.

I usually just try to stand up and walk around as often as I can. Because I have an obliquiated pelvis, I only sit on one hip, so my entire weight is on that one bone...the other hip hovers about two inches from the seat. It's been that way all of my life, so my skin has 'hardened' on that spot...still I have to keep a close watch on it.

So while I have muscle/tissue wasting on my right side, the left side is fairly normal in bulk. I guess I need 1/2 of a butt pillow! :P I could never sit on the edge of a cliff....if a strong gust of wind came up, I'd probably teeter-totter right over. :yahoo:

I'm really liking the pillow Cheshire has described...portable and light-weight. I'll have to check it out. Thanks! :)
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#6 dom

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Posted 19 September 2007 - 07:32 PM

Hi Simon,sounds like you have the same problem as me! i notice it especially like now when i'm sitting at the pc for a short while i forget and have a sore b**t the following day,i now sit on a piano stool and try to have an overhanging b**t so the pressure is on my thigh muscles instead of bones!!its the most horrible sensation,just plain weird imo

#7 Cheshire

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Posted 01 October 2007 - 01:12 AM

View Postdom, on Sep 19 2007, 03:32 PM, said:

Hi Simon,sounds like you have the same problem as me! i notice it especially like now when i'm sitting at the pc for a short while i forget and have a sore b**t the following day,i now sit on a piano stool and try to have an overhanging b**t so the pressure is on my thigh muscles instead of bones!!its the most horrible sensation,just plain weird imo

piano bench...backless stool...I hadn't thought of that. That could help for the computer. Thanks!




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