I think alot of people come to a point when they are tired of wanting and wishing. They just want to be Ok with themselves. Or they simply get lazy. Either way, its just a personality trait. I personally am a fighter, a survivor. Its in my nature. My SCI arrises a challenge, I love it. I have everything to do with it. I know thats just me, and Im only saying this so you guys dont think Im being insensitive to the people that have stopped trying.
I get it. I dont believe we should Find a cure or die trying, but I totally get what he meant. There's nothing wrong with spending your life doing your homework, trying to make a difference for everyone, if not just a handful of people. It doesnt necesarily mean you have to give your body to science and possibly end up with some condition that kills you within a few years. I think he meant until the lord takes him from this earth, not doctors. Well I hope that is what he meant. Some of these ideas people have are ridiculous and without a doubt could harm you. Thats when it boils down to who did their homework and who didnt. Thats his own fault if he loses his life, his statement applies to the general population therefore it couldnt have contributed to HIS decision. Its like the the Tabacco Industry. You know they (may) kill you, if something else doesnt get you first. They give people the "Surgeon Generals Warning" and tell people not to smoke , good advice. What you do is your choice. Which is why the tabacoo industry isnt held liable for all the deaths they have caused.
Anyways Im not here to carry on about Barber. Im fascinated with Simon, and others who have let go of the fight. I truely agree with the idea of prolonged recovery and what a struggle that it would ultimately be, but why on earth would you care how hard it may be? Thats a case of Tunnel Vision. Your looking at the downside. So what if we may never walk again, who cares right? What if they had a surgery that could magically fix only your penis...sensation and all. Would you? (Since Im being theoretical here, lets just go ahead and say the surgery is free, no planning or work involved)
I mean how can someone honestly say they dont care.. Yeah f*@king right people. I dont see myself as any less of a person now, nor do I hate all of this. But I would totally be lying if I said I didnt care about my incapabilities. I know Im still recently injuried and my AB self is seen as a luxury now that I so desperately want. I cant ever imagine a point in my life. 30 yrs post injury or whatever, that I would actually be fine with the fact I cant dance, run, get up and get a drink in the middle of the night fast enough to remain sleepy.. Do people really just suddenly stop caring?
Considering SCI's dont discriminate I realize there are going to be a few out there that cant contribute to a better tomorrow, but there are sooooo many great minds confined to a chair. Im really amazed at just how intelligent the majority of you all are. This fight can be won but its gonna take a lot of soliders. Humanity never gained a thing by being lazy, except weight. Metaphorically speaking "No one likes to carry around weight". Lots of you are settling, do you understand what that means? SETTLING.
I will always be ok with my life as it is now, in a chair but I will never decide that it cant be fixed. I'll never stop believing in the power of the mind, miracles, and doctors. Again I wont kill myself trying to find a cure but I will die trying to find one.
I'm not sure I can relate to those who would refuse something that could improve their physical functioning. Whether that means walking or even less effort in the bathroom.
Some people become satisfied with their position in life and are afraid to change anything for fear that change might be for the worse. Others have a nature that makes them more ammenable to changes in their lives, regardless of consequences.
I like to think that I am in the large group somewhere between those extremes.
I am reconciled to my condition in life, with regard to my sci, but that doesn't mean that I wouldn't welcome a change in that condition.
Should the opportunity for stem cell therapy present itself to me ( within my power to accept it), I would jump at the chance.
This doesn't mean that I am in any way depressed about my present state. It only means that I would like it if that state could be improved.
Like Popeye used to say " I ams what I ams and dats all what I ams" ( but he still ate the spinach)
If you're too young to understand the reference, ask someone old, like me.