Jump to content


- - - - -

How Long Have You Been Injured? Living With Sci?


  • Please log in to reply
263 replies to this topic

#1 gustifer

gustifer

    Member

  • Members
  • PipPip
  • 183 posts
  • Gender:Male
  • Country:Phoenix, Az
  • Spinal Injury Level / Relationship:C6/C7 & T1/T2

Posted 09 October 2007 - 06:47 PM

As for myself, I'm 13 years into this journey. I'm the last surviving of about 7 other SCI's whom I was in rehab with (that were at least c7 up. There was a few para's there too but never kept much contact. I don't know why). I have a friend here who is 35years post and is one of the longest living quads today. Though now he is having trouble with a tumor in his bladder. His wife is also a quad and she is 17 years post. They live together alone and have been for I think 10 years now. I have a few other friends but I'm not sure of their exact time. Anyways, I just wanted to get an idea of how long everyone has been rolling on and see what makes of it.
Gus :)
Wierd, Wandering, Wonderous Working Mind...X 2 + SCI = 1 Gemini Gone Awry!

Gus

#2 Doug

Doug

    Member

  • Members
  • PipPip
  • 271 posts
  • Gender:Male
  • Country:Florida
  • Spinal Injury Level / Relationship:C5

Posted 09 October 2007 - 07:34 PM

1 year post..my mentor is a c-5-6 quad thats 41 years poast

#3 LilCube

LilCube

    Newbie

  • Members
  • Pip
  • 101 posts
  • Gender:Male
  • Country:USA
  • Spinal Injury Level / Relationship:C5-C6
  • Injury Date:28-02-1992

Posted 09 October 2007 - 09:29 PM

be 15 years on February 28th
http://www.lilcube.com/blog - My blog! - looks best with Mozilla Firefox

#4 Yong

Yong

    Member

  • Members
  • PipPip
  • 229 posts
  • Gender:Male
  • Country:Atlanta, Georgia, USA
  • Spinal Injury Level / Relationship:T6 Complete
  • Injury Date:22-04-2007

Posted 10 October 2007 - 12:19 AM

Hi everyone,

My name is James and I am a newbie to this board. I was searching YouTube for some videos on wheelchair transfers and came across this site. What a treasure find!

To introduce myself, I am a 21 year old college student in Atlanta, Georgia. I currently go to University of Georgia. Before my accident, I was a candidate in the officer program for the US Marine Corps. SEMPER FI! Haha.

I was injured in a motorcycle accident and am a T6 complete. I'm five months post injury and still trying to figure this whole thing out.

If you're ever in the ATL area and would like a local friend, let me know!

#5 wheeliebear75

wheeliebear75

    Advanced Member

  • Members
  • PipPipPip
  • 2,784 posts
  • Gender:Not Telling
  • Country:San Diego California
  • Spinal Injury Level / Relationship:L2 incomplete 4/28/1990

Posted 10 October 2007 - 02:02 AM

As of 4/28 it has been 17yrs. I know how long it's been.........but it isn't something I make a special note of.
*Enjoy every sunset, but be grateful for every dawn.*
*Wheelchairs are made of a special ocular magnetic alloy......they're "eyeball magnets".*
*I USE a wheelchair, that does NOT make ME a wheelchair!*

#6 KimAndSophie

KimAndSophie

    Member

  • Members
  • PipPip
  • 338 posts
  • Gender:Female
  • Country:Toronto, Canada
  • Spinal Injury Level / Relationship:c6 complete

Posted 10 October 2007 - 02:16 AM

It's been 3 years for me on Oct. 4th.

#7 KarenFerguson

KarenFerguson

    Member

  • Members
  • PipPip
  • 569 posts
  • Gender:Female
  • Country:Los Osos, California
  • Spinal Injury Level / Relationship:L3-L4 married to a C5

Posted 10 October 2007 - 03:28 AM

I've been disabled since birth (premature birth with bleeding in my spine) - that's 26 years for me - (L3-L4 incomplete). Hubby (a C5 quad) has been living with an SCI for 12 years.
Hubby's website: www.basketcasecomix.com
My Blog: www.inanemusings.wordpress.com

#8 Rudy

Rudy

    Newbie

  • Members
  • Pip
  • 29 posts
  • Gender:Male
  • Country:Victoria B.C.
  • Spinal Injury Level / Relationship:3-4

Posted 10 October 2007 - 04:06 PM

I am a 45 year old C3-4 quad. This March will be 30 years since my accident

#9 josh27c

josh27c

    Newbie

  • Members
  • Pip
  • 31 posts
  • Country:Texas
  • Spinal Injury Level / Relationship:C1,2,4 and 5

Posted 10 October 2007 - 04:37 PM

December 21st will be 5 years and I'm still here, going STRONG!

#10 4Wheels

4Wheels

    Newbie

  • Members
  • Pip
  • 71 posts
  • Country:Southern Illinois
  • Spinal Injury Level / Relationship:C5-6

Posted 10 October 2007 - 10:35 PM

:) 26 Fu#king years last June...... Tree fell in front of my car while on my way to work at night.... I've kept plenty busy working, DJing, running lights and sound for my old band, repairing electronic equipment..... But it still sucks...

Jim
For Those About to Rock, I Salute you!

#11 Susi

Susi

    Newbie

  • Members
  • Pip
  • 79 posts
  • Gender:Female
  • Country:Windhoek, Namibia (South West Africa)
  • Spinal Injury Level / Relationship:C5/C6 Incomplete

Posted 11 October 2007 - 05:52 AM

:H2kOther (26): I'll be 5 years this December.

I have learnt a lot about myself during these 5 years. Found tolerance, patience (well still working on that), faith, and learning to go out again amongst the public.

Been home bound pretty much these last 4 years (my choice), and only since july found the courage to work part-time again.

Different experience, but learning to live with embarrassment factor.

Here's to all us brave souls, whatever year we were injured in.

#12 adi chicago

adi chicago

    Newbie

  • Members
  • Pip
  • 18 posts
  • Country:romania and sometimes chicago usa
  • Spinal Injury Level / Relationship:c6-7 complete sci

Posted 16 October 2007 - 12:46 PM

complete quad c6-c7 since april 2002.

#13 smokymtn memories

smokymtn memories

    Member

  • Members
  • PipPip
  • 178 posts
  • Gender:Female
  • Country:Sevierville TN
  • Spinal Injury Level / Relationship:C4-C6 L-4 Incomplete

Posted 16 October 2007 - 03:31 PM

I don't have an exact date, don't know when my accident was. It's been since about Dec 05 since the major problems started.

Hey Adi, welcome to the forum. Hope your flu/cold is better.

#14 adi chicago

adi chicago

    Newbie

  • Members
  • Pip
  • 18 posts
  • Country:romania and sometimes chicago usa
  • Spinal Injury Level / Relationship:c6-7 complete sci

Posted 16 October 2007 - 04:49 PM

View Postsmokymtn memories, on Oct 16 2007, 03:31 PM, said:

I don't have an exact date, don't know when my accident was. It's been since about Dec 05 since the major problems started.

Hey Adi, welcome to the forum. Hope your flu/cold is better.
hi smokynmtn ........yes thanks god my flu/cold is better day by day ....the fever is gone.

#15 Justbnadude

Justbnadude

    Lurker

  • Members
  • 3 posts
  • Country:North Carolina USA
  • Spinal Injury Level / Relationship:c-5 c-6 complete

Posted 16 October 2007 - 05:19 PM

View Postadi chicago, on Oct 16 2007, 04:49 PM, said:

View Postsmokymtn memories, on Oct 16 2007, 03:31 PM, said:

I don't have an exact date, don't know when my accident was. It's been since about Dec 05 since the major problems started.

Hey Adi, welcome to the forum. Hope your flu/cold is better.
hi smokynmtn ........yes thanks god my flu/cold is better day by day ....the fever is gone.


I was injured March 27. 1987......... :( MVA
May you always have love to share,
health to spare,
and friends that care.

#16 LuckyinKentucky

LuckyinKentucky

    Member

  • Members
  • PipPip
  • 519 posts
  • Gender:Male
  • Country:Kentucky, USA
  • Spinal Injury Level / Relationship:T-12

Posted 17 October 2007 - 12:01 AM

October 27th 03

#17 Elzeen

Elzeen

    Newbie

  • Members
  • Pip
  • 42 posts
  • Country:California
  • Spinal Injury Level / Relationship:T12

Posted 17 October 2007 - 03:43 AM

31 years for me as a T12 para

#18 milosh

milosh

    Member

  • Members
  • PipPip
  • 665 posts
  • Country:london, UK
  • Spinal Injury Level / Relationship:quadriplegic - incomplete

Posted 17 October 2007 - 08:36 PM

21 years

#19 ParaforGod

ParaforGod

    Member

  • Members
  • PipPip
  • 307 posts
  • Gender:Female
  • Country:GA
  • Spinal Injury Level / Relationship:T4 Complete

Posted 17 October 2007 - 08:41 PM

Aug 4th was 7 yrs. for me

#20 gustifer

gustifer

    Member

  • Members
  • PipPip
  • 183 posts
  • Gender:Male
  • Country:Phoenix, Az
  • Spinal Injury Level / Relationship:C6/C7 & T1/T2

Posted 17 October 2007 - 09:43 PM

Boy, where does time go. One minute you're like "Huh, what, how am I supposed to live like this?" The next it's "I've been living like this for how long?" :ban:
Wierd, Wandering, Wonderous Working Mind...X 2 + SCI = 1 Gemini Gone Awry!

Gus

#21 Beachmom

Beachmom

    Newbie

  • Members
  • Pip
  • 10 posts
  • Country:Southern California
  • Spinal Injury Level / Relationship:Daughter of C4-5

Posted 19 October 2007 - 02:52 AM

:drive: My mom's been a C4-5 for 28 years. She has never let anything keep her down! Had to raise a newborn and a 3 year old by herself back in 1979! She had a bad case of pressure sores, but recently had surgery, and has bounced back amazingly! I didn't think she had the strength in her for the invasive surgery, but her body just keeps going STRONG!!!!!!

#22 4Wheels

4Wheels

    Newbie

  • Members
  • Pip
  • 71 posts
  • Country:Southern Illinois
  • Spinal Injury Level / Relationship:C5-6

Posted 19 October 2007 - 02:45 PM

View PostBeachmom, on Oct 18 2007, 09:52 PM, said:

:drive: My mom's been a C4-5 for 28 years. She has never let anything keep her down! Had to raise a newborn and a 3 year old by herself back in 1979! She had a bad case of pressure sores, but recently had surgery, and has bounced back amazingly! I didn't think she had the strength in her for the invasive surgery, but her body just keeps going STRONG!!!!!!
:drive: I think thats a great thing she has accomplished.........
You should be very proud of her.....
I wanna puke when I see stories of mothers just cranking out kids for bigger welfare checks.....
Then pawning them off on others to raise......

Jim

Edited by 4Wheels, 19 October 2007 - 02:47 PM.

For Those About to Rock, I Salute you!

#23 Avocado Baby

Avocado Baby

    Member

  • Members
  • PipPip
  • 620 posts
  • Gender:Female
  • Country:Newbury, Berkshire. UK
  • Spinal Injury Level / Relationship:T8(ish) Spina Bifida

Posted 19 October 2007 - 05:19 PM

26 years for me

26 years for me :cheers:
Paraplegic with Spina Bifida. Sensory and function level is T8. T11-L5 fusion 1993. Laminectomy and decompression T10 2006. Spinal fusion T8-T12 with instrumentation Feb 2007. Moderate kyphoscoliosis. Taking 75mg Lyrica 3xday for neuropathic pain.

#24 HCHC

HCHC

    Newbie

  • Members
  • Pip
  • 34 posts
  • Gender:Male
  • Country:Finland
  • Spinal Injury Level / Relationship:T10

Posted 19 December 2007 - 11:37 PM

Hi guys&girls my first post!!

Little over seven years and still rolling strong :cheers:

#25 xMaddiex

xMaddiex

    Member

  • Members
  • PipPip
  • 309 posts
  • Country:Basildon, just outside London
  • Spinal Injury Level / Relationship:girlfriend of T6 para

Posted 20 December 2007 - 05:08 PM

It's been two years post for Jason, since the beginning of October.

#26 allis53ca

allis53ca

    Member

  • Members
  • PipPip
  • 713 posts
  • Gender:Male
  • Country:rocky mountain high
  • Spinal Injury Level / Relationship:c-5

Posted 20 December 2007 - 09:48 PM

it was 4 years this past sept..c-5 no hands.not easy, but better than dead...

#27 woodman

woodman

    Member

  • Members
  • PipPip
  • 151 posts
  • Country:Hawaii
  • Spinal Injury Level / Relationship:C5/6

Posted 20 December 2007 - 10:22 PM

Twenty years, come April 18.

When I broke my neck, I figured that there would be a cure to come along in 10-20 years. HUH! What a f*cking dream!

It was 1988, and technology seemed limitless.

I had almost no control of my body. I knew it was time for a shit whenever a turd decided to pop out of my ass, and since there was no way I could control it, I usually shat all over myself to where I had to be cleaned-up.

Remember, this was back in the 80's when technology held the prospect for great potential, so when I asked my Dr. about this and he suggested "digital stimulation", I was thrilled!

"Digital", is a term I interpreted in the same way a compact disk was "digital" technology for sound.

"This is great," I thought.

"They've developed some digital technology that will allow me to regain my ability to take a proper shit"

At first, I thought they were going to shove a microchip up my ass that would give me back control over my bowels.

MAN! That was wishful thinking

Then the doctor ruined it by explaining the actual process.

#28 nomis

nomis

    Advanced Member

  • Members
  • PipPipPip
  • 2,801 posts
  • Gender:Male
  • Country:New Zealand
  • Spinal Injury Level / Relationship:Para T4
  • Injury Date:11-02-1970

Posted 20 December 2007 - 10:29 PM

Best laugh I've had all week, Woodman. Cheers.
"It's the notion that there is no perfection ~ that this is a broken world and we live with broken hearts and broken lives but still that is no alibi for anything. On the contrary, you have to stand up and say hallelujah under those circumstances. " - Leonard Cohen

#29 dom

dom

    Member

  • Members
  • PipPip
  • 941 posts
  • Gender:Male
  • Country:kent
  • Spinal Injury Level / Relationship:L1 incomplete

Posted 20 December 2007 - 11:27 PM

yeah woodman! they cloak these terms in often unidentifiable language to make you feel better-digital evacuation [digging out a turd] isc-[sticking a tube up your eyepiece]pain management/bowel management/programme this programme that,it sounds like we are all robots and need reformatting :yahoo:

#30 Murray

Murray

    Member

  • Members
  • PipPip
  • 370 posts
  • Gender:Male
  • Country:Placerville, CA
  • Spinal Injury Level / Relationship:T6, T10-T11, complete

Posted 20 December 2007 - 11:32 PM

Woodman - excellent story! Or as excellent as one can get, considering the circumstances!

On the matter of this string's question: I concur with an earlier post which mentioned unresolved issues, pre-sci, that bore on self-acceptance after injury. I have had epilepsy since age 15. My parents did a superb job of not restricting my activities throughout boyhood and adolescence. I participated in athletics in school, surfed, got into the expected amount of mischief for a "normal" young male. After leaving home, I continued what I later found was compensating - I climbed major peaks in the Pacific NW, fought forest fires, worked at a half-way house for delinquent boys, coached hs football, helped run a summer backpacking program in the Cascades, worked construction, worked a 20 acre farm, and drank like a fish. One morning after a bender, I got up, went to work - forgot my meds - was hanging some siding on the gable end of a friend's new home, and had a seizure. Fell 30 feet.
After hospitalization, among other things, I spent about six months in counseling. Guess what? Unwittingly, I'd spent the greater portion of my life trying to make up for being epileptic. Now that I was paraplegic, there was no escaping the reality of self-acceptance, regardless of appearance or of others' perception. A good lesson. A late one, sure. But, a good one.
Obey little. Resist much. -Whitman
Irrevence is the champion of liberty and its only defense. -Twain




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users



This website is a way for those with spinal cord injuries to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.