21 replies to this topic

[professirx]

Today marks the third anniversary of Christopher Reeve’s passing. As my General in this mission to advocate, educate, entertain and inspire others not to give up, I am honored to have used my work to continue his legacy and purpose.




http://myspacetv.com...p;videoid=65862

[PetitMortVampyre]

professirx, on Oct 10 2007, 09:19 AM, said:

Today marks the third anniversary of Christopher Reeve’s passing. As my General in this mission to advocate, educate, entertain and inspire others not to give up, I am honored to have used my work to continue his legacy and purpose.




http://myspacetv.com...p;videoid=65862

I cried when they announced he had passed. I thought if ANYONE could find a cure, it was him. I held out hope for his wife, she continued his crusade, but sadly her life ended too soon (I look at it this way-if there is that Heaven/Summerlands-she is dancing with him.... or I hope anyway) I wonder if the children would do it.

Rest in peace Chris, you were my hero, and not just because you were my Clark Kent/Superman, but because through your life, people learned, it could happen to *superman* it could happen to me, and took notice and responded, instead of not giving a damn.

[josh27c]

Good videos Professirx. You got talent!

[barber1]

Keep up the good work!!

[Kev-O]

dude i got the chills when i heard that song........ good work man

[wheeliebear75]

Well........I'm sure that I will catch a certain amount of flack for this......I don't think that Christopher Reeve was "all that". Sorry the guy died.........and sorry for his family. I know he did do a lot of good for the SCI community..........but he did some harm as well(IMO). He raised money for stem cell research and public awareness of spinal cord injury; however he also went before congress and told them that his body was a prison and that he had very little quality of life. I know that pulling on heartstrings gets the grants. Where I have a problem is that this guy had the financial means to have the best of the best in both equipment and care, he could have traveled the world and done almost anything he wanted...............but what is so sad is that from everything I have seen he NEVER accepted his disability, he was choosing to sit around and wait for someone to "fix it". I may have it all wrong............but I don't think he did as much as he could have to help the disabled community. I think he helped but in a similar way as Jerry Luis with his telethons............I don't think the price of help is worth the cost of pity. That's my two cents or two dollars...........your choice.LOL

[Tim13]

wheeliebear75, on Oct 11 2007, 12:20 AM, said:

Well........I'm sure that I will catch a certain amount of flack for this......I don't think that Christopher Reeve was "all that". Sorry the guy died.........and sorry for his family. I know he did do a lot of good for the SCI community..........but he did some harm as well(IMO). He raised money for stem cell research and public awareness of spinal cord injury; however he also went before congress and told them that his body was a prison and that he had very little quality of life. I know that pulling on heartstrings gets the grants. Where I have a problem is that this guy had the financial means to have the best of the best in both equipment and care, he could have traveled the world and done almost anything he wanted...............but what is so sad is that from everything I have seen he NEVER accepted his disability, he was choosing to sit around and wait for someone to "fix it". I may have it all wrong............but I don't think he did as much as he could have to help the disabled community. I think he helped but in a similar way as Jerry Luis with his telethons............I don't think the price of help is worth the cost of pity. That's my two cents or two dollars...........your choice.LOL

+1

[Texaswheelz]

wheeliebear75, on Oct 10 2007, 07:20 PM, said:

Well........I'm sure that I will catch a certain amount of flack for this......I don't think that Christopher Reeve was "all that". Sorry the guy died.........and sorry for his family. I know he did do a lot of good for the SCI community..........but he did some harm as well(IMO). He raised money for stem cell research and public awareness of spinal cord injury; however he also went before congress and told them that his body was a prison and that he had very little quality of life. I know that pulling on heartstrings gets the grants. Where I have a problem is that this guy had the financial means to have the best of the best in both equipment and care, he could have traveled the world and done almost anything he wanted...............but what is so sad is that from everything I have seen he NEVER accepted his disability, he was choosing to sit around and wait for someone to "fix it". I may have it all wrong............but I don't think he did as much as he could have to help the disabled community. I think he helped but in a similar way as Jerry Luis with his telethons............I don't think the price of help is worth the cost of pity. That's my two cents or two dollars...........your choice.LOL

Well said, he made people look at people in chairs the way that i try to get people to stop looking at us. Yes he did raise money for research and brought more attention to some issues. Yet he never moved on, never accepted what had happened to him, never accepted that he could still live a happy live that many people do after being injured. Just think if while he was campaigning for money and research if he had also said, look at me, even though I'm confined to a wheel chair, I can still live life to the fullest, but instead he chose to die. His injury didn't kill him, his lack of regard for his own life and allowing no telling what to be done to him killed him. I remember the last time I saw him on TV on some special, i turned it off as it made me sick to see what he had done to him self. I remember that he didn't have a hair left on him, even his eye brows and eye lashes where gone, never seen another quad that looked any where near as bad as he looked.

Sorry professirx, i just don't feel the same way about him that you feel. I'm not suffering, I'm not trapped, I don't need to be fixed to live a full life.

[KimAndSophie]

Texaswheelz, on Oct 10 2007, 11:00 PM, said:

wheeliebear75, on Oct 10 2007, 07:20 PM, said:

Well........I'm sure that I will catch a certain amount of flack for this......I don't think that Christopher Reeve was "all that". Sorry the guy died.........and sorry for his family. I know he did do a lot of good for the SCI community..........but he did some harm as well(IMO). He raised money for stem cell research and public awareness of spinal cord injury; however he also went before congress and told them that his body was a prison and that he had very little quality of life. I know that pulling on heartstrings gets the grants. Where I have a problem is that this guy had the financial means to have the best of the best in both equipment and care, he could have traveled the world and done almost anything he wanted...............but what is so sad is that from everything I have seen he NEVER accepted his disability, he was choosing to sit around and wait for someone to "fix it". I may have it all wrong............but I don't think he did as much as he could have to help the disabled community. I think he helped but in a similar way as Jerry Luis with his telethons............I don't think the price of help is worth the cost of pity. That's my two cents or two dollars...........your choice.LOL

Well said, he made people look at people in chairs the way that i try to get people to stop looking at us. Yes he did raise money for research and brought more attention to some issues. Yet he never moved on, never accepted what had happened to him, never accepted that he could still live a happy live that many people do after being injured. Just think if while he was campaigning for money and research if he had also said, look at me, even though I'm confined to a wheel chair, I can still live life to the fullest, but instead he chose to die. His injury didn't kill him, his lack of regard for his own life and allowing no telling what to be done to him killed him. I remember the last time I saw him on TV on some special, i turned it off as it made me sick to see what he had done to him self. I remember that he didn't have a hair left on him, even his eye brows and eye lashes where gone, never seen another quad that looked any where near as bad as he looked.

Sorry professirx, i just don't feel the same way about him that you feel. I'm not suffering, I'm not trapped, I don't need to be fixed to live a full life.

Wheeliebear and Texaswheelz' I totally agree with both of you! There's not a lot moreleftfor me to say, because you both just said exactly what I've been thinking.

[Kev-O]

dont care what yall say he was a great man that just wanted to walk again. If he accepted that or not thats all on him. the man could barly move his head. look at your injurys L2 incomplete, T-12, c6 complete. atleast yall have something the man had nothing. I know if all i could do is talk and blink i would be sitting around waiting for some one to fix me, and hell no i would not acceped being like that for the rest of my life and if that means making congres feel sorry for me and you to get them to start paying so some day i may be able to walk again then so be it.

[hockeydahc]

if the Chris Reeve's out there don't show the AB community the difficulties with SCI, they'll all recycle wrong information, leading to less understanding and more of the treatment, thoughts and stares we want to avoid.

that being said, I have a blast, almost more fun than I did AB, as I am now, and I don't want anyone to think I'm sickly, weak, or pitiful.

[wheeliebear75]

It's true that I'm merely an L2 incomplete. There are other people with C2 injuries like that of Christopher Reeve who do still go out to dinner with friends go to college they travel and all sorts of stuff; all while in an electric chair operated by "sip puff" methods and needing a portable respirator on the back of their chair to breathe. If you can't do anything with your body than do something with the mind...........but if you don't do even that then you'll turn into a nut case. When I or anyone else goes out and has dinner with the family or goes to a child's soccer game we are representing everyother person in a wheelchair..........right or wrong that is just how it is. When an AB sees us out there having fun and smiling obviously enjoying life it paints a picture in that AB person's head..........or they can go ahead and think that our lives are so miserable we "should just be shot". There are those people out there who think that life with a spinal cord injury isn't a life. Well why is that? It's because so many people think that if you need a chair to get around in your life is over. And I'm sorry but I think he did help perpetuate that type of thinking. I never said that having such a high level of injury was easy..........far from it. How would I feel if I was newly injured and the only reference I had was that of Christopher Reeve? Thinking that if he felt his life was that bad how bad would mine be........I don't know of many quads with more money then him...........so that would add to my own worries. If people find inspiration in him.........great..........I'm happy for ya. I however can NOT stand the F#@%ING PITY!

I had posted a while back in a completely different subject. A friend of my B/F rolled his ATV in a canyon and broke his neck. He was in rehab for sometime but he wound up being able to walk unaided after all was said and done. At 1st the Dr.s weren't sure if he would walk or not. My B/F thought maybe it would help Gary to stop being so depressed if he saw someone happily living life in a chair. He didn't want to see me because of my being in a chair. Now that he can walk somehow he's "better" than me. Whatever!?!? Gary was afraid of being like Christopher Reeve...........because the Dr.s told him and his fam that he had almost the same injury. Too bad the idea of a wheelchair being like one foot in the grave was perpetuated.

We all have different levels of injury/abilities. We all have different ways of dealing with our loss. We all owe it to ourselves to make sure we use this 2nd chance at life to live it to it's fullest.

[nomis]

I never knew the man in person so I’ll just speculate.
He didn’t connect with me but I wasn’t his intended audience.
He had the choice to quietly slinking away into a private life or he could use his fame as Superman to work for what he saw as a good cause.
It doesn’t matter if you agree with him or not. It was his decision, his life.

He did a remarkable job in lifting the public awareness WORLDWIDE of the need for SCI research.
He also tagged the Superman image to that of the spinal injury world. It can happen even to Superman.

He may well have missed out personally but he achieved his number one goal of taking his unique plight to the world for the better of all. You can’t take that away from him.

I say good on professirx for a polished and sincere performance.

[megatrig]

I'm in the not really sure he helped out hugely as he did give the "life is hard. .. body in prison" image

in my opinion!!

As he was a C1 ... I think ... he had a bit of a nightmare I guess!!

totally dependant on resperator constant infections and so on .... Soooooooooooooo I can see his viewpoint.

Problem is as he was so well known everyone kinda lumps us all in together!!!

As a totally independant C5,6 I worked really hard for my level of independance. An L1 may find "independance" easier to achieve but it still doesn't make ending up in a wheelchair top of that persons wish list of things to do with there life!

So Christopher Reeve could hgave promoted both sides more evenly in my opinion!

The I need a cure because ......................

and life continues and I can do .................... X Y Z ....... and really be happy

oh well hope that makes sense!!

[Texaswheelz]

nomis, on Oct 11 2007, 03:11 AM, said:

He also tagged the Superman image to that of the spinal injury world. It can happen even to Superman.

He also gave wheelchair bound people every where a great halloween costume and tattoo!

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[LadyPilot]

wheeliebear75, on Oct 11 2007, 08:56 AM, said:

When I or anyone else goes out .......... we are representing everyother person in a wheelchair..........right or wrong that is just how it is. When an AB sees us out there having fun and smiling obviously enjoying life it paints a picture in that AB person's head..........or they can go ahead and think that our lives are so miserable we "should just be shot".

We all have different levels of injury/abilities. We all have different ways of dealing with our loss. We all owe it to ourselves to make sure we use this 2nd chance at life to live it to it's fullest.

Very good point!!!

Some years ago when I was dating, a group of friends and I went to a night club. Now I love dancing and the wheelchair wasn't about to stop me getting on the dance floor and having fun. My girlfriends wern't afraid to join me. Then near the end of the evening when the smoochies came on my boyfriend asked me to dance. At this point my legs were trying to spasm so my boyfriend pulled me up letting the spasm hold me in a standing postion, and we 'danced'.
As the Club was closing a girl came up to me and said, "I wish I could change places with you, you seemed to be having so much fun!"

[Big Valley]

I share the opinion that CR only stressed "find a cure" when spreading knowledge could have been more effective. I sure don't feel infected so what is my cure? I just feel misunderstood and under estimated.

Doesn't matter how much I bench press, how many laps I do, how much education I have, money I make, things I do. I still am seen as the poor helpless guy in the wheelchair by everyone who doesn't know me or have any knowledge of SCI people. I am treated like a 90 year old mentally retarded person by most people.

CR did help bring SCI to the head lines for a while but I don't think anyone learned from him. Now he is gone and you don't hear anything anymore.

Also, how great of a man are you when the reason you now care so much about SCI is because you have the worst version of it and want to be fixed? Was pre-injury CR out raising money for SCI research?

[fayeforcure]

nomis, on Oct 11 2007, 08:11 AM, said:

I never knew the man in person so I’ll just speculate.
He didn’t connect with me but I wasn’t his intended audience.
He had the choice to quietly slinking away into a private life or he could use his fame as Superman to work for what he saw as a good cause.
It doesn’t matter if you agree with him or not. It was his decision, his life.

He did a remarkable job in lifting the public awareness WORLDWIDE of the need for SCI research.
He also tagged the Superman image to that of the spinal injury world. It can happen even to Superman.

He may well have missed out personally but he achieved his number one goal of taking his unique plight to the world for the better of all. You can’t take that away from him.

I say good on professirx for a polished and sincere performance.

I agree whole-heartedly.

Thank you nomis!

[edlee]

Good question Big Valley. Were you?
ed

[Big Valley]

edlee, on Oct 15 2007, 06:36 PM, said:

Good question Big Valley. Were you?
ed

Touche!

[Kev-O]

Big Valley, on Oct 13 2007, 07:32 AM, said:

Was pre-injury CR out raising money for SCI research?

I think like most of us B4 our injury we had no idea what SCI was. I know all i knew was people with SCI could not walk. Now that it has happend to me, i know more about it an know the not walking thing is not the only outcome with SCI. So no he was not our raising money for research not cuz he didn't want to cuz he didn't know. Were you our raising awarness B4 your SCI???

[Big Valley]

I am saying I am not revered to as a hero and an inspiration because of a random injury that happened to me.

CR wasn't bad but he could have done a much better job with the awareness he raised.