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[professirx]

Thank you for taking this video journey of how I started my work and what I hope to achieve in this purpose to inspiring and saving lives.

Before Christopher Reeve passed away, he opened the door for bringing awareness to spinal cord injury. I wrote a song called I am the X , a song about accepting who I was and not laying in bed all day thinking I was going to just wake up and walk, feel become independent again.




I was at a point in my life where I felt there may be something I can do as well, so with good family and friends they helped me make a documentary called A City Called Heaven. A story on who I was before and after paralysis and how I live, love and achieve goals with people I love. After making that video I entered it in several film festivals and saw how so many people knew very little about paralysis so I wanted to do more I just didn't figure out what else can I do when there was already someone famous who was bringing attention. This video I think help me find my purpose.



After that and not long from finishing promoting the documentary Christopher passed away. A feeling of fear and worry about paralysis came over me, I never thought Christopher would go, I though the world of science would make him walk. That same day after the news went off I just laid in bed. Then something came into my soul and said write a song about him. My friends laughed at me, not in a cruel manor but a way sometimes we react when we don't understand. See it's like this, sometimes we complex our lives by always analyzing every thing we feel instead of letting our feelings guide us and the we sometimes walk around in confusion. I asked God to put my life in his hands so I should trust His lead, so although friends laughed I went on with completing the song. The message I got was sometimes praising someone besides yourself can build who you are bigger then you praising yourself. This is the video.



I then went online to share with others and found a forum I never knew existed. Care Cure Communities was the forum I sent it to. I then got messages to sing the song at a rally in front of Capital Hill in washington, DC. I was in shock but even more when I got there. Still I didn't know my purpose but I knew I had God to thank for my part in this mission Christopher fought for. This is video from Rally.


This was an update to Forever Superman to show what went on at the rally

http://www.youtube.com/watch?v=gWI0fnBBVlg

After attending the rally, making new friends, not only did I learn why everyone was there, to ask our government to help us cure paralysis. But seeing Christopher Reeve's wife cry from the song was the stamp that opened my eyes to purpose. After I got home, I started writing songs to bring awareness and help to cure this challenged. I went to see Dr. Wise Young at his lab in New Brunswick, NJ and I learned about stem cells and what research has studied to use this therapy towards curing all diseases. I then wrote I Believe , a song to promote getting educated before judging what research can possibly do.

http://www.youtube.com/watch?v=4nAChq1zMCE
Then in time Dr. Wise and Dr. Patricia Morton invited me to perform in Hong Kong at a symposium to bring scientist and doctors together to share what they are studying to help people in their lives towards repairing functions.

http://www.youtube.com/watch?v=qRUl9-GzboU

That was an experience that God got me through, things I learned just from how the airplanes aren't designed for people with a full limb paralysis. So I came back with a bed sore. Bedsores are dangerous and life threatening. So if anyone in my situation travels, be sure to get two forms of cushions for your butt , your back and side. Ride first class if you flying like I did over 18 hours. But thank God I only had to spend 3 weeks in bed, wasn't easy but I seen worse situations that left people hospitalized or worse. The next song was Bow to Wise, thanking him for his kindness, bringing me to Hong Kong to perform.

http://www.youtube.com/watch?v=wD-6B130jyU

Then the 2006 Rally to cure paralysis was coming up and then Dana passed. All of us had to continue to fight, get the Christopher Reeve Paralysis Act passed, keep fighting for a cure. Here is footage from the rally.

http://www.youtube.com/watch?v=y8ZFSNb55SM

Here's the song I did, dedicated to both Christopher and Dana. I believe in fighting for all issues we face from violence to diseases, nothing should keep destroying us. God's original plan was everlasting life, it's up to us to work towards that.

http://www.youtube.com/watch?v=FVfe2zuLh4A

Their relationship inspired me to believe there is someone for everyone. Relationships are all about sacrifice. Even some perfect relationships face challenges in some way. I wrote a song called are you ready. Explaining how I can feel even though I can't physically feel. Learning that there is more to touch then the physical, that I can feel through the mind and spirit. Are you ready opens that door to possibilities.

http://www.youtube.com/watch?v=2E0oVpJSH48

Then it was back to the war on death. I wrote a song called Stem Wars or Who's ore government caring for. A song about how we fight for death and very little for life. That like many disputes after all the arguing and fighting you together again. For example, ever known two people who always fighting and breaking up then getting back together, well that's the message I hoping to deliver, we fight and fight until all we gain is death then we truce once we're oppressed, so think about it, is killing each other really worth it when we realize the only win is in unity.

http://www.youtube.com/watch?v=tBsDy0BOY0A

Then Jason McElwain know as J-Mac inspired me even more, I have a Godson with autism and he's my best friend, still a kid, needs guidance and taught to appreciate the things you have but their for me when I need him. Here's to J-Mac for inspire the world and showing us possibilities

http://www.youtube.com/watch?v=8PqI42xoJs4


I had the 2007 Rally where I met Daryl Mitchell, Groove B-Chill who also became injured, this song called No Stopping because no matter what we face, there's no stopping us

http://www.youtube.com/watch?v=9rVZavOOw7I
You can see more videos on youtube and veoh, thanks for taking this video journey with me, I'm hoping to create more work for you very soon.

http://www.youtube.c...&...sirx&page=1

http://www.veoh.com/...name=professirx

[fayeforcure]

Hi ProfessirX,

Thank you for that wonderful videolog. As Cure Paralysis Now, we were happy to have you get started in Cure advocacy in Washington DC, at the 2005 Spring Into Action rally.

Quite a journey you've made,......and you've inspired so many people along the way. There is no better language that music as our universal language, and the YouTube clips add the much needed visual dimension to that. Excellent job, and it was good to see you again at the Boston Stem Cell Summit a couple of weeks ago!

Cure Paralysis Now has since 2005 rededicated itself to hESCR advocacy exclusively.
Too bad we've seen scientists and legislators like Neil Cohen derail the hESCR efforts in NJ:

hESCR Fight is NOT just against Fundy-Republicans.
Category: General, Legislation, Cure Paralysis, Cure Paralysis Now, state stem cell research — By: Faye on October 15, 2007 at 9:39 am

Clearly something is seriously amiss in NJ.

An Oct 10th article in the Star-Ledger titled "N.J. acts on third stem cell research center" says this:

"The three projects are being launched as voters prepare to consider a $450 million bond issue on Nov. 6 that would bankroll grants for research into stem cell-based medical treatments.

Embryonic stem cells, the building blocks of living things, are seen as a potential key to curing diseases like Alzheimers, Lou Gehrig’s disease and spinal cord injuries. But their use in research is opposed by critics who say it involves killing human embryos, and could lead to human cloning."

As an embryonic stem cell research supporter I have been extremely disappointed in NJ’s embryonic stem cell research efforts since their bold 2003 pro-ESCR announcement, and do not believe we’ll see much human embryonic stem cell research in NJ in the future either.

It’s pretty shocking to see NJ’s lack of interest in hESCR ( human embryonic stem cell research)! In fact it’s ironic to see the "anti-choicers" protest the ballot, when the pro-hESCR folks should be the ones to be outraged. Please see Senator Karcher’s letter to Governor Corzine attached below.
On Dkos you may also have seen my diary in June titled "Christopher Reeve Betrayed by NJ Governor".


Still hard to believe that even after the second round of stem cell funding in the BLUE state of NJ: 28 grants for ASCR ( adult and mouse-embryonic), and ONLY 5 grants for hESCR.

Unless the bond issue provides for substantial and dedicated hESCR funding it’s a sham. Voters beware!

A lesson for the hESCR community is that rather than work for the symbolism of making hESCR legal in all states, it may be more important to be vigilant in those states that already support hESCR but have not come through on their hESCR promise.

Let’s make sure we’re not just satisfied with "crumbs" as in "half a loaf is better than none", while the state of NJ falsely keeps hyping the extent of their hESCR funding.

September 20, 2007

Honorable Jon S. Corzine
Office of the Governor
P.O. Box 001
Trenton, N.J. 08625


Dear Governor Corzine:

As a firm supporter of stem cell research, I commend you for your efforts in bringing the state of New Jersey to the forefront of stem cell research. I believe that it is imperative that the state of New Jersey funds the type of stem cell research that the federal government has chosen to ignore.

I am writing to encourage you to explore the promotion of embryonic stem cell research. If New Jersey wants to become a leader in stem cell research, it must also be a leader in promoting embryonic stem cell research. It was my understanding that New Jersey would primarily be promoting embryonic stem cell research. Yet, out of the seventeen award recipients of 2006, only two are truly focused on the promotion of embryonic stem cell research.

I appreciate your consideration in this matter. I would ask that you contact me at 732-462-8883 or at SenKarcher@njleg.org.



Sincerely,


Ellen Karcher
Senator, 12th Legislative District


http://stemblog.net/?p=133

Edited by fayeforcure, 15 October 2007 - 05:17 PM.