[sweetie]

I go through phases of getting hot or cold feeling in my legs and feet,
At the moment my feet feel like ice I have felt my legs and they are cold, but some days I have this same feeling touch my legs and they feel hot. It also feels prickly in my feet.
Does anyone else suffer from this proplem or knows why this happens

[kewlcatkez]

sweetie, on Oct 28 2007, 09:21 PM, said:

I go through phases of getting hot or cold feeling in my legs and feet,
At the moment my feet feel like ice I have felt my legs and they are cold, but some days I have this same feeling touch my legs and they feel hot. It also feels prickly in my feet.
Does anyone else suffer from this proplem or knows why this happens

Hi My drs tell me its neuropathic symptoms. Different to the neuro pain I get but still along the same vein. I have no real sensation in my legs yet have pain and burning and it changes, sometimes I feel ike someone has a tourniquette around my toes and ankles, other times its a shearing ice pain. This is seperate to the deep inner core pain...I have a connective tissue disorder, daily + dislocations and associated shebang that goes with it as well as the paralysis/neuropathies, but what you describe seems to be pretty common..

Check out the Pain info from this very site!.. which the administrator has posted here check post 3

also this topic was discussed recently and you can see other's replies HERE

hope this helps,

K

This post has been edited by kewlcatkez: 28 October 2007 - 10:14 PM

[nomis]

Hi sweetie (hey, it's fun writing that)

I'm becoming interested in the cold feet thing. I'm fairly sure my feet have got cold going back years. I never took much notice but some of my bed partners complained. I told them I was focusing the heat higher up.

Cold feet have got to be related to blood circulation and what I need to find out is how to avoid damage that could in the longterm lead to undesirable consequences. Not letting them get too cold for too long is the obvious first defense. But sometimes it takes forever for them to warm up even when I am buried under bedding.

I haven't heard of people being educated to any dangers but I do know of a couple of longterm SCI's who eventually had legs amputated though there may have been other factors than circulation. I don't know.

It does seem common that many SCI's have cold feet for many years without obvious detriment. But I don't think we should be complacent. I'd like to know if anyone has experience with treatments beyond thick socks, boots or feet warmers - like, has anyone been advised to wear tight full-length stockings...?


kewlcatkez

That term "neuropathic symptoms" is a classic. Typical vague generalisation expounded by medical people when they are not precisely certain...or am I being harsh? As I said it's got to be circulation related but just why the blood flow is poor may be to do with the nerve system - the veins are slack and muscles aren't pumping normally, temperature control is fuzzy with high level SCIs, etc.

This post has been edited by nomis: 28 October 2007 - 11:19 PM

[kewlcatkez]

nomis, on Oct 28 2007, 11:17 PM, said:

kewlcatkez

That term "neuropathic symptoms" is a classic. Typical vague generalisation expounded by medical people when they are not precisely certain...or am I being harsh? As I said it's got to be circulation related but just why the blood flow is poor may be to do with the nerve system - the veins are slack and muscles aren't pumping normally, temperature control is fuzzy with high level SCIs, etc.

Hi Nomis,

you are most probably correct, well you are regarding the circulation, but you probably are also correct regarding the cold 'symptoms'. Makes perfect sense.

As for the label of 'neurological symptoms' being a classic, I do agree with you there also. Thats why I said that my drs say it is LOL. I am probably as guilty as I am an RN ( still on the roll for a bit longer, even tho not working!) ..I am certainly not even that clued up on it, I just know that all I have tried hasn't improved it and I like others am just going to have to get on with things. I do admire folks like you who have the understanding and the gumption to look outside of the box!

Take care,

edited as I spelled your name wrong! sorry!

This post has been edited by kewlcatkez: 28 October 2007 - 11:31 PM

[smokymtn memories]

I'm c 4-5-6 and L 4 incomplete, walk with a cane, and have the cold feet/legs problem. Seems there's no rhyme or reason as to why or when they're cold or warm.

I usually wear socks and slippers at home, does'nt seem to make any difference.

I got the same reason, neuropathic. My feet often look red or even have a blueish look. I've always figured circulation had a hand in it since I do have to sit a lot.

[sweetie]

Thanks Kewcatkez I did look at the other site missed it before I thought It must be
circulution, just wandered if it was common in a lot of people I do have an exercise bike I use
but it never makes any difference. I do feel lucky that I am pain free with it.
Thanks nomis about the amputee message feel really happy now!!!!
I will be extra extra carefull now to keep my feet warm.

[nomis]

Hey sweetie, I was dropping in an irresistible incentive to look after yourself.

Something I missed, exercise. That's got to help because it speeds up circulation - so, even waving your arms about should improve circulation throughout the body (if you do it enough). We'll soon be able to recognise the people with cold feet - they'll be the ones waving their arms about.

[Lucky]

I too get very cold feet and hands, probebly due to bad circulation.
I always feel better when I have warm 'digits'.
I find that the elastic in my socks seem to make my tootsies nesh so I try to keep moving the elastic part of my sock up and down so not to leave marks too.
Doing the washing up in hot soapy water usually gets the blood circulating around.