10 replies to this topic

[wheelygirl38]

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

[kiwiquad]

Hi Julie,
I am 24yrs SCI, & had a hysterectomy in '92. In my my case, stomach cramps, sore backs, sweating etc began post op.
I never suffered whilst menstrating, I just found it a great inconvenience...pro's & cons huh?

[azx43]

wheelygirl38, on Dec 4 2007, 02:24 PM, said:

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

Oh, I don't know if "suffer" is as far as I'd go. I'm 27, and I get my menstrual period every month just like everyone else. . . to me, "my moon-time" is time to congratualate myself on being a woman; it means that I'm healthy and able to have children. In a way, women were "designed" to go through their periods just like they are set up to be pregnant and have babies! That's why we do it, and not guys!!
Of course, everyone has a right to their opinion, and I respect yours. I realize that you have tried all sorts of things, and I'm sorry that nothing seems to hAve helped and you feel the way you do. Personally, I agree with kiwiquad; there are definitely both pros and cons. One pro is that since we sit, it's not as noticeable if their is a leak. He he! Maybe try seeing the brighter side of things?

wheelygirl38, on Dec 4 2007, 02:24 PM, said:

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

Oh, I don't know if "suffer" is as far as I'd go. I'm 27, and I get my menstrual period every month just like everyone else. . . to me, "my moon-time" is time to congratualate myself on being a woman; it means that I'm healthy and able to have children. In a way, women were "designed" to go through their periods just like they are set up to be pregnant and have babies! That's why we do it, and not guys!!
Of course, everyone has a right to their opinion, and I respect yours. I realize that you have tried all sorts of things, and I'm sorry that nothing seems to hAve helped and you feel the way you do. Personally, I agree with kiwiquad; there are definitely both pros and cons. One pro is that since we sit, it's not as noticeable if their is a leak. He he! Maybe try seeing the brighter side of things?

[KimAndSophie]

wheelygirl38, on Dec 4 2007, 04:24 PM, said:

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

If I get my period I get really bad AD. I'm only 25, and want to have kids someday, so I choose to have the Depo. shot. I get it once every 3 months and I don't have a period. When I want to become pregnant all I have to do is stop the shot.

[wheelygirl38]

azx43, on Dec 4 2007, 11:33 PM, said:

wheelygirl38, on Dec 4 2007, 02:24 PM, said:

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

Oh, I don't know if "suffer" is as far as I'd go. I'm 27, and I get my menstrual period every month just like everyone else. . . to me, "my moon-time" is time to congratualate myself on being a woman; it means that I'm healthy and able to have children. In a way, women were "designed" to go through their periods just like they are set up to be pregnant and have babies! That's why we do it, and not guys!!
Of course, everyone has a right to their opinion, and I respect yours. I realize that you have tried all sorts of things, and I'm sorry that nothing seems to hAve helped and you feel the way you do. Personally, I agree with kiwiquad; there are definitely both pros and cons. One pro is that since we sit, it's not as noticeable if their is a leak. He he! Maybe try seeing the brighter side of things?

wheelygirl38, on Dec 4 2007, 02:24 PM, said:

i was just wondering who out that suffers with there .... each month im finally going in for a operation next month for an ablastion on my uterus it crazy sitting in a wheelchair and having to suffer each month with this thing i bleed so heavy and also feel like ive been run over once again my body aches ive tryed all sorts of remedies tylen primrose b vitamins anyone elese out there suffer with this womenly problem each month and if so what do you do thanks julie

Oh, I don't know if "suffer" is as far as I'd go. I'm 27, and I get my menstrual period every month just like everyone else. . . to me, "my moon-time" is time to congratualate myself on being a woman; it means that I'm healthy and able to have children. In a way, women were "designed" to go through their periods just like they are set up to be pregnant and have babies! That's why we do it, and not guys!!
Of course, everyone has a right to their opinion, and I respect yours. I realize that you have tried all sorts of things, and I'm sorry that nothing seems to hAve helped and you feel the way you do. Personally, I agree with kiwiquad; there are definitely both pros and cons. One pro is that since we sit, it's not as noticeable if their is a leak. He he! Maybe try seeing the brighter side of things?

[alyssa]

i don't suffer, not any more then i did before at least. maybe you should talk to a gynacologist?

[LadyPilot]

wheelygirl38, on Dec 4 2007, 09:24 PM, said:

i was just wondering who out that suffers with these ....

i bleed so heavy

Yes, I can sympathise with you here. Three years ago I started to get really heavy periods. They were so bad sometimes I'd bleed for three weeks (changing max protection every few hours), made worse by abdominal cramps which made it hard to breath.

Now my GP has prescribed a wonder drug called Tranexamic acid which has made a huge difference to my periods. I take it at the first sign of bleeding and usually my period is controlled to three days. I have not suffered any side effects from taking it.

[Deej]

I sympathise with all women who have problem periods. Fortunately mine only ever really last about 3 days anyway, but I hate all the mess involved, and even though as azx43 says 'leaks are not noticable due to sitting', I often feel a bit like a snail ! - If you get my meaning.....

[hanguk]

Periods have never been much of a problem, premenstrually a mild headache and once in a while some cramping. I use tampons, not pads, because the pads don't stay in place well enough. And I hate getting discovering I have my period when I go to the bathroom and not having the tampons in the bathroom.... messy wheelchair cushion.

[kewlcatkez]

Hi,

I have always had heavy periods ( when not on the 'pill') Heck, even on the Pill had them heavyish. I have also always had tummy and thigh and back aches prior and during my period and also am a bitch to live with for 2 or more weeks of the month - PMS. I have taken progesterone supplements and even the depot ( which is progesterone rich) in an attempt to rectify the levels and abate symptoms. However, I discovered my body knew what it was doing having progesterone lower as it made my dislocations kick off big style ( hormones do have an affect on collagen much like in pregnancy).

Since paralysis etc, well I still have bloating ( i don't think others can see but) I can tell with how my clothes fit. I also still have heavy periods too. For reasons explained above I am no longer on the 'pill' so lost that benefit. I also have a general achey feeling, which is surprising that I can feel when you consider all the other pain I have ( dislocation, neuropathic, underlying etc etc). Nowadays I get a sickly headache too..not dissimilar to a cluster headache or migraine.

Saying all this, I know for a fact that I will be upset when my Menopause comes (eventually). Its probably a while off yet. I can't express why I feel this way as its not related ( as far as I am aware) to my wanting anymore children. We have 2 and I had very difficult pregnancies - but more than that, I we are happy as we are. So its a mystery. Perhaps its hormone related?

I use tampons and a moon cup. I also have a pad on as a back up through my period and panty liners the rest of the time just incase. Due to my dislocations etc, I find it more difficult to get the Moon cup in and out compared to a tampon, but have gotten better at it.

I find that limiting caffeine and taking selenium and starflower oil capsules at the time leading to my period helps with the bloating some. I take selenium anyway for my autoimmune Thyroid but there is a belief that it has use for hormonal bloating etc.

Ultimately, if you have no desire for children then I can appreciate that Menstruation san seem like an unnecessary hinderance etc. However being in a chair is secondary to it as far as being physcially able is anyway ( what I mean is women in chairs can if they so wish, on the whole have babies).

Take care,

K

Edited by kewlcatkez, 15 January 2008 - 11:34 PM.

[Avocado Baby]

Hi there,

Looking for some general advice and any explanations anyone might have as to why my periods happen so infrequently...


Ok...I only ever have about 3 periods a year. They're pretty heavy when they do happen though, which is a complete pain! It is a good thing that we're sitting down cos it doesn't show if we happen to leak, but there is the problem of the mess of it all!

If I wet myself at night, it makes an almighty mess and then when I'm getting ready in the morning, it makes it really difficult! Uusally, I transfer from the toilet, to my chair, onto my shower seat and then sit on a towel in my chair when I'm down.

Problem is, I can't do that when I'm having my period cos it'll get the towel messy! I need to put a tampon in, which means I need to sit on the toilet. But cos I haven't dried myself properly, the tampon gets all wet.

Then I have the problem when transferring that my pad moves (cos I'm sitting on it, obviousy) so if I've leaked, it goes on whatever I'm sitting on.

Anyone got any advice? What do you ladies do?

Thanks!