hi you may all remember how desperate i was a few weeks ago, well things are no different with ciaran, but i am taking small steps everyday. ciaran has still got nothing from nipples down, it has been 10 weeks now, the doctors have told him he is complete, my question is, is that it, has all hope been lost when those words are spoken, can you become in complete, and does the words in complete change things and if so how.
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Complete Or In Complete
#2
Posted 16 February 2008 - 11:20 PM
Nuna, on Feb 15 2008, 12:14 PM, said:
hi you may all remember how desperate i was a few weeks ago, well things are no different with ciaran, but i am taking small steps everyday. ciaran has still got nothing from nipples down, it has been 10 weeks now, the doctors have told him he is complete, my question is, is that it, has all hope been lost when those words are spoken, can you become in complete, and does the words in complete change things and if so how.
Hey Nuna,
I am not a doctor so that is a hard question to answer. I know I was told I was complete at time of accident and weeks later at a follow up exam my feet were moving so prognosis changed. Am now officially a T-6 incomplete para. No sensation of hot, cold or pain from nipples down. However I do feel all touch. Only time will tell. Keep praying as I do everyday for us all. Make sure you stay positive and with hard work at therapy...who knows. It has taken me 3 years to get where I am now and for me skies the limit. For me it had to get worse before it got better.
Good Luck and God Bless.
"CHEAP WOMAN AREN'T GOOD AND GOOD WOMAN AREN'T CHEAP"
"NEVER 4GET 9/11/01 THEY ARE GONE BUT NOT 4GOTTEN"
"I MUST CRAWL BEFORE I WALK (AGAIN)"
"LIVE EACH DAY LIKE ITS YOUR LAST"
"RIDE IT LIKE U STOLE IT"
Richie aka MOTOR :-)
"NEVER 4GET 9/11/01 THEY ARE GONE BUT NOT 4GOTTEN"
"I MUST CRAWL BEFORE I WALK (AGAIN)"
"LIVE EACH DAY LIKE ITS YOUR LAST"
"RIDE IT LIKE U STOLE IT"
Richie aka MOTOR :-)
#3
Posted 18 February 2008 - 10:20 PM
Motor, on Feb 16 2008, 11:20 PM, said:
Nuna, on Feb 15 2008, 12:14 PM, said:
hi you may all remember how desperate i was a few weeks ago, well things are no different with ciaran, but i am taking small steps everyday. ciaran has still got nothing from nipples down, it has been 10 weeks now, the doctors have told him he is complete, my question is, is that it, has all hope been lost when those words are spoken, can you become in complete, and does the words in complete change things and if so how.
Hey Nuna,
I am not a doctor so that is a hard question to answer. I know I was told I was complete at time of accident and weeks later at a follow up exam my feet were moving so prognosis changed. Am now officially a T-6 incomplete para. No sensation of hot, cold or pain from nipples down. However I do feel all touch. Only time will tell. Keep praying as I do everyday for us all. Make sure you stay positive and with hard work at therapy...who knows. It has taken me 3 years to get where I am now and for me skies the limit. For me it had to get worse before it got better.
Good Luck and God Bless.
hi, just wanted to say, you always take the time to reply, so thanks. x
#4
Posted 19 February 2008 - 02:38 AM
Nuna,
You and I are in similar situations. My son, age 7, was in a car accident in early January 2008. We are still in acute rehab and dealing with all of this new information. So your grandson may be diagnosed complete now, my son is T3 complete, but it will take months (we've been told 12-18) for the injury to heal completely, sometimes even longer. They (the docs) quoted us 5% chance that my son would recover anything. Still, I'm keeping hope in my heart. I know it seems like a lifetime has already passed since the day of the accident, but it is still early for your grandson. His status may change, a little, or more. Complete SCIs are just not expected to get much back, but it can happen. One one hand, we could hope and pray for a miracle, on the other hand we could grieve the loss, accept the wheelchair and help them live as much life as possible. I am divided by this every day because I believe in miracles.
Good luck, keep positive. In my saddest moments I remind myself that he is here, alive, and for that I am already blessed a thousand times over.
You and I are in similar situations. My son, age 7, was in a car accident in early January 2008. We are still in acute rehab and dealing with all of this new information. So your grandson may be diagnosed complete now, my son is T3 complete, but it will take months (we've been told 12-18) for the injury to heal completely, sometimes even longer. They (the docs) quoted us 5% chance that my son would recover anything. Still, I'm keeping hope in my heart. I know it seems like a lifetime has already passed since the day of the accident, but it is still early for your grandson. His status may change, a little, or more. Complete SCIs are just not expected to get much back, but it can happen. One one hand, we could hope and pray for a miracle, on the other hand we could grieve the loss, accept the wheelchair and help them live as much life as possible. I am divided by this every day because I believe in miracles.
Good luck, keep positive. In my saddest moments I remind myself that he is here, alive, and for that I am already blessed a thousand times over.
#5
Posted 19 February 2008 - 11:54 AM
floemama, on Feb 18 2008, 09:38 PM, said:
One one hand, we could hope and pray for a miracle, on the other hand we could grieve the loss, accept the wheelchair and help them live as much life as possible. I am divided by this every day because I believe in miracles.
I, too, believe in miracles, and have been blessed by them on several occasions. As it is, I've had three doctors tell me that I'd never walk again and had a fourth doctor tell me that I shouldn't be able to walk. Yet, God has chosen to give me the ability to walk in a limited capacity.
Still, I have to live with my injury. If it takes two years, or if I never fully recover, life is making the most of what you have. We all have limitations, even before our SCI. When you lose your job do you tell yourself that life is over? If your kid doesn't make the baseball team, do you tell them that life is over?
Take a look at Aaron Fotheringham.

As a parent, I won't want my kid doing back flips in a wheel chair. And I also wouldn't put unnecessary pressure on him, like maybe he'll walk again, etc. Just help him deal with his current situation.
As for miracles, mine have all come when I least expected it.
'Cause that's how I roll!
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